Thiamine dosage

[Gailsnail]

This is my first post! Hello, I’m Gail. 58 years old, diagnosed at 50. Was doing pretty well up until about six months ago. Daily I take 9MG Ropinirole, 6 x 100/25 levodopa/carbidopa and 1 Rasagiline. My problem is dyskinesia, sometimes pretty bad.I am seriously considering DBS but would like to try Thiamine first. Any suggestions on dosage to start with? Thanks.

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Gailsnail,

Welcome for your first post even though you've been here awhile!

Unfortunately HDT does not have a one dose fits all format. The best thing to do is to drop Dr. Costantini an email with your pertinent information and then he can recommend a dose for you to start at and then you just drop him a line with regular updates so he can determine if any adjustments will be needed. Here is a link to a post that will answer almost any HDT questions you may have as well as info on Dr. Costantini and how to contact him and what you will need. Good luck!

healthunlocked.com/parkinso...

Art

[Gailsnail in reply to Hidden]

Art: Thank you so much for the info. It was very kind of you to take the time.I am going to go over it again with my husband then write to Dr. Costantini.

[Hidden in reply to Gailsnail]

Gailsnail,

Good luck to both you and your husband! Please keep us posted on how he does with HDT and testing B-1!

Art

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For Doc. C. Videos (post on youtube) of your Pull Test, walking, talking, writing. Over four months thcl you will have reference points. join my facebook group:

"parkinson's thiamine hcl"

facebook.com/groups/2322600... …

Parkinson's Relief, Questions and Answers

[Gailsnail in reply to Hidden]

Hello RoyProp: Thank you for the information. I’m looking forward to going through it all with my husband.

[Coot18]

Gail

Any chance the dyskinesia could be caused by what seems to be a high dosage of pills?

Have your tried exercise, meditation, or cannabis?

[Gailsnail]

Hi Coot: Ido think it is from the high dose but if I cut back the symptoms are challenging. Meditation is helpful. I have to push myself to exercise, but I know it’s important. I tried vape pen CBD but I think I was too cautious and will try again and take a higher dose.

[akgirlsrock]

Lower your dose of cardopa/levadopa that's what's causing the Dyskinesia. I take 1 half cardopa/levadopa 3×day with entacopone and 1 Er at bedtime sometimes Lately I have to take another ER early am to get me through the rest of the night.