Hello: A close look to who I am. I am 4... - Cure Parkinson's

Cure Parkinson's

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Hello

procaffeinator profile image
36 Replies

A close look to who I am. I am 40 years of age. I saw four neurologist until I got my final diagnosis October 2017. I had been having Dystonia and gait problems since 2013. As soon as I began Carbidopa in October 2017, my symptoms completely went away. At 9 months of being on Carbidopa I thought of my long term use and didn’t want to have the terrible side effects that I’ve seen. I am now off of Carbidopa since August 2018. I supplement with:

barlowesherbalelixirs.com/m...

L-theanine 200 mg

L-tyrosine 500 mg

DL-Phenylalanine 500 mg

I would ultimately like to achieve the Constantine approach of only taking the Thiamine.

Before, I took one 25/100 mg tablet of Carbidopa twice a day. I stopped taking Carbidopa in August 2018. What I currently take as mentioned above, I feel extremely energetic and take one capsule of MP twice a day 5-6 hours apart.

I will try the Thiamine 500 mg tablets that I got from Amazon, when I get them this weekend. I’ll update on how it’s working. Although, does anyone know how long I should try the Thiamine alone for? I read an article here yesterday with direct questions and answers to Dr. Constantine but it didn’t state for how long to start the Thiamine without any other supplements to determine if it’s working. Someone please let me know if you know the answer.

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procaffeinator
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36 Replies
Farooqji profile image
Farooqji

Looks like an advertisement

procaffeinator profile image
procaffeinator in reply to Farooqji

Are you accusing me of lying about having Parkinson’s, because I included a link that a person can click on for reference? You’re so ignorant to assume that. People like myself want references and guides to look at directly to help cope with this terrible disease. You’re a jerk

Farooqji profile image
Farooqji in reply to procaffeinator

I apologize if I am wrong

procaffeinator profile image
procaffeinator in reply to Farooqji

You are wrong for your assumptions and I accept your apology. Good vibes coming from me to everyone

Lucal profile image
Lucal

I'm Italian, I will stay at the stereotype of my nationality , you look wonderful... Do not get angry , keep that smile on your face.

procaffeinator profile image
procaffeinator in reply to Lucal

Thank you. I love Italia and hope if and when I do leave this earth, I want my resting place to be Italia. I have three children and don’t think I’ll get a chance to go now to finally visit until they get older. Good to meet you Lucal. I am Jesenia

Nitro53 profile image
Nitro53

I think you should stay on the Sinemet. You look like you’re 30 at most. Good luck.🍀

procaffeinator profile image
procaffeinator in reply to Nitro53

Thank you. I am doing extremely well with the natural supplements. I would ultimately like to achieve the Constantine approach of only taking the Thiamine.

What I currently take as mentioned above, I feel extremely energetic and take the MP twice a day 5-6 hours apart.

Erniediaz1018 profile image
Erniediaz1018

Hi Jesenia, thanks for sharing, love the pic, glad you’re doing well on the natural supplements. I recommend you speak to Dr C. asap.

procaffeinator profile image
procaffeinator in reply to Erniediaz1018

Thank you Earnie. I plan on contacting him after I’ve done all that I can to help myself. I am the type of person that will try everything on my own, prior to asking anyone else for anything. That’s the way I’ve been all my life.

Gioc profile image
Gioc

The beauty is that you can ask him,DR. Costantini directly with an email and he will answer you in a short time. Gio

procaffeinator profile image
procaffeinator in reply to Gioc

I will. Thank you Gio ☺️

Gioc profile image
Gioc

Logically, the real data comes from the correct source, and who better than him can tell you that he is the "discoverer". :-)

procaffeinator profile image
procaffeinator in reply to Gioc

☺️😊 thank you

park_bear profile image
park_bear

Hi Jesenia. Pleased to make your acquaintance!

For most symptoms, improvements from high-dose thiamine start to become apparent after 3 to 4 months. So it is important to have patience.

The one problem that did resolve quickly was Parkinson's constipation after 1 to 2 weeks.

Do contact Doctor Costantini and let him help you.

Personally I started with 2 g twice a day. But Bears are larger than divine Angels such as yourself, so a bit lower dose might be appropriate.

procaffeinator profile image
procaffeinator in reply to park_bear

That made me smile. I will definitely get in touch with him soon. Thank you fluffy bear.

cshamb profile image
cshamb

What MC brand do you take and how much? U look wonderful I would keep doing what ur doing.

procaffeinator profile image
procaffeinator in reply to cshamb

Thank you. Here’s the link to the MP I bought.

barlowesherbalelixirs.com/m...

JohnPepper profile image
JohnPepper

I don't know if thiamine works because I don't have any reason to try it. I do fast walking and have done so since 1994. Since 2002 I have not had to take any form of medication, and fast walking has no side effects, other than better fitness. Why not try fast walking it really does work.

procaffeinator profile image
procaffeinator in reply to JohnPepper

What is fast walking?

JohnPepper profile image
JohnPepper in reply to procaffeinator

The easiest way to answer this question is to visit my website - reverseparkinsons.net and contact me. I will send you all my videos and several articles on the subject, which costs NOTHING! . I look forward to hearing from you.

Juliegrace profile image
Juliegrace

Dr. Costantini recommends B1 in conjunction with carbidopa/levodopa (Sinemet) for the best results. Do you take one capsule of the Barlow's at a time? How much c/l were you taking before you stopped?

procaffeinator profile image
procaffeinator in reply to Juliegrace

But I read in a post just yesterday that constatini recommends Thiamine without any other medication/supplements. I was taking one 25/100 mg tablet twice a day. I stopped August 23, 2018. The reason for stopping is because I didn’t want any of the long term side effects to ever affect me. Now I take one capsule twice a day of Barlow’s about 5-6 hours apart. Do you have any suggestions?

alaynedellow profile image
alaynedellow in reply to procaffeinator

Email Dr C he will advise you. He says siminet and Thiamine work together and taking thiamine reduces chances of siminet side effects. Read Thiamine page here updated with over 50 q&a's.

procaffeinator profile image
procaffeinator in reply to alaynedellow

Ok thank you. ☺️

in reply to procaffeinator

This link should answer almost any question you may have about the HDT protocol including what to get, what to expect, time lines and results that forum members have gotten with extensive details! :

healthunlocked.com/parkinso...

Good luck!

Art

Juliegrace profile image
Juliegrace in reply to procaffeinator

What alaynedellow said. Also, read the FAQ easilly (Art) has posted. It should answer all your questions.

andrehypnotic profile image
andrehypnotic

L-tyrosine 500mg nearly gave me a heart attack?

procaffeinator profile image
procaffeinator in reply to andrehypnotic

I am sorry. Are you feeling ok? I take one capsule of l-tyrosine twice a day.

andrehypnotic profile image
andrehypnotic in reply to procaffeinator

I am Ok now thanks,took one 500 mg capsule daily for a week only.xx

procaffeinator profile image
procaffeinator in reply to andrehypnotic

You’re welcome 😉

Kia17 profile image
Kia17

loyourmother

Welcome to this forum . As our dear friends suggested please get in touch with Dr Costantini. He is one of the few who really care about his patients. Feel free to share your concerns with us and ask any questions you might have.

Kia

theAfrican profile image
theAfrican

Just to be sure . You are taking MP extract 40 percent L dopa twice a day? What’s are the 3 items you mention?

Thank you

procaffeinator profile image
procaffeinator in reply to theAfrican

Yes, I take Macuna pruriens once at 6:30 AM and the last one at 12 PM.

theAfrican profile image
theAfrican in reply to procaffeinator

What’s are the 3 items you mentioned.?

procaffeinator profile image
procaffeinator in reply to theAfrican

You can google each

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