History Before Thiamine HCL - Parkinson's Movement

Parkinson's Movement

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History Before Thiamine HCL

RoyProp
RoyProp

Roy Propsner , October 2, 2015

Parkinson's report and prognosis:

I fast walk three miles (gentle hills in route) every other day. I have tremor dominant pd. I was dx three years ago. I take no medicines, herbs or dietary supplements... I have the traditional p symptoms with the exception of falling. My gait is somewhat affected by pd. I get around well, with only a hint of shuffling or instability. I recently started using an electric tooth brush. My right arm and hand is weak and my blessed wife has been cutting my meat into bite size portions. I do not know what beneficial effect walking has had but for now, it is my therapy. I am watching for the cure or treatment, especially ultra-sound surgery. Please keep me advised.

When first using an elect tooth brush, remove the clear protective brush cap. I did not. The elect brush made such a racket while I tried to brush my teeth (yes, I topped the 'brush' with paste) that I asked my wife to look at it. I thought I assembled it wrong. No, my wife did not laugh at me.

End Item

17 Replies

whens the next chapter?

RoyProp
RoyProp in reply to jujulini

Yesterday. Yesterday I moved my thiamine hcl dose to 8 a.m. and 2 p.m. Previously, 8 a.m. and 8 p.m. Formerly, 5 a.m. and 5 p.m.

These moves are/seem to improve my tremor.

I visited my primary Dr today @5pm she said you're doing very well I don't see any tremor 😁. I wanted to tell her yes B1, but I don't think she'd understand.

Hidden
Hidden in reply to Erniediaz1018

Congratulations Ernie!!!! That is incredible news! You are the 24th person on this forum to report tremor improvement from B-1!

Just curious if you are using just the bulk B-1 powder and no B-1 pills or capsules?

One other question, would you please copy and paste your post as a reply to your original post on the "who is taking thiamine" thread?

healthunlocked.com/parkinso...

Thank you for the update!

Art

Erniediaz1018
Erniediaz1018 in reply to Hidden

Bulk powder from nutrivita

Could i ask how muchch b1you take ?

2 grams in the morning and 2 grams about 3 pm

That is my dose also.

healthabc
healthabc in reply to RoyProp

do u take levodopa in any form?

RoyProp
RoyProp in reply to healthabc

C/L 50/200

healthabc
healthabc in reply to RoyProp

I have sent dr c video's- dr c has told me i must start sinemet 25/100 along with B1 because they work synerggistically. does that sound accurate to u? I ask u because, like u, i am tremor dominant, diagnosed 3 yrs ago at 48 yo. i am concerned about developing dydkinesia ...

RoyProp
RoyProp in reply to healthabc

Sounds right to my understanding. Including no dyskinesia. Regardless, you have little choice.

AmyLindy
AmyLindy in reply to healthabc

Dr C also recommended I take Sinemet. I have to see my neurologist for a change from Selegiline ; not sure she will want to switch gears.

Haaaa!

😁

What's your date of birth?

Read John Pepper’s book. “Reverse Parkinson’s Disease”! You are doing the right thing by your walking. I keep this book next to my bed on my nightstand to refer to and keep me inspired. John Pepper is MY HERO! 👍❤️