History Before Thiamine HCL - Parkinson's Movement

Parkinson's Movement

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History Before Thiamine HCL


Roy Propsner , October 2, 2015

Parkinson's report and prognosis:

I fast walk three miles (gentle hills in route) every other day. I have tremor dominant pd. I was dx three years ago. I take no medicines, herbs or dietary supplements... I have the traditional p symptoms with the exception of falling. My gait is somewhat affected by pd. I get around well, with only a hint of shuffling or instability. I recently started using an electric tooth brush. My right arm and hand is weak and my blessed wife has been cutting my meat into bite size portions. I do not know what beneficial effect walking has had but for now, it is my therapy. I am watching for the cure or treatment, especially ultra-sound surgery. Please keep me advised.

When first using an elect tooth brush, remove the clear protective brush cap. I did not. The elect brush made such a racket while I tried to brush my teeth (yes, I topped the 'brush' with paste) that I asked my wife to look at it. I thought I assembled it wrong. No, my wife did not laugh at me.

End Item

17 Replies

whens the next chapter?

RoyProp in reply to jujulini

Yesterday. Yesterday I moved my thiamine hcl dose to 8 a.m. and 2 p.m. Previously, 8 a.m. and 8 p.m. Formerly, 5 a.m. and 5 p.m.

These moves are/seem to improve my tremor.

I visited my primary Dr today @5pm she said you're doing very well I don't see any tremor 😁. I wanted to tell her yes B1, but I don't think she'd understand.

Hidden in reply to Erniediaz1018

Congratulations Ernie!!!! That is incredible news! You are the 24th person on this forum to report tremor improvement from B-1!

Just curious if you are using just the bulk B-1 powder and no B-1 pills or capsules?

One other question, would you please copy and paste your post as a reply to your original post on the "who is taking thiamine" thread?


Thank you for the update!


Erniediaz1018 in reply to Hidden

Bulk powder from nutrivita

Could i ask how muchch b1you take ?

2 grams in the morning and 2 grams about 3 pm

That is my dose also.

healthabc in reply to RoyProp

do u take levodopa in any form?

RoyProp in reply to healthabc

C/L 50/200

healthabc in reply to RoyProp

I have sent dr c video's- dr c has told me i must start sinemet 25/100 along with B1 because they work synerggistically. does that sound accurate to u? I ask u because, like u, i am tremor dominant, diagnosed 3 yrs ago at 48 yo. i am concerned about developing dydkinesia ...

RoyProp in reply to healthabc

Sounds right to my understanding. Including no dyskinesia. Regardless, you have little choice.

AmyLindy in reply to healthabc

Dr C also recommended I take Sinemet. I have to see my neurologist for a change from Selegiline ; not sure she will want to switch gears.



What's your date of birth?

Read John Pepper’s book. “Reverse Parkinson’s Disease”! You are doing the right thing by your walking. I keep this book next to my bed on my nightstand to refer to and keep me inspired. John Pepper is MY HERO! 👍❤️