I have been on thiamine for just over three months ( 7x300mg tablets a day, i e 2.1g). We sent the third lot of videos ( of walking, talking and the pull test) to Dr Costantini. I knew I was better and I could see from the videos that things were improving. I have had much more energy and, more importantly, my depression has gone off. I told him that. BUT my tremor is worse and my handwriting is still degenerating ( not too bad however) so I thought maybe he would change the dose.
He replied straight away. He said he was pleased with the progress and said I should continue as before but after a month I should stop for a week before taking it up again.
He asked me to send a list of the medicines I am taking. I did that and again I had an immediate response. I was taking half 25/100 carbilev three times a day and he said that was too little. He said take a whole tablet in the morning and another at lunch. I have emailed again to ask if that is all I should take.
When I think of the abrupt, compassionless neuros I have seen and the despairing diagnosis they all gave ( not one even mentioned things you could do like diet or exercise) I am more grateful than ever for these wonderful doctors. They don't charge and they answer a query within hours. I had to wait days before my original neuro phoned back.
We are so lucky to have found them!