I live in the UK and so am blessed to be under the care of a Parkinson's Disease Nurse. She has suggested I take dispersible Madopar 62.5mgs on an ad hoc basis, maximum of one dose per day. I wondered if anybody on this site had experience of this.
TIA
Jim
hi bob im not sure about what your taking it sounds very weird to me let me put it this way you should be taking 1 tablet 3 times a day of 200/50,,,,1 tablet of 100/25 3 times a day if needed, plus you can get neupro patch there are different strenght patches..you shouls start with the 4 mg one.they last 24 hours.hope this helps you.
MyBeloved had severe reaction to 4mg of both rivastigmine and rotigotine. I asked consultant permission (agreement) to go up 1mg at a time. This is working well. PD nurse hadnt come across this before, methinks and wasn't keen. So, Keep in mind who matters and proceed with all the help you can get. Information is key.
Hi, I’m guessing you’re in the early stages and just beginning to take medication?
Normal procedure seems to be to start with 1g per day of rasagiline - an MAO-B inhibitor which stops the body breaking down the dopamine that you produce naturally - this, for me anyway made little noticeable difference. I continue taking it because my consultant thinks there is some evidence it may slow progression.
Then as symptoms worsen you get moved on to dopamine in the form of Madopar.
They normally recommend starting with a small non-therapeutic dose and building up to a therapeutic dose over several weeks.
I think that’s normally 3x 125 tablets pd. the tablets are 100mg dopamine and .25 the other bit (I forget... but it’s co-beneldopa on the jar!)
As the disease progresses that’ll get increased.
I typically try and get by on just two doses pd if I can.
I don’t know if any of this helps - I know nothing about dispersible forms...
We are in UK too and have two marvellous new PD nurses who have put my husband on a completely new drugs regime after 24 years of the illness.
Like Marco mando says an MAO-B inhibitor is essential. Has been for my husband at least. In his case Selegiline which was the new thing 25 years ago. He tried going without it for a while but soon started taking it again. Then last week the PD nurses suggested that he should reduce his meds and take one Half Sinemet CR 125 mg and a Sinemet 10/100mg together with a view to this lasting for 4 hours repeating this as the day goes on. IF NEEDED....take half a Madopar to give a bit of a boost if the meds feel to be waring off. He is still experimenting but is having a degree of success and in 3 days has only taken equivalent to one Madopar. He has used it to kick start him in the past for a lot of years. So far he is down by at least four of his meds a day and feels much better.
I must point out that my husband has had Deep Brain Stimulation and it is his nurses for this who have been so supportive. They have given him so many useful suggestions, all have worked. We feel blessed to have them. The nurses are the most knowledgeable.
Madopar is called Prolopa in Canada. I am on 200/50 three times a day with good relief of symptoms and no side effects. I have to hope it remains effective for a long time.
I should warn you, that on this web site there is a strong anti-doctor, anti-pharma, and anti-science element, and lots of unproven anecdotal promotion of unusual treatments.
I was told to take my madapor at regular times each day, but maybe the dispensable form is different. I have never been offered it. Are you taking anything else?
I take the Prolopa t 6.00 am, 11.00 am.. 4.00pm and sometimes at 9.00pm
I take nothing else, no supplements, no fits., nothing . I was diagnosed two years ago, and have been on meds for one year. Sinemet did not suit me.
That should have been “No vits.”
What happens if you alternate Kinson (ie sinemet) with madopar?
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