Any good news on sinemet

[jimmydook]

Recently dgnsd wondering wot the future holds; seem to read lots of negativity regarding ldopa meds: ;has anyone got any positive storys;as its our main med thanks

[MBAnderson]

Most PWP take Sinemet, feel it is essential and are well served by it. For me, the decision when I was diagnosed was, do I want to start it now or wait until the symptoms interfere with the quality of my life and try other things in the meantime.

[Enidah]

I started taking it over 5 years ago as soon as I was diagnosed. I'd already had debilitating symptoms at that point for at least 2 years. It has been a lifesaver. I have no complaints, just grateful to have it.

[kolsen133]

I have been on sinemet for 4months and my symptoms have gone. Smell is not great though.

Balance freezing shaking hand writing etc have improved markedly.

[Rosabellazita in reply to kolsen133]

Tremor?

[kolsen133 in reply to Rosabellazita]

Yes that was the shaking

[jeeves19]

Rule of thumb is try to stay below 600 mg per day and you should be able to avoid dyskinesia. B1 offsets this aspect as well.

[Juliegrace in reply to jeeves19]

Not to sound confrontational, but where did this rule of thumb come from?

[jeeves19 in reply to Juliegrace]

I’ve heard it from several sources, some anecdotal some clinicians. But I’m sure that there are exceptions to every ‘rule’!

[Hidden]

I have been taking Sinemet since first diagnosed in 2013, and have had no problems with it. In the beginning, I was not taking it properly, but when I started taking it about one hour before meals, it worked like a magic wand. I have been using the controlled release form for a few years now, Sinemet CR 200/50 and it can be taken at any time, and most of the time, it controls my tremor. If I am stressed for some reason, my tremor returns. For my non-tremor or non-motor symptoms, I concentrate on feeding my gut bacteria with bee pollen, plain yoghurt, kefir, frozen blueberries, cinnamon, curcumin and olive leaf extract.

I have no complaints about Sinemet.

[gingerj]

I held off taking it for nearly two years. I've been taking it for a few months now and wish I'd started sooner.

[jimmydook in reply to gingerj]

I was trying to do without it;but think i wiĺl trry it thanks

[gingerj in reply to jimmydook]

Great. I started on 62.5mg tablet twice a day for first couple of weeks. That wasn't enough for me. Then moved up to 125mg twice a day since. At first I wasn't sure but everyone else said how well I was, almost my old self. I noticed that I felt better. More positive, more energy, Less tremor. I can tell when it's wearing off. However I'd say that I feel better all day than I did before I started on it. I've not had any negative side effects. At some point I will probably move up to 3 tablets a day. Hope it works for you too.

[hercules957]

I waited one yr after diagnosis before starting medication. It was not a good idea to wait. Sinemet relieves all my PD symptoms including tremors. I do have minor dyskinesia though. Finding the exact dosage for each patient is the challenging part.

[KLDA]

Tremor has not stopped, but it is reduced. I was told by the movement specialist I see that Carbo/Levo doesn't totally eliminate this symptom. What I'm thankful for is that I have more energy. I was also feeling anxious and depressed, and this symptom has been reduced.

[jimmydook in reply to KLDA]

Gives me hope thanks

[kommandokate]

Been on Sinemet since DX 5/2014. Added Comtan around year 3 with it to lessen "off times" when weakness and shuffling and fear of falling occurred

Began with 3x a day dose; now up to 5x a day. Most folks are surprised when I tell them I have Parky. Have other minor issues-such a diverse disease. Heard it called the "designer disease" as we seem to have varied issues. Warmest regards to you!

[jimmydook in reply to kommandokate]

Thanks

[jimmydook in reply to jimmydook]

Thanks