Any good news on sinemet
Recently dgnsd wondering wot the future holds; seem to read lots of negativity regarding ldopa meds: ;has anyone got any positive storys;as its our main med thanks
Most PWP take Sinemet, feel it is essential and are well served by it. For me, the decision when I was diagnosed was, do I want to start it now or wait until the symptoms interfere with the quality of my life and try other things in the meantime.
I started taking it over 5 years ago as soon as I was diagnosed. I'd already had debilitating symptoms at that point for at least 2 years. It has been a lifesaver. I have no complaints, just grateful to have it.
I have been on sinemet for 4months and my symptoms have gone. Smell is not great though.
Balance freezing shaking hand writing etc have improved markedly.
Yes that was the shaking
Rule of thumb is try to stay below 600 mg per day and you should be able to avoid dyskinesia. B1 offsets this aspect as well.
Not to sound confrontational, but where did this rule of thumb come from?
I’ve heard it from several sources, some anecdotal some clinicians. But I’m sure that there are exceptions to every ‘rule’!
I have been taking Sinemet since first diagnosed in 2013, and have had no problems with it. In the beginning, I was not taking it properly, but when I started taking it about one hour before meals, it worked like a magic wand. I have been using the controlled release form for a few years now, Sinemet CR 200/50 and it can be taken at any time, and most of the time, it controls my tremor. If I am stressed for some reason, my tremor returns. For my non-tremor or non-motor symptoms, I concentrate on feeding my gut bacteria with bee pollen, plain yoghurt, kefir, frozen blueberries, cinnamon, curcumin and olive leaf extract.
I have no complaints about Sinemet.
I held off taking it for nearly two years. I've been taking it for a few months now and wish I'd started sooner.
I was trying to do without it;but think i wiĺl trry it thanks
Great. I started on 62.5mg tablet twice a day for first couple of weeks. That wasn't enough for me. Then moved up to 125mg twice a day since. At first I wasn't sure but everyone else said how well I was, almost my old self. I noticed that I felt better. More positive, more energy, Less tremor. I can tell when it's wearing off. However I'd say that I feel better all day than I did before I started on it. I've not had any negative side effects. At some point I will probably move up to 3 tablets a day. Hope it works for you too.
I waited one yr after diagnosis before starting medication. It was not a good idea to wait. Sinemet relieves all my PD symptoms including tremors. I do have minor dyskinesia though. Finding the exact dosage for each patient is the challenging part.
Tremor has not stopped, but it is reduced. I was told by the movement specialist I see that Carbo/Levo doesn't totally eliminate this symptom. What I'm thankful for is that I have more energy. I was also feeling anxious and depressed, and this symptom has been reduced.
Gives me hope thanks
Been on Sinemet since DX 5/2014. Added Comtan around year 3 with it to lessen "off times" when weakness and shuffling and fear of falling occurred
Began with 3x a day dose; now up to 5x a day. Most folks are surprised when I tell them I have Parky. Have other minor issues-such a diverse disease. Heard it called the "designer disease" as we seem to have varied issues. Warmest regards to you!
on a low dose for a short time if they stop the med will the dyskinesia go away
this could be good news for those of us that take our med every few hours. blog.michaeljfox.or...
Is anyone taking sinemet and ropinirole together? And is it alleviating tremors. I have tremors on my...
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