This looks like and smells like a ad to sell THIAMINE or to promote DOCTOR COSTANTINI.
Does anyone find it strange that 10 of p... - Cure Parkinson's
Does anyone find it strange that 10 of people here that are posting about DOCTOR COSTANTINI have joined this forum in the last two months.
Written by
Bailey_Texas
To view profiles and participate in discussions please or .
Read more about...
52 Replies
•
Well, there is no money in peddling thiamine and the Doc is generous with time and advice so I think there is nothing wrong. Just people who are trying to help.
The doctor is not a member. I must be strange as I was one of first to write.
Dr. Constantini is a fraud. He has no studies that back up his claim. If he was legit he would have done a double blind study. People here are just so desperate to find something that will help or cure them they don't stop to think. Thiamine in large doses will make feel better if you are deficient in thiamine. But if you are not ii will have very little if any effect on you. Any thiamine you do not need is flushed out in your pee.
If you don't know what a placebo effect is please find out. It can last for a couple of years.
Don’t take it then Bailey
in reply to Bailey_Texas
Have you studied the placebo effect scientifically? Have you published peer reviewed papers on placebos?
Shame on you for badmouthing Dr Costantini. He has given all of us a tremendous gift. You ought to try it yourself.
go away
Been here 4 years ain't going nowhere.
Should
You may have your doubts and suspicions on the effects of thiamine, but to boldly use the word fraud on Dr Costantini... calling him a fraud without any solid evidence, is a big call indeed
I have been here since before thiamine and Doctor Costantini. After three months of use I have noticed an improvement to my gait - I no longer stagger around the house like a hemiplegic. Pretty clever placebo effect to operate with a three-month delay.
ncbi.nlm.nih.gov/pmc/articl...
Please read this
"In conclusion, we found that the long-term treatment with the intramuscular administration of thiamine has led to a significant improvement of motor and non-motor symptoms of the patients with PD; this improvement was stable during time and without side effects. Our report represents an important contribution to PD therapy, although further experience is necessary to exclude the placebo effect and to confirm the present observation, with clinical, cellular, and molecular data. The aim of the future studies will be to investigate the clinical, restorative, and neuroprotective effects of the long-term treatment with thiamine in PD.
"
Yes, this is an uncontrolled study, and as such does not exclude the placebo effect. However, you are taking this to the unwarranted conclusion that the favorable results must be placebo effect.
never said that read again
You said this: "If you don't know what a placebo effect is please find out." Do you mean to deny this asserts the improvements reported for thiamine are due to placebo effect?
As to what point you are trying to make with the above quotation, you are going to have to explain it. I am done guessing.
The fact that Dr Constatini acknowledges that further studies are necessary to, among other things, exclude the placebo effect in no way contradicts or invalidates his initial conclusion that thiamine is useful in treating symptoms of PD.
I don’t know what method of divination you use to claim otherwise.
Hey, I would gladly go for a placebo effect of thiamine 
👎. It works no matter how you feel about it.
It has worked wonders for me over 5 weeks. I will contact him again next week for update as planned. He has refused my offer of payment. I suggest you write to him with your complaint. Double blind studies take years and cost millions. He offers his services now and for free. People can benefit now. What else ?
Please take the thiamine i hope it works for you. A double blind study would not be expensive or take years. It is very easy to do. You hire person or a company that is beyond reproach. They supply with the placebo and thiamine. They know which is which. You know who you give what.
Meds are marked 1 to 500. You give the meds to 500 people and write down who got what. Then after the people have taken the meds for a month you ask them what improvements if any they have and write it down. Are just have them write down each day how they feel oon a scale of 1 to 20. You would only need 2 people.
ROTFLMAO......Better check the side effects on your meds to see which one is causing delusions.
in reply to danfitz
ditto
Go to my profile. Regarding B1, thiamin HCI, read my posts and replies. Click Follow. Learn of my experience over the last year. Discover my wellness as direct result of first choosing hi dose allithiamine then later thiamin HCI.
I have faith and a testimony that from here and the future I am going to be OK. Thanks to Doc Costantini who receives no monetary reward nor requires anything of me other than his happiness for my Parkinson progression stopped, symptoms under control.
Whomever is dissuaded from this treatment will only have the ravages and progression of Parkinson's the remainder of their life.
I wish you will share faith.
What you describe could be done as an informal sort of study. However, to satisfy people like yourself a study would have to be published in a peer-reviewed medical journal. To get that sort of study published would require properly credentialed people to run the trial. Properly credentialed people are expensive and find all sorts of expensive things to do to make the trial happen. By the time you get that kind of trial run you end up spending a lot of money.
Before I started the thiamine I did a blood test and the level was ok. A week after starting taking the thiamine I felt improvement especially in my mental and physical energy. So your claim it is helping only people low in B1 is false. Possible to be some side effects in long term as thiamine helps cancerous cells but it sure helps for PD.
I find your post offensive. When I was at school the nuns taught us that there is only one sin that can never be forgiven, that was to denigrate something that is essentially good, the sin against the Holy Ghost. I am not a Christian but if I was I would say yo
Dr Costantini is giving us endless care and attention absolutely free of charge. He gives us hope, really for the first time. When someone suggested that he patent his idea he said "I don'
When I was a Year Head in a secondary school,I used to say to the students who were arguing and bad mouthing each other , if you cannot say something nice , don’t say anything at all and keep away from each other . Everyone is entitled to their opinion, but think carefully who you might hurt if you express that opinion and especially if you say derogatory things about/to a person. Perhaps advice you should take? When I see posts like this I immediately think the person must be having a bad day and I feel sorry for them .
Not long time ago the same person was bitching everyone who dared to criticize a doctor. Hypocrisy or double standard. Still I'm for the freedom of expression and I think everyone should have the right to express his/her opinion regarding any doctor, politician etc. This post is actually helping dr. Constantini.
What i posted
Bashing Doctors in this forum should not be done. If a doctor does not live up to your expectations then by all means tell us about it. But please do no bash all doctors.
All people ,including you, should have the right to bash all doctors including dr. Constantini who you call a fraud. For me the Thiamine works. It may have side effects in the long run? Maybe! But for now works and I never touched C/L or other PD medication ,yet. It is true he is trying his idea on us but he does not force it on us. For example he recommended me to add acid folic to thiamine but that gave me trouble. I stopped it and continued only with Thiamine which helps a lot my brain to do my job like a computer programmer; last year I was struggling.
Hello ion.ion
Use the thiamine if it works for you. I would never suggest or ever tell some one not to use anything. People here in the past posted about the use of meds for the only reason to promote the sale of them.
I do not know why you have not tried C/L but i wish you would. My DR did not give me C/L until my 8th year. it turned my life around.
Good luck
Thank you for advise. I was diagnosed last year but I felt it for at least 3 years. One day I may start C/L but for now I'm ok without it and only thiamine.
Long live the freedom of expression!
Please relax your world did not come to a end because I wrote something about
DR. Costantini. His theory about thiamine is just that a theory. There was a time and not that long ago when doctors would bleed people to help them. A lot of people died due to this practice and if no one had not said they thought it was bad we would still do it. To blindly subject our bodies to unproven meds is foolish. Yes i will call him a fraud if it makes you stop and think about what you are doing and take a step back then i will do it again.
A large dose of B1 over time without other b vitamins can harm you. So read what they gave to the people in the study. They also gave them along with B1 a large range of b vitamins.
I did not attack anyone in my post i just ask a question. If you read his paper you will see that most of the people were also on Carbadopa Levadopa or other pd meds.
Have a good life
Hi, Bailey! You kind of poked the hornet's nest, but I understand and appreciate your skepticism. For the record, I am one of the new people on this site and I am one of the people taking thiamine. I hope you believe me when I say I'm just a small town guy from Wisconsin with absolutely no knowledge of Dr. Costantini until I joined this site. I was just diagnosed three weeks ago. Dr. Costantini replied to my email within a day. I did not pay him a dime. I bought 3 jars of thiamine through Amazon for something like $35. I've only been on thiamine for a week and there's no doubt that I HOPE for good results. We all do and the cost/benefit analysis seemed like a no brainer to me. That said, there is a role for skeptics and I appreciate your courage in speaking out. I think people replied harshly because you implied that some of us were "shills" for Doctor Costantini an/or that he is a con man. I believe both of those insinuations are completely false. However, this site needs free and open debate and I welcome your contributions. I'll keep you posted as to how B1 works for me, but there are others who have been taking it for a long time (RoyProp and GioCas and Kia17, among others) who swear by it. I have no reason to doubt them. I hope you won't doubt me either. We are all in this together. Peace.
You misunderstand the definition of the word ‘theory’. When you say something is just a theory you are implying it is speculative in nature. That may be an accurate definition when you are speculating about who overturned your outhouse. Like it was probably those kids you chased off your lawn last week with no other evidence to support your speculation. In everyday use “theory” essentially means a good guess.
But in science the word has a different connotation. A scientific (read medical) theory is one where the theory produces consistent reproducible results when applied. The theory must always produce the same result when tested. If the theory fails any test (assuming a valid test) it is tossed aside or modified. The theory exists to explain a phenomenon or group of facts until it cannot.
The progression from uncontrolled studied to controlled studies is a typical path for the development of medical treatment. So your claim “it is just a theory” actually means that it currently explains the phenomenon insofar as it produces reliable consistent results every time.
You noted that the subjects in the study continued their existing pharmacological therapy but then do not say anything at all about what this fact means. Are you trying to claim that thiamine potentiates existing therapy?
You also claim that other B vitamins were included along with thiamine. I don’t see that in the study. The study did say that the authors found no adverse effects to high dosage of thiamine in the literature. I suspect you are confused on this. Can you quote the study to support your claim?
You assert “I did not attack anyone in my post I just ask a question”. Sir, you called a good and generous man a fraud without any evidence whatsoever. I call that the action of a dishonorable man.
ultimaedizione.eu/2015/03/2...
blog.parkinsonsrecovery.com...
There are several studies Dr Costantini has done. In one they gave other B vitamins and in others they do not some say people took other meds.
What i posted did what i wanted it made every one to think about what they are doing.
Bailey, I’m likely one of the 10 on your list. I found this site 12 weeks ago and RoyProp, Park bear and Kia. Having no fear I began the Thiamine right away and have experienced excellent results over the past 8/9 weeks .
Perhaps you are being unfair to those who didn’t post until they had results to report.
Be careful Bailey fear is debilitating.
This declaration is overly inflammatory (Bailey, you are an interesting person in how and what you share. I always enjoy your perspective) — but if it is truly a caution, it is sensible.
Given the experience of this crowd, I believe the thiamine works. As Roy has mentioned, he tried many other things without much effect. Thiamine appears to make a difference. He’s not the only one, and the forum is vibrating with talk of thiamine. It’s very exciting.
Isn’t it kind of like early days of levodopa? Levodopa is amazing for making us feel better — but there may be serious side effects (or these side effects are just the disease progression). It typically takes at least 5 years to experience these side effects. And while thiamine is a very different mechanism, I am simply highlighting that side effects sometime take 5-10-15 years to develop.
I’m 42. Is high dose thiamine safe for 20 years?
So, I look forward to hearing what happens to Dr. C’s patients in years 5-10. Dr. C has, so far, been honest about limitations and side effects.
in reply to GinnyBerry
I have completed year one very satisfied. Stopped the progression and suppressed the symptoms.
Bailey_Texas in reply to
What do you base your statement on that you stopped the progression.
Thiamine was the one supplement that my British neurologist was happy for me to take. She explained that high doses of B1 was already an accepted, used and successful treatment for recovering alcoholics.
It does not help them to manage their alcoholism. They take it because they have poor eating habits and that leads to thiamine deficiency.
If you are taking or you plan to start taking Thiamine
Do your research. One form of B! will damage your liver and kidneys. I believe it is the synthetic version.
Take with a open mind so it will not have a placebo effect.
Kindess and compassion describe Dr. Costantini with a huge sense of wanting to help others. May we all strive to be more like this generous man.
I joined recently because I heard Dr C being interviewed on a podcast, then (as I'm sure you would've) I searched the internet for more info. This site was one of the very few that popped up. I hadn't heard of it before, it looked interesting, so I joined. After joining I found a ton of helpful information, including contact info for Dr C and advice on how to send him my info and ask for his help. He got right back to me and he's helping me to find the best dose. The jury's still out because he's still adjusting my dose, but we'll see.
As far as I can see there's no conspiracy. Nobody paid me to do any of this, of course. You can believe me or not. But if you think that ten people joining an internet forum over 2 months is a big conspiracy, you're just being silly.
I think what's happening is that Dr C is trying to help as many people (for free mind you) as he can. He's probably also trying to raise his profile so that others take his protocol seriously enough to do a solid study.
Not what you're looking for?
You may also like...
Latest symptom, stinging eyes
Last night hubby had stinging eyes. He feels like there are chemicals in them. I wondered if it was...
Best Books for Treating or Curing PD
I'd like to purchase some books on how to deal with PD, and I was would appreciate some opinions....
Best Walker Tall person
Has anyone purchased a walker that they really like? 2 wheels vs 4? Seat? Hubby is 6’3”.
thank you!
What is TTFD (thiamine tetrahydrofurfuryl disulfide)
What is TTFD (thiamine tetrahydrofurfuryl disulfide) and is it ethically (actually/likely is what...
Which brand of Thiamine HCL?
would like to try thiamine HCL therapy for Parkinson's. Can anyone recommend a brand of thiamine...
What are your thoughts on Trehalose for PD?
Experiences of return from Rytary to generic CR or IR
CITICOLINE - A Nice Blog
Kiran krishnan microbiome products
