PD and Hip Replacement: I have PD 6 years... - Cure Parkinson's

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PD and Hip Replacement

Janet22 profile image
8 Replies

I have PD 6 years (I'm 50), and now have Osteo Arthritis and need a hip replacement. Have dystonia in hip. Any advice/experience of this?

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Janet22 profile image
Janet22
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8 Replies
Hikoi profile image
Hikoi

Never come across dystonia of the hip Janet, can you describe it? Do the medicines ( eg sinemet) relieve the pain?

Janet22 profile image
Janet22 in reply to Hikoi

I have spoken to the dystonia society and they haven't either! I def get dystonia in my feet, they claw and twist and had assumed my hip was the same. The area goes into a sort of muscle spasm and I the leg can go rigid

Giannababy profile image
Giannababy in reply to Janet22

Hi Janet, just an anecdotal story to throw into the mix. I had left hip replaced about nine years ago. After physical therapy I recovered nicely for a 64 year old male. But then about 3 years on I began to get numbness, weakness and muscle spasms in left thigh, sometimes causing my left leg to collapse under me. I saw a neuro and then a neurosurgeon. He identified a problem at L4/5 and performed a quick laminectomy as well as adding a clip to stabilize the area. For the most part, that feeling you question as dystonia went away. Just for info, two years ago I was dx’d with PD and do have dystonia in my calves, so I can identify with your feelings. For what it’s worth it might be wise to scan your back before undergoing a hip replacement!

Hikoi profile image
Hikoi in reply to Janet22

Hi Janet,

That is interesting. Just some thoughts. If this pain is a dystonic pain then that is muscle pain rather than joint pain. I would have thought replacing the joint would not solve it. That was why I asked if you got relief with sinemet..

felixned profile image
felixned

i suffered from osteoarthritis of the hip for 2 years before my neurologist recommended to see surgeon. I had hip replacement and had 4 weeks of special physical therapy to address recovery while suffering from PD. The surgery improved my quality of life very noticeably.

Janet22 profile image
Janet22 in reply to felixned

Thank you thats good to know. Did you go back to excercise afterwards

anynonymouse profile image
anynonymouse in reply to Janet22

Did you have the surgery? Was it successful if you did?

felixned profile image
felixned

Yes, I continued PT in outpatient facility for another4 weeks.

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