I finally got to email Dr Costantini on Sunday afternoon and he replied within two hours! If only we had some way to thank this wonderful man!
My only problem is that I have always taken a number of supplements which I wrote out for him. He said to stop all supplements but to continue with Carbilev and other (not Parkinsons) meds. However on the list were calcium, vitamin k, magnesium and vitamin d which were prescribed by my rheumatologist (I have osteopaenic bones with compression fractures in my lower back - among other things). So that worries me a bit.
My question to you all is : do you think I ought to go back to him about that? I really don't want to be asking more of his time if it is unnecessary.
And also I would like to post a full account of where I am now ( not very far in). Should I do that in a post like this, or on my profile or on the other thread which I remember someone suggested? When I go back to him in a month's time it will be a good reference.
I am not good at navigating the site so if anyone gives me directions please remember that I am a kind of computer idiot.