Laying down in bed is a torture

[Enreyes52]

Since few month I've been strangely suffering when laying down in bed, turns painful, no energy at all as soon as I touch the bed, my whole body gets frozen. Suffering from strange nightmares and getting at night twisted positions that next day my body is awfully bad. Is this a symptom of Parkinson? Im scare to go to be and have no family for support.

[lempa_nik]

Enreyes52,

What signals to your body that you are lying in bed? Possibly the position of your head & neck. Having head propped up on pillow may stretch or compress the spine slightly, exert stress on the brain stem, and intensify your symptoms. If this is the case, your symptoms may moderate when you remove the pillow and lie flat on your back. Or you can try different postures in bed, for example, lying on one side, and check the results. Just an idea.

[katz2017]

Do you have any tremors? Perhaps you should see a Dr about this.

[Enreyes52 in reply to katz2017]

Long last heavy tremors right arm always the worst. Never seen a PD patient with such tremors! Sometimes over 10 hrs with L-dopa in my system! Been with PD for 15 yrs, 65 yrs.

[Bea6]

Hi I have exactly the same thing and have tried many different pillows etc but still dread nighttime. I’m on slow realease sinemet at night but still having problems have pd consultant on 1st June will let you know what he says.

Kindest regards

Bea

[heidle]

My mother has the exact same problem so I would be interested to hear of any possible solution. she was meant to go to her neurologist this week but was too weak to attend.

[Hikoi]

Yes Enreyes this is Parkinsons problems.

In PD your muscles are not working properly. This makes it had to move in bed. Very hard to turn over. I like having 2 pillows.

In PD some people have strange dreams and can hurt themselves because they act their dreams in their sleep.

Do you see a doctor.? Are you taking medicine?

For pain you can take some pain medicine like paracetamol

[lightning]

I get same problems and have become reluctant to go to bed because I spend the night struggling for comfort in order to sleep. I find that kicking back the duvet before changing position helps.

[Mjm012649 in reply to lightning]

My husband kind of dreads bedtime for the same reasons. Ugh.

[glenandgerry in reply to lightning]

My husband has the same problems at night and does the same as you i.e. he also kicks back the duvet before changing position.😊

[aspergerian]

I take Sinemet Cr 50/200 along with 1/2 25/100 every 4 hours (2,6,10,2,6,10). If my 10 pm dose is late, I can't turn over properly, or at all.

[Marg52]

Hello Enereye52, yes these are Parkinson’s my husband is like that, he has bad very vivid dreams yelling. He has PSP you should definitely see your doctor they can help you with medicine. God bless you have support here.

Marge

[SELFMeder]

In order to raise the probability of getting to sleep, I take a mild anxiety tablet (Hydroxyzine HCL, 50 mg) and a Melatonin tablet (50mg) about an hour before bedtime. I prop up my head on two pillows. I set the room temp to 73F and cover myself with only a starched sheet. And I stay up until I start dosing off in a large cool leather reclining chair. I sleep naked in the bed to reduce resistance when I need to turn.

Three more hints:

1. I do better on days afrer full exercising (ie, fast walking, rowing, and resistance training) followed by hot tub.

2. When we travel, my wife and I sleep in separate queen-size beds. Std in most US hotels.

3. I keep on my night table a small vile of sweet pickle juice to staunch the beginnings of a muscle spasm. (I am told that a small packet of mustard gets the job done as well.)

I still am avoiding the use of the std PD prescription pills. (Started having multiple PD symptoms about 6 yrs ago. Had the definitive PD dx with a DATScan 2 yrs ago.) I am 74.

Hope this helps..

[vronk]

Try taking a warm bath with epsom salts before you go to bed at night and when you wake up in the morning. It helps me a lot. it seems to even out my body temperature

[HeartSong]

Here's what I do to be relaxed and comfortable in bed. I hopes some of it may help you. First, about 30 minutes before I go to bed, I make a cup of lemon balm tea and sip it slowly. It's a mild relaxant. (I tried prescription muscle relaxers, but they were too much for me - made me dizzy.) (Lemon balm is an herb that has been used for centuries and is relatively safe. The only unwanted side effect that I can remember is that some think it may increase the pressure in the eyes for some people. If you decide to try it or any other herb, always Google it and read up on it yourself.) Second, I take a magnesium supplement which helps greatly with relaxation. I also rub on a topical magnesium gel just before bed. The kind I use is Health and Wisdom Inc. Magnesium Gel that i get from either Vitacost.com or Amazon.com. I put just a little on the back of my neck, my lower back, the tops of my feet, and around my ankles. Third, I make sure that I go to bed a few minutes after I take the levodopa. If the medication is almost fully on at the time I go to sleep, I'm much more relaxed for the duration of my sleep. Fourth, I sleep mostly on either side and with several pillows. I use one pillow between my knees to keep my knees in alignment with my hips. Another pillow with a small supportive neck roll goes under my head. One pillow goes at my back so I don't have to tighten any muscles to keep my hips from twisting away from my back. The fourth pillow I hug in front of me and rest my top arm on it so there won't be any pressure on my shoulder. I hope your can find some sweet rest for yourself.

[justjohn46]

hello eneyes well i can tell you i have big problems i have both parkinsons and somatic nerve pain as well i only hope you dont have that so it might be a good thing if you go see a doctor and get your self checked for that regards john.