New member here

[marychirtle]

Hi everyone. I'm a 67 year old woman who was diagnosed six months ago. I've had symptoms for years, but I kept ignoring them, hoping they'd go away. They didn't. They got worse. I'm a veteran, and I went to my VA clinic for another matter, and I kept falling off the scale.... my doctor did some tests... sent me to a neurologist... and here we are...... my symptoms are progressing rather rapidly, and I am not allowed to drive anymore, and I can't use a cane.. it has to be a walker now. I go to physical therapy twice a week, and it's helping build up some strength in my legs and arms. Most of the time I can accept it...and be grateful that it wasn't MS or ALS or Altzheimers, or a stroke. If I had to have one, I'd rather it be PD..... sometimes though, I get discouraged, and even angry at times.... but other times, like right now, I'm dealing with it pretty well. I hope to meet a lot of nice people here and to learn more about this awful disease.s Thanks.

[RS313]

Hello Mary,

you picked a great place to meet new friends and learn a ton of good information. I was recently diagnosed a yr ago and i have good and bad days as well but mostly good! Important to keep busy stay active eat well and stay social. exercise as much as you can that seems to help most everyone in this group. welcome to our family and wish you all the well wishes and hope you have a great weekend Robyn

[Hidden]

I hope you learn with a search on Healthunlocked and choose to follow high dose thiamin HCL

[KLDA in reply to Hidden]

What dosage are you taking?

[Hidden in reply to KLDA]

4g daily. I invite you to my profile

[KLDA in reply to Hidden]

Thank You RoyProp, I will see your profile.

[redhead63]

Hi:

So sorry that you have PD. My Neurologist told me that he thought that I have PD about 3 years ago. Then he changed his mind and said I do not have PD and he told me that he didn’t know what was wrong with me. Here I am still staggering around with this horrible lightheadedness. Did you have any lightheadedness or dizziness?

What about staggering? Those are the two main things that I have. I think the lightheadedness makes me staggered. Thanks

[M1tz1 in reply to redhead63]

I don't know whether your staggering is what I call my unsteady gait. Until John Pepper taught me his Conscious Walking technique, I must have looked, when walking, as if I had been drinking. My walking is much more respectable now. Have a look at his profile here and also Google 'John Pepper Conscious Walking'. It will give you a series of videos. With good reason, he also advocates Fast Walking to delay the progression of PD.

[MBAnderson]

Greetings Mary. Welcome. You will, indeed, meet a lot of nice people here. Every last one of them will offer whatever they can. I'm a veteran, too. The VA acknowledges mine was likely triggered by Agent Orange. I've gotten excellent care at the Minneapolis VA, but I know the quality of care varies by location. Which clinic do you go to?

[heidi1]

Find an exercise class near you specific to Parkinson’s. You will gain camaraderie, support, and the skills to delay your symptoms. Exercise is the key!

I am a Personal Trainer in Minneapolis and I own my business - Live2Thrive. I am endorsed by our local Parkinson’s Foundation.

Your local Parkinsons Foundation may offer exercise grant money for those who qualify so you can attend a class or get personal training at a reduced cost.

Check out my Facebook page Live2Thrive.

[heidi1 in reply to heidi1]

Forgot to tell you I am Certified in Delay the Disease. You can go to their website and look up classes in your area. They also have books for sale and DVDs

[wifeofparky]

Try PD Boxing. My friends have experienced wonderful results

[alaynedellow]

Welcome to our family.

You will see we all have different things that help us on this journey. We all have different symptoms one fix doesnt mend us all.

Research PD on here and ask questions of us.

Take lots of exercise- mind and body.

Good luck and welcome

[KLDA]

Welcome to the group. I am a newbie, just diagnosed in January, and recently joined this group. I'm so thankful for the encouragement and good information that I've received from this group. Exercise, and stay connected. It's nice to know that we aren't alone.

[jeffmayer]

When I was diagnosed a GP told me it was probably mnd. So thank God it was of if I had to choose it would be of for sure though a crap condition I feel it's the least severe least you can live your life