tremor subsides over time per conditions - Parkinson's Movement

Parkinson's Movement
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tremor subsides over time per conditions

RoyProp
RoyProp

Worth repeating - GioCas: "I can guarantee that my tremor after about four months of b1 has shrunk and after three years is almost zero like this:

High doses of continuous B1 as indicated by dott Costantini.

Use of the necessary levodopa as indicated to each of us by our own neurologist in a personalized way.

And nothing else.

Reduced over time very gradually."

Special thank you to Dr. Antonio Costantini and Dr.Erika

28 Replies
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Thx for posting that. We are in week 4. His tremors don’t seem to be lessened YET, but I can tell his mind is getting better/sharper. He’s got more energy n seems motivated.

RoyProp
RoyProp in reply to Ajssister

What dose of thiamin HCL are you using? What is the weight of your brother? What Parkinson's med is he on? What else is he taking?

The answers will be of interest to us all herein.

Ajssister
Ajssister in reply to RoyProp

1500 mg two times per day of B 1/Thiamine,magnesium asporotate 400 mg, vitamin D3 10,000 IU, 2400 mg of fish oil, vitamin B6 1.5 mg, methyl folate 400 MCG, methyl B 12 1000 MCG, plus he takes Carbidopa levodopa 25 mg three times a day dissolved on the tongue, Cymbalta HCl 30 mg one time a day for Nuro pain, metoprolol tartrate 25 mg one time a day for blood pressure, amlodipine besylate 5 mg one time a day for heart problem, one Lunesta 3 mg at night for sleeping, and 181 mg aspirin. 15 mg Per day of Oxycodone/acetaminophen for a double hernia iron working injury.

I know it’s a lot of other medication. I’m waiting to hear from Dr. C to see about getting him off of the other medication, just keeping him on the supplements and the carbidopa levodopa. But I haven’t heard back from him yet. He’s kind of afraid not to take the medicine.

Interested in any feed back. Thx

RoyProp
RoyProp in reply to Ajssister

Doc Costantini is known to ask patients to continue their Parkinson's med.

I would change the aspirin to ibuprofen. Ref: google search ibuprofen Parkinson's

What is his weight?

When was he diagnosed?

Ajssister
Ajssister in reply to RoyProp

220# and 6’1 tall. 68 age has been on c/L for about 3 yrs. I’m certain he was malnourished before coming to live w us 10months ago. And he had been on WAY more meds for a long time.

RoyProp
RoyProp in reply to Ajssister

Doc. Stanley Fahn

World-famous leader in movement disorders, Dr. Stanley Fahn was the keynote speaker discussing myths and misconceptions in PD, and several members of the University of Florida Center for Movement Disorders and Neurorestoration also spoke and participated.

video

healthunlocked.com/parkinso...

youtu.be/utVZaOLUiDo

37:20

Myth 4. “No response to Sinemet 25/100 three times a day is considered a non-responder.”

a. Each person should be treated individually and each may require a different dosage of Sinemet to get a response.

b. Some physicians fail to push the dose after it reaches 300 or 600 mg/day.

c. My “limit” is 2,000 mg/day.

I’ll ck this out later. Going to work now. Thank you again

RoyProp
RoyProp in reply to Ajssister

I am confident your brother will have major relief from Parkinson's.

Special thank you to Dr. Antonio Costantini and Dr.Erika

RoyProp
RoyProp in reply to Ajssister

Easy, quick, simple home test of Parkinson's. Take test now, keep record of score, test your brother next three or four months, compare score. This in addition to Doc Costantini 's suggestion and request that a video be taken now of sitting, tremor, and walking. This for comparison over following months.

healthunlocked.com/parkinso....

UPDRS whats your score? Find out here.

UPDRS Scoring System

Online calculator

why does one have to take Vit D (that you can get from the sun right) and folate(isnt that for pregnant women? Did Dr D ask you to do that? He didnt with me .

RoyProp
RoyProp in reply to Jumex2017

I don't think he does

Hidden
Hidden in reply to Jumex2017

This is why vitamin D:

healthunlocked.com/parkinso...

Art

RoyProp
RoyProp in reply to Hidden

I will go to your profile and look for "top five".

Which vit, D1, D2, D3?

I think vi t needs calcium.

Hidden
Hidden in reply to RoyProp

D-3. I don't have a top five listed......my profile is minimal and I have not updated.

1. Thiamine

2. Vitamin D-3

3. Topical and oral magnesium

4. NAC

5. Pine Bark Extract or Melatonin depending on the individual. If constipation is an issue, then probably melatonin. If sensitive to melatonin, then PBE. EGCG could also be in the top 5! Now brand makes a pine bark extract that has EGCG in it so that would make a nice number 5!

Regarding calcium, yes it works well with vitamin D, magnesium, vitamin K-2 and boron. They are cofactors, but senior men likely get enough calcium from food intake. Women may need to supplement, but smaller doses of calcium at more frequent intervals are more useful than many of the high quantity supplements that give more calcium at once, which the body does not handle well.

Art

RoyProp
RoyProp in reply to Hidden

…daily supplementation with 1200 IU vitamin D3 for 12 mo significantly prevented the deterioration of PD….academic.oup.com/ajcn/artic.... as measured with the HY stage, UPDRS part II and total, and some domains of the PDQ39, with no apparent increase in risk of hypercalcemia or other adverse events during the study period. A point estimate of the number needed to treat was 6 patients for no worsening or improvement in the HY stage, which was considered very effective. To the best of our knowledge, this is the first randomized trial to examine the effects of vitamin D3 in patients with PD. However, a meta-analysis showed that supplemental vitamin D for older adults who participated in randomized controlled trials consistently showed beneficial muscle effects on strength and balance (27). Therefore, it cannot be distinguished whether vitamin D supplementation specifically delays the progression of PD or whether it just nonspecifically improves muscle strength and balance in older adults.

Hidden
Hidden in reply to RoyProp

That was quite a study, don't you think! Vitamin D has so many health benefits and studies to back it , that it makes a lot of health sense to be replete!

Art

Actually i m not sure what this UPDRS is? Is it a special program?

As for constipation my husband does to suffer from this as he has a high fibre diet.

Shall i recommend it to anyone?

RoyProp
RoyProp in reply to Jumex2017

No special program

Jumex2017
Jumex2017 in reply to Jumex2017

I saw what the score is.Will get my husband to try it.

I mean does not suffer from constipation.

Chow much vB1 did you take please

Roy

I seem to have lost dr c email . There’s been so much mail. Can I have it again?

RoyProp
RoyProp in reply to Jumex2017

nclude your weight sending to Dr Antonio Costantini, carapetata@libero.it

Thank you Roy.Found it!

Dont quite understand what he wants in the video

Is it just the facial expression and the walking?

RoyProp
RoyProp in reply to Jumex2017

All

What dosage and where do you buy it please?

RoyProp
RoyProp in reply to Wolfepower22

See my profile for dose. Buy, vitacost.com

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