B1 dosage warning

[Dap1948]

Because many of us follow what others are doing in respect of dosage, in this case B1, I thought I would post that Dr Constantini suggests a dosage for B1 based on condition, onset and weight of the individual. For me his advice was just 2 grams a day, 1 in the morning and 1 at lunchtime.

He also pointed out that if the dosage is too high, it can determine, after an initial improvement, an aggrivation of the first improved symptoms. Then he recommends no B1 for a week followed by B1 at a lower, possibly half dose.

I hope this information helps someone!

[ion_ion]

It kind match to what happened to me. I felt very good at 2g/day for a month but suddenly I had issues. This happened after I added folic acid; I'm not sure yet if it was just a coincidence but I stopped the folic acid and drooped the dose to 1g/day and 1.5/day for now.

[Farooqji]

What I note from the posts related to B1 therapy, that it improves all other symptoms except tremors

[Erniediaz1018 in reply to Farooqji]

And so many of us have tremor dominant PD this is really what we're looking to hear in any post "my tremors are under control". But we'll keep hoping.

[Gioc in reply to Erniediaz1018]

If you look at the scientific literature about why a PD patient has the tremor becomes clearer because it is the most resistant symptom and should be controlled with b1 and levodopa. Do not ask me the links because I do not have time to look for them in English, sorry, but there are those that to explain this tremor dynamics. Not all is easy!

[Kia17 in reply to Erniediaz1018]

Erniediza1018

Do you take B1? If yes how much ? And please can you share your experiences with Thiamine here.

Cheers

[Erniediaz1018 in reply to Kia17]

Not yet. I take mucuna pruriens plus a mix of 15 different herbs. I'm 49 almost 50 and started sensing tremor onset on 10/2014 but was in denial and didn't want to believe I had Parkinson's until 10/2017 had dat-scan. My whole right side is messed up. Right arm tremors with some dyskinesia at times, 20/50 vision, no sense of smell, and right leg and foot don't respond at times so it seems like I limp. Before I started taking the herbs and mp symptoms were worse,

[Kia17 in reply to Erniediaz1018]

I think it’s worthwhile to conact Dr Costantini or even seeing him.

[marcet in reply to Erniediaz1018]

What herbs are you taking ? On what form?

[Kia17 in reply to Farooqji]

Iqbal

It does significantly reduce tremors especially if someone is in the early stages of PD.

[marcet in reply to Kia17]

Sorry what reduce tremors significantly?

[Kia17 in reply to marcet]

The Thiamine

[marcet in reply to Kia17]

B1 does nothing to reduce my tremors....

[Kia17 in reply to marcet]

When did you start taking and how much?

[marcet in reply to Kia17]

Late last December, 2 weekly injections of b1, one mixed with glutathion, one b1 only

[Kia17 in reply to marcet]

Are you taking any PD medications with the Thiamine?

[marcet in reply to Kia17]

Azilect for 5 years then i stopped a month ago to start mucuna zandopa. Supplements like coq10, magnesium nadh etc

[Kia17 in reply to marcet]

May I ask you to write a breif medical history about yourself and that you have been taking Thiamine for the past few months ... and email it to Dr Costantini with the list of other medications and let me know once you have done so with sending me a message. I will then chase it for you and will ask Dr Costantini to look into that.

[marcet in reply to Kia17]

Will do so thanks for your help

[tbirchf in reply to Kia17]

Would you please provide an email address for Dr. Costantini so I can send him symptoms and medical history and ask for advice on starting thiamine?

[Hidden in reply to tbirchf]

Here is his email and other info related to Dr. Costantini's thiamine protocol:

healthunlocked.com/parkinso...

Art

[Erniediaz1018]

Thank you Dap. Looking forward to visiting Dr.C sometime in the near future. I'm in NJ. But my wife and daughter are flight attendants so the flight itself will be next to nothing.

[Dap1948 in reply to Erniediaz1018]

Dr C is a good man, giving advice for free. I hope you get to meet him soon.

[Grumpy77 in reply to Dap1948]

Hello Dap,

I know this is off topic for this thread, but I can't resist asking:: How is your experience with Miramate PEMF going?

Is it improving your non-motor symptoms?

You announced the other day you gain energy, is that continuing?

And most importantly I am interested in knowing if it is continuing to reduce your tremors at all?

Thanks in advance for your answers

[Grumpy77 in reply to Dap1948]

Hello Dap,

I know this is off topic for this thread, but I can't resist asking:: How is your experience with Miramate PEMF going?

Is it improving your non-motor symptoms?

You announced the other day you gain energy, is that continuing?

And most importantly I am interested in knowing if it is continuing to reduce your tremors at all?

Thanks in advance for your answers

[2donkeys in reply to Dap1948]

Hello Dap. Along with Grumpy77 I too have been dying to know how things are going with the Miramate PEMF!