Interview with Prof. Anthony Lang (Un... - Parkinson's Movement

Parkinson's Movement
17,073 members16,663 posts

Interview with Prof. Anthony Lang (University of Toronto) regarding Parkinson's disease research

jeffreyn
jeffreyn

Tomorrow Edition - Interview With World-Renowned Movement Disorder Specialist Prof. Anthony E. Lang

tmrwedition.com/2018/04/27/...

21 Replies
oldestnewest

Good one.

I see so much written about treatment of Pd and very little about what we do to possibly bring about many chronic illnesses.

We get told to take all sorts of medications that are all TOXIC and all have SIDE EFFECTS. None of the Pd medications have so far shown that they are capable of slowing down the progression of Pd or even reversing it. I think that keeping us permanently on medication is the goal and not helping us to get better.

I have seen more and more written about looking at what we put into our mouths that possibly causes these chronic illnesses. Things like HEAVY METALS that have a profound effect on our health. GETTING RID OF THESE HEAVY METALS is more important than taking in even more damaging medication.

Starting to do serious exercise to help the body cope with these chronic illnesses is also more productive than the medication route.

One of the actions I took after being diagnosed with Pd was to have all the amalgam (Mercury) fillings taken out of my teeth. That may well be the reason why my Pd symptoms have improved to the point where I no longer need to take medication and where nobody would ever know that I still have Pd. Maybe it is the fast walking I have been doing for the past 24 years that has brought that all about. Who knows? All I know is that I am now a lot better.

Read my profile and contact me on reverseparkinsons.net and see if I am able t help YOU!

jeffreyn
jeffreyn
in reply to JohnPepper

JohnPepper wrote: "I think that keeping us permanently on medication is the goal ..."

John, when you write something like that, a lot of people just stop reading.

JohnPepper
JohnPepper
in reply to jeffreyn

The truth is sometimes hard to believe. The medical profession here has done everything they can to make other people believe that I do not have Pd and they should not listen to me. Now why would they do that? Some doctors tell their patients to do exercise, but not many and not what type of exercise to do.

All medication is toxic and all have serious side effects. If we can reverse the symptoms of Pd, as I have, then it is far better than taking medication, which does nothing to reverse the symptoms, they only hide one or two symptoms for a short time, at the very best.

jeffreyn
jeffreyn
in reply to JohnPepper

John, I don't have a problem with most of the things that you say. I may not agree with some of it, but I don't have a problem with you saying it.

The only bit I have a problem with is the half-sentence that I quoted. It goes way over the top.

But you never really know!

JohnPepper
JohnPepper
in reply to jeffreyn

You have lost me! Please explain what you mean.

Despe
Despe
in reply to JohnPepper

I so much agree with you, John!! My husband was diagnosed with PD, subset tremor, in March 2018, although I now recollect that his symptoms started 10 years ago! I strongly believe that our non-stop jogging, walking, and other various types of exercise slowed down his PD. He only has RH tremor, still intermittent, but he is depressed, and that's worse than his motor symptoms. He is still working (50+ years), but I am trying to convince him to retire so he has time to follow his vitamins and exercise protocol.

No PD medications, not even the MAYO neurologist recommended. We also visited Cleveland Functional Medicine. Hope they get down to the cause of his PD although I suspect is has to do with his exposure to Agent Orange.

You're taking MAO-B inhibitors, any side effects?? Thank you.

zadok459
zadok459
in reply to Despe

I concur your suspicions about agent orange. I was in the South African military and in an African country steeped in a rebel war I was exposed to a neuro toxin sprayed into the air> Upon my return to SA the toxin and heavy metals was found in my system - soon after I was diagnosed with PD

Despe
Despe
in reply to zadok459

Wish we knew then what we know now, zadok459.

zadok459
zadok459
in reply to Despe

I agree - how did your husband get exposed to agent orange - he must be in the military. I'm 59 now and stopped working last year and moved to Cape Town - I withdrew from my previous life and fellow circle of colleagues who are all military, cops etc. and it helped me a lot.

Despe
Despe
in reply to zadok459

Yes, he was in the military, 30 years he served (US).

zadok459
zadok459
in reply to Despe

I served in the Secret Service (equivalent to your CIA) and the military. It's a very dominant environment - the military where performance is important. It is difficult to fight PD whilst in that environment. I found it to accentuate my PD and my own limitations. He won't be able to keep up although we are mentally strong and trained never to give up. I resigned last year and withdrew from that environment and it helped my PD and acceptance

Despe
Despe
in reply to zadok459

I wish I could convince him to retire. I believe he is very depressed, negative, and uncooperative. It's a constant battle with him!

How can I help him with depression? He refuses to face reality, at least right now. Who knows later. . .

ion_ion
ion_ion
in reply to Despe

I went through the same process last year. After few months I decided to stop making the things worse than they are. I accepted the situation and I started to exercise. On March 24 , 2018, I started dr. Constantini Thiamine HCL protocol, 2 g/day. It helped partially with tremor but ,man, mentally and physically is helping a lot. Today, I'm much better than an year ago. I'm 63 and still working like software engineer. Last year I was planning to retire but now I changed my mind.

Despe
Despe
in reply to ion_ion

We are seeing a Functional Medicine physician at Cleveland and she put him on a detox protocol. He is also going to have a special blood/urine/saliva test this coming Thursday to find out what specifically caused PD. Depending on the test results, she will go from there.

One step at a time. If they can't help him, I will have him try Dr. Constantini's protocol. He is also on Mannitol but too soon to tell if it helps. Exercise was never a problem, we have been exercising all our lives, jogging, playing b-ball, racquet ball, and for the last few years walking at least 3 miles a day.

Did you talk to Dr. Constantini? Or you took initiative and started Thiamine HCL on your own?

ion_ion
ion_ion
in reply to Despe

I started on my own but later I exchanged two emails and he confirmed the dose.

zadok459
zadok459
in reply to Despe

To retire with help with his acceptance and depression. We soldiers live by a different code like - I will rather die fighting than giving up etc. We mingle with our own kind . That's been his identity for 30 years and to remain in that environment reminds him constantly of what he has lost - his identity. Try together him to socialize with ordinary people and help him to form a new identity - he is still a warrior and soldier but it's in the past, He can keep his values. Just tell him he has a new enemy - PD -His war became personal and this war needs his full time involvement. I hope it helps. I went through the same . I moved and are not surrounded by military frindships. We are all sentimental. I still wear my US Marine camouflage base baal cap which I got from a fellow soldier in Afghanistan

JohnPepper
JohnPepper
in reply to Despe

Hi Despe. I have not taken any Pd medication since 2002. I no longer need it. Although I have no proof that fast walking has reversed my symptoms I can say for certain that when I was doing aerobic exercises and weights for 90 minutes every day my symptoms continued to get worse but when I stopped the gym and started walking fast every second day my symptoms stopped getting worse and started getting better. After 4 years, nobody other than a neurologist would ever know that I still have Pd and after 8 years I was able to stop taking Pd medication.

I have lived a normal life since then and am now 83 years old and still am able to walk 7 kilometres in less than an hour.

Look at my profile and contact me on reversparkinsons.net. It costs nothing.

Despe
Despe
in reply to JohnPepper

Thank you, John. I have visited your web site countless times. It's very informative and encouraging. Still debating the conventional medication. . .

JohnPepper
JohnPepper
in reply to Despe

My feeling is that because no medication is designed to cure Pd, they only try to treat the symptoms, we should try to steer clear of them. They are all toxic and all have serious side effects.

If you can do exercise and start to reverse your symptoms, as I have, you will be far better off. And it does not cost any money!