I'm having a hard time getting diagnosed and am a single 66 yr. old female even
though I have a noticeable head tremor only when at rest. What seems like
hypomimia, (face doesn't respond to what I want to express, slow thinking, slurring
of speech has been noticeable to other people. A swallowing assessment showed a
swallowing disorder (decreased tongue base movement) deemed as neurological
origin, as well as very slow and troublesome digestion, constipation, etc.
I am finding no one is listening. I am not particularly rigid but very stiff back of neck
and upper trunk that has gone on for several years, 24/7, (back sometimes).
I'm getting slower and stiffer. Mental aspects are ignored.
I don't feel pleasure or rewards, (anhedonia-I looked this up a few years ago and it matched what I feel), often feel loss of motivation to do anything.
Go somewhere for 2 hours and come home and sleep for 2 hours regularly. Fatigue!!
Avoid social situations and all of these are not my personality at all. I used to love to entertain and loved the woods and outdoors.
Doctor doesn't seem to have an explanation or a referral to someone that does.
These things started about 3 years ago as did diminished smell.
am stumped as to what to do now.
Of course they are looking for rigidity and even though my left leg goes numb and turns in at the ankle occasionally it is not rigid nor is anywhere else although I would say it's inside and my neck is always stiff. Doesn't count according to neurologist.
Had a forefinger tremor one time.
Eyes are bothered much of the day and not much of a prescription change but borderline macular (retina?) degeneration.
Very hard to use my neck muscles to sing, cry or talk very long as they're weak and it results in pain.
Any suggestions welcome. It seems I have at least 2 of the criteria but no diagnosis and I don't know why. I would like to try levodopa to see if anything settles down. I live in BC Canada
Thanks and I will check back for any replies.