Parkinson's Movement

Confused

I am so confused. I’ve had PD for 12 years and in addition to my GP, I am seeing a neurologist, a movement specialist and a naturopath. My tremors are worse and I am suffering from depression. I have been on Rytary for almost a year. I told my neurologist about the depression and The neurologist said to see my GP about it.. theGP gave good advice but, understably, knows nothing of PD meds. Also the neurologist does not do any thing with diet. The naturopath says no sugar, gluten, dairy, red meat, chicken. And the neurologist did not see a problem with my being on lexapro and Azilect. Now I have found that there is a problem being on both. I am on Rytary, Azilect, Lexapro, clonazepan and Apokyn. I Almost want to quit every thing and then start over.

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start Ashwagandha extract and bacopa monnieri extract

you will feel the difference in 2 months

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I think maybe even sooner.

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Thanks for bringing up those well known herbs to our attention. It would be even better if there were links to support with studies, however I'll try to find some to get dosage.

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What supplements or brands do you use ?

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I use the whole plant powder made by myself which I would not recommend for you due the long process involved.

All the renowned supplements manufacturers are equally good e.g. NOW, GNC, Nature Bounty etc etc

One thing to note is that you should look for the strength of extract. The Ashwagadha should extracted to 5 % Withanoides and bacopa should contain 50% bacosides

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Thanks

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Sorry i forgot to ask you if these 2 supplements also help to reduce tremors ?

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tremors are subsided with mucuna

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As for the ashwagandha extract and.bacopa extract, what are the strengths and dosages that you use?

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Listen to your naturopath, diet plays a huge role in most of our diseases/syndromes. I have been struggling with chronic illness for nearly 24 years and am only now learning the role of poor diet choices in causing every cell in my body to malfunction

While I myself do not have Parkinson's, my youngest son does and everything I have read speaks of the importance of diet/exercise,

Sugar has hormonal and nutritional impact for hours on our bodies throwing the body out of balance into biochemical chaos. It has empty calories without nutrients.

I am sorry that you are feeling so confused, it is not a pleasant state to be in. How I wish that all the partners in our health would actually sit down with you at one time and help to devise a plan for your well being,

I wish you well.

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Good morning

Talk to your Dr about stopping each drug 1 at a time (except Rytary) to see just what they do for you. If you don't feel worse then i would not resume that drug. Azilect caused me bad depression so i stopped it completely. I would start with it. I am 64 12 years with PD. I do great and i do not follow any diet i just eat small portions and never within an hour of my med time.

Good luck.

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I'm sorry your neurologist isn't more help. I expect mine to be the guy doing the oversight of my meds and condition. Clonazepam can cause confusion. Also, Apokyn is a dopamine Agonist and can cause problems. And, as Bailey said, azilect is not helpful for a lot of people. Although there usually isn't a problem taking Lexapro and azilect at the same time there certainly can be and it's not really a good idea. It seems like weaning yourself off one of these things at a time, except for the Rytary and Lexapro might be helpful, with your neurologist oversight.

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I was thinking about my meds and I very much consider Lexapro to be one of my PD meds. Depression is recognized as a symptom of Parkinson's and until I got Parkinson's I did not have depression or anxiety so I get the prescription from my neurologist.

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Is Lexapro the only SSRI you have tried? I am wondering how it might compare to Sertraline. My hubby's anxiety has gotten noticeably worse, and I am weaning him from Zoloft under PCP supervision. I don't know if he can go without anything for the anxiety, though. I would prefer a natural or herb. Any suggestions are appreciated!

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I wanted to try Lexapro because I know it's good for anxiety in addition to depression. I take 10 mg a day and I have never had any side effects from it. Depression and anxiety are a real problem with Parkinson's and I don't know that you'll find a supplement or herb that will deal with it sufficiently. I never did.

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Yes there are a few outstanding herbs that have helped me with anxiety and depression. St johns wort, valerian root, ashwagandha, gingko biloba, maca, skullcap. If you're seriously interested these work for me I use them daily. Its alot and not easy I think that's mainly why people choose to go the conventional way because the conventional way is easy. I do these herbs and more in powder extract every day and it gets overwhelming at times so I take a day break or switch up the base liquid to mix in like orange juice or lemon juice or green drink etc.

ameriherb.com is where I get the herbs from .

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If you can get medical cannabis that is a great help for anxiety and just plain mellowing out

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Believe me I have thought about it..and getting an extra huge supply for myself

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I weened off Zoloft in jan

My Dr wanted me to try Effexor

HUGE mistake

The moment I went back to Zoloft

I was feeling back to normal

For those extra anxious times

I've added Xanax ... I take as needed

It has helped tremendously

Esp with RLS!

Good luck

Be well

C!

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How much of each do u take? 1/4 of a 0.5 mg Xanax knocks him out for hours. Had to give last might as worst nite ever for anxiety. Took 100 mg of Zoloft for several months now down to 50 and has been there for a month maybe that's the reason for increased anxiety? However prior to weaning anxiety was beginning to increase.

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I take 100mg daily of Zoloft.

I take a 1/2 of .25mg Xanax ( which breaks down to .125, same as what you gave your husband).

Is there something happening? an event coming up? Why the increased anxiety?

Does he talk to a therapist?

Has there been a change in diet? added caffeine? sugar? Meds?

Just a few things to consider.

Hope things settle down ...

Be well

C!

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Hmm.. no event, but home maintenance things like getting garden planted for summer, leaking sprinkler heads to be fixed, truck needing inspection..all things I take care of now but still try to talk to him and tell him whats going on. His Speech has greatly diminished in terms of sensible sentences and staying on topic. That's another thing.... I have asked neuro for help with attention span and she says no meds will help. As for diet, he has no fat Greek yogurt with bananas or blueberries every single morning. I mix the rivastigmine (3mg twice a day )with it because he doesn't want to swallow pills anymore. He loves tuna, as well as coleslaw. We eat a lot of chicken and salmon and sauteed veggies in olive oil. He does love a hamburger occasionally. Yes, he has had some sweets sporadically as of late. He rarely drinks coffee, even decaf anymore. What am I doing wrong?

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FIRSTLY...You are not doing anything wrong... do not put that kind of pressure on yourself.

if there's one predictable thing about PD.. it's that it is consistently unpredictable!

It could be as simple as mixing his pills in the yogurt. Food & other meds can have adverse reactions.

I find I get super stressed & anxious at just the thought of all I need to do. Maybe keeping him informed of everything may not be necessary...

I don't know what your financial situation is.. can you reduce your stress by hiring someone to help? Or perhaps, family/ friends that you could lean on?

Truly the HARDEST thing I've had to learn to do is to rely on others. I absolutely abhor it, yet... I really have no choice.

It's difficult to help without knowing you or him or your situation.

If you'd like to call me.. leave me your name & number.. I'd be more than happy to call you when I'm out of work.

My name is Cheryl. My cell# 518-466-3239

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So I just quickly jumped over to your profile. I see 5 mos ago you posted that he has Lewy Body Dementia.

That is not something I'm familiar with. I think my first recommendation would be find a new Dr if you feel your current one is not helping. My second recommendation would be check out ParkinsonsDisease.net.... find more info there and of course reach out the the LBD caregivers blog.

I hope this helps...

Hoping for the best

C!

parkinsonsdisease.net/clini...

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You have too many hands in your diagnosis ! Get rid of you Neurologist s and find just one that you trust( shop around ) and ask other in your area also suffering from PD.

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What is the negative interaction between lexapro and azilect? My neuro has prescribed both for me.

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Hi I have been on Rytary for over 2 years now. Of course everyone is different but I only take the Azilect with it. I too see a movement specialist. I find the with the exercise and that combinations of meds I am usually okay unlike when I took Sinimet.

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So you got off sinamet?

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Marci- Sorry you're having meds issues. It has definitely been a problem with us as well. My husband is on Rotary and Azilect as well with ho-hum results. While he doesn't have depression, he has low blood pressure. My advice is not to quit everything. If anything, slowly go off one at a time and journal the effects. My husband has been very frustrated with his meds and went off them for a while and everything got worse and you don't want that). Good luck and hang in there.

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Thank you for responding. I empathize with your husband. I want off everything. I’ve talked to my doctor about it, but she just keeps adding more meds

I hope your husband is doing better

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Purchased velvet bean mucuna puriens seed bean extract 333 mg. Guaranteed 66 mg catecholamines including 50mg l-dopa.

How does that compare to 25/100 sinemet?

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I dont know how to answer ur question but where did u purchase?

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Natural Grocers

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Hi,

This is my 1st time upon this site. I was diagnosed in 2006 and I realize every patient with PD is different - here is what works for me...

* 4 Rytary (23.75 / 95 mg) at breakfast, lunch and dinner and 2 Rytary at bedtime. (Replaces Stalevo)

* Trihexyphenidyl (2 mg) - 1-1/2 tablets at breakfast, lunch and dinner

* Cyclobenzaprine Hcl 10mg tablet - 1tablet at bedtime (muscle relaxer)

I also take the following supplements- COQ10, Vit D3, Magnesium, B12

Started this in Aug, 2017 - pretty good results so far. I will also be attending a seminar next week regarding stem cell therapy. Dr claims he’s had excellent results with PD patients and DOES NOT use stem cells from embryos - I can forward you a link to his site if you are interested.

I’m going to try adding a spice called turmeric to my diet - supposed to have amazing healing qualities

I also learned recently that Cleveland Clinic is opening a natural health Dept and / or building dedicated to natural healing. I live in Ohio and I believe they have this location built and ready to accept patients . I’ll check on this and can forward to you if you are interested.

Hope some of this will be helpful to you. Have a great day! 😊

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What are your symptoms? Yes please post the info to the stem cell research and keep us posted on your findings. Thank you

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That sounds great. I have thought about going to the CC before. Maybe now is the time. I think I would benefit from a muscle relaxer too. Thank you

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Please forward the information Re: the stem cell treatment as well as the cc natural health dept

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I've found Gabapentin, 200mg 3X daily works good for me for anxiety but I am one of the 50-60% of people that antidepressants don't work for

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