Stage 3 or Stage 4 : in hospital

[aspergerian]

Apparentl6 unconcerned with my PD protocol . My deterioration came wirh surprising rapidity.

[beauxreflets]

Sorry to hear you are in hospital aspergerian. What is your PD protocol?

[Kevin51]

Sorry to hear that! You really benefit from someone else to speak for you to the hospital staff. Its really difficult to keep on top of being in hospital without support from a friend or partner. Most hospital staff have no direct experience of PwPs and poor understanding of the need to let you direct their own PD meds - crucial to your PD. If your hospitalization is not for PD itself then you should demand to be seen by a doctor from their neurology department and discuss with someone who has the right knowledge. It is recommended practice now for PwPs in hospital to be allowed to direct timing and dosage of their PD medications. Wishing you all the best

ps link to recommended practice pdf

s3-eu-west-1.amazonaws.com/...

web pages

parkinsons.org.uk/informati...

[M1tz1]

So sad about this, aspergerian. We have a different kind of health system here but the results don't always seem to be any more helpful. You're in my thoughts and my prayers.

[Farooqji]

praying for you

[faridaro]

So sorry to hear that. May you be granted recovery and experienced physicians to help you with your protocol and all your needs.

[park_bear]

So sorry to see this. You need to be as assertive as you can muster with the hospital staff to get your Parkinson's medications provided in the appropriate quantity at the appropriate times.

[MBAnderson]

I hope you have all your meds and supplements with you. If not, I'll mail you some B-1 if you like. (If so, PM me) We're all hoping it's a temporary setback.

[alaynedellow]

Praying you get home soon

[Kia17]

Sorry to hear this. Hope you get home soon.

[jujulini]

this is interesting, because i just spent 2 days in the hospital over the weekend. i went in with chest pain, and was diagnosed with atrial fib. when they said they wanted to admit me, i told them the only way i would stay is if i could self administer my c/l. the md wrote the order, and said the pharmacist just needed to check the bottle. but then the pharmacist wouldnt give the bottle back to nurse. he said that either the nurses had to go down to the pharmacy every 2 hrs and get my pills or the nurse would dispense the hospitals pills.

and i dont have to tell you that timing is everything, and that neither of those options is acceptable. so, since i had another stash in my purse, i just kept them at the bedside, the nurse scanned the hospitals pills, and just pretended that i took theirs. thank god for the nurses. and i questioned everything. i was nice about it, but i know they were happy to see me go home.

its a shame, when youre sick and vulnerable, and cant really afford any more stress, that you have to use most of your energy to stay alert to whats being done and to fight for what you need.

good luck to you...........

[faridaro in reply to jujulini]

What a coincidence - I was also diagnosed with afib a few months ago. Makes you wonder if this is part of PD?

[jujulini in reply to faridaro]

i think its from the albuterol inhaler and motrin. both cause tachycardia and afib. all my labs, xray, and echo were normal.

[Juliegrace]

Hospitals are terrible places. I hope you are released soon.

[aspergerian]

Thanks to all who have posted supportive comments. Clearly, my PD is progressing. Too soon to tell wether or not a revised meds protocol will be sufficiently efficatious.

[aspergerian]

Today I get transferred to a rehab facility in a nearby town. I have been shifting to SinemetCR (4 per day)., plus 2 of 25/100 fast relief (prn). I hope the rehab facility staff doesn't preume to initiate yet another change of meds.