Why do we some days feel that we have no PD?

[Kia17]

Why do we some days feel that we have no PD?

Please share your thoughts here,

[Xenos]

I've had hours like you say, never a full day...

[kbc1 in reply to Xenos]

Ditto

[swva in reply to Xenos]

Same here. Only hours.

[sankar003 in reply to swva]

I feel like that on days where I have PD compliant, wholefood diet and am able to exercise properly.

[Kia17 in reply to sankar003]

Do you take any medications? When your PD diagnosed?

[sankar003 in reply to Kia17]

diagnosed in 2012 and I am on 3 200mg levodopa a day.

[Gioc]

those are the days that I look at Italian politics.

[GymBag]

I pretty much have PD 24 hrs a day, 7 days a week , and today only has 23 hours. Whats all this "WE " stuff.

Enjoy it . Those days slowly disappear.

[johntPM]

I sometimes have the feeling of being symptomless, but now (12 years post diagnosis) this only lasts for a few minutes at a time. Possible reasons:

- it's just a perception of wellness, rather than real wellness. Your expectations change with time, you feel well relative to your new "you", not your old "you". You tune out some of the symptoms.

- a coincidence of favourable factors. Your drugs are working. Your remaining endogenous dopamine production is doing its best. And the wind is blowing you along.

- a placebo effect. For some reason you think it will be a good day, so it is.

John

[4000Nights]

I often can go all day without noting symptoms. But as soon as I think "Gee... I have no symptoms today" and go looking for them, e.g., hold my hand to see if I see a tremor or try to tap my foot,...... yep it is still there.

But obviously my (your) meds and exercise program is working so don't go looking and don't ask why. Just keep on doing what you are doing and enjoy the 'blessed' day.

[Kia17 in reply to 4000Nights]

Do you take any medications?

[4000Nights in reply to Kia17]

Meds are Sinemet (Carb/Levo tab23-100) 3 times a day for symptoms.

Azilect to slow progression which has been barely noticeable in the 5 years since diagnosis.

[Lionore]

Attitude is everything, and it helps to focus on self care and other life issues. I don’t think about PD on good days except when it’s time to take my Sinemet. Having said that, I’m three years post diagnosis and couldn’t begin to know what it’s like to have had PD for 15 years or more. None of us mortals know the future so worrying about it makes no sense. I try to recite my gratitude list every day.

[ddmagee1]

About 8 years ago, I felt that way, now, not so much. Enjoy your good days to the fullest! I do not have any good days anymore. Some days are better than others, but I have some PD symptoms and problems all the time now, due to progression of the disease to all limbs, and the autonomic system is now involved.

[mleec]

I am not on meds yet, but rarely feel like I do not have PD. As soon as I get up to walk, I am aware, I am aware as soon as I wake up or get dressed or try to change my grandson's diaper. Trying to pass out papers to my students. Everything is more difficult. I do find that if I take my time to cook ( always been a joy), I can forget for a moment. The best thing about PD, is that it is forcing me to live in the moment. Small blessings.