Parkinson's Movement
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Caregiver not patient - new to the group

My husband was formally diagnosed w/ PD about 2 1/2 years ago, but had it for a while before, mis-diagnosed as essential tremors for about 2yrs and we now know he had it even before then. He's 71 and using Neupro, amantadine & sinamet. Looking forward to gathering knowledge and sharing with everyone here. I have so much to learn.

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Read what Doc Costatini has done for me. On my Profile.

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Good morning Mary0927 and welcome.

One thing you must do is take care of your self. I think it is more important that you take better care of yourself than your partner. He has people trained to take care of him. I don't know you but i have seen a lot of ladies devote all their time and energy to care for their love ones and end up worse off than the ones they care for. My wife's father did everything for my wife's mom and he ran his self down and he died 4 years before she did. He helped so much she ended up addicted to all kinds of medicine (pain pills and nitro pills.). He did so much for her that she became a different person. The night he passed (at home) she called me first and i was there before the paramedics and i gave him cpr for 10 minutes while my wife screamed at the top of her lungs. Her mom did not drop a tear over him she was so high. She stayed that way until she passed because sister in law just did the same thing he did only worse. She stayed with us for the first 6 months and we had her off the meds so she went to my sister in law and she let her get back on the meds. I am sorry for the long post but i felt like sharing today.

I hope my story helps you in some way.

Good luck


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