Parkinson's Movement
12,695 members11,284 posts

Not Parkinson's but I need answers

About 9 years ago I began to develop a tremor. I eventually got around to seeing a neurologist in 2013. After MRI's in Syracuse they told me I had a fragment in my cerebellum and that was the cause. They tried medicating my tremors with no results. Along side tremors I had horrible headaches and the tremor began to spread. January 2017 I traveled to the movement center in Rochester. By this time my tremors were in my neck and legs. Descending stairs an issue. Loss of balance when my eyes are closed. HEADACHES. MRI'S detect white matter on the brain as well as dark matter. Lesions and iron accumulation. Spinal tap popped positive for Ms. Apparently they don't think that's what it is. Genetic testing showed it isn't nbia. Running 2nd round of genetic testing as we speak. I'm now developing lumps. One on my neck and one in my lung. I cannot urinate to save my life! I'm always in pain. Medicine doesn't work. For the life of me I cannot figure out what this is! I get progressively worse right before I menstruate every month. I'm losing my memory. I cannot stand or sit for any length of time. I can barely feed myself and I have to drink everything through a straw. I choke on fluid multiple times a day. I haven't worked in a year. I'm 34 and disintegrating at a rapid rate. Any feedback is appreciate. Thanks

Jessica

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you mention iron. have you been tested for heavy metal toxicity? do you have dental amalgam fillings? read my profile. i became ill right after dental work. no one thought to test me for heavy metals until 3 yrs after symptoms. (see my profile)

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My heavy metal tests did come back normal. I'm so sorry dental work induced this for you.

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forgot to mention-that blood tests for heavy metals are inaccurate. it should be done with hair or urine (preferably a 24 hr)

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That's great information! I see my urologist the 5th. I will have to mention this.

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if they cant figure out whats wrong with you, i am thinking it is some kind of toxin. think back to when it started, and what you were exposed to. possibly an herbicide???

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