Parkinson's Movement
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DBS Surgery “Awake or Asleep” that is the question?

Ive had it with dealing with the symptoms of this disease and I’m looking for some relief and maybe some normalcy at least for awhile, so I’ve decided to explore DBS. I have a consultation on 1/26 at Brigham and Women’s Hospital in Boston to evaluate if I’m a candidate or not.

I’ve heard from many on this site about success stories of DBS my question to the group is weather I should do the awake or Asleep method during surgery. I’ve read all the pros and cons of both just curious with what the group thinks.

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Both of my surgeries I was awake for much of the surgery. The first was all positive. The second, 2 1/2 years later was very difficult. The reason is I was totally "turned off" DBS on the first side, and off all meds. During the surgery, I experienced a lot of discomfort, dystonia. I had a hard time holding still and was actually afraid I was going to mess up the surgery. Ended up coming out of surgery in excellent shape. When I had my first surgery there were no symptoms on the second side...but from the experience I had I'm thinking it may have better to go ahead and have both sides done at the same time.

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I had both sides done, 1 week apart. I was awake for both. No issues for me in regards of being awake. I thought that it was an interesting experience.

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How long ago have you done it?

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Thanks for the response horsplay. How is your speech after DBS

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My speach is great.

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That’s good to hear. I understand some that have had DBS have had problems with there speach afterwards

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I had both sides done On the same day. It was done asleep and I had not problems after surgery.

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What year have you done it?

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It was done in Augustof 2016. It has made a huge difference in everyday living.

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That’s exactly what I needed to hear! I’m ready to do it now

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May 2014

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Thanks for the input gridless

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Thank you for your responses. I’m leaning toward the asleep option mainly because I’m a baby lol. If I can get both sides done at the same time I it think would reduce potential complications of going in twice.

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Asleep is best. Awake can cause speech issues like I developed (research based).

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Speech can be affected.... ive read the same research. Thank for shading

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If is wake it is not painful? Also I read articles stating anesthesia have some bad effects for the brain.

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The actual surgery is painless...we have no pain endings in our brain. My problem was dystonia/discomfort in my body as a whole due to PD (second surgery, early 2014).

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Just curios, do not have they to drill the skull? Also battery is stored in the chest underneath the skin and probably needs an incision. I taught that would be painful.

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Yes, they drill holes through the skull, but I was asleep during that. Was also asleep during the followup surgery to implant stimulators in the chest (one week following the installation of the electrodes in my head.) Of course, there was pain following both surgeries, which requires some pain medication for a period of time. Actually, I'd say I had more pain from the chest implant for a week or so that from the electrode implant due to them having to cut into some muscle.

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Naturally you are asleep for the placement of the battery. Yes they drill 2 holes in your skull. better to be asleep for all of it!

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Sounds like asleep is the way to go

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I only wish that I had had this choice

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I was glad to be asleep.

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I've had both sides done and they did not give me a choice... I was awake during both surgeries. It was strange experience but not painful. The only painful part was getting the halo screwed into my head, but the pain doesn't last. They did put me asleep for the battery placement. It hurts for a little while because they just cut you open and stuffed a battery into your body! But I am so glad I got it done, both surgeries made such a difference!

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My husband had dbs both sides on 21/9/2018 he was awake for most of the time only asleep for the battery insertion in the chest total of nine and a half hours from start to finish. I am very proud of him he's doing well. He did say he felt like his head had been kicked round a football pitch for an hour the day after but he's coped with just paracetamol. We are waiting for the appointment for his switch on hopefully next week and fingers crossed its worked and things will improve for him.

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Wishing your husband the best.... my surgery went great... no regrets!!

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Best wishes for a speedy and successful recovery.

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Hi sleeplessi had PD for 15 years now and had a DBS surgery 7 years ago.it was tough procedure, lasted 9 hr. But it seas worth it. It gave me my life back. I move better,my ovf time is shorter owed al I feel grate.I hawe to admit There we are complications. I had a planty of complycatios. Infections mostly. Staff at first the Pseudomonnas and Chen MRSA[Vanco resistend Staphylococus Aureus]. I had a total of9rgeries.Granted they did not lasted as long as the fits one,but just as serious.Because this took the first one out,put pick line in and antybiotics 3x a day for a month IV . And paying for it our selfs, because I did not can’t to stay in rehab. Go figufe..Staying in rehab ,which cost more money wedid it at home over selfs which save them thousands we had to pay. It does not make sense. Anyway, I spend enough time in the rehab thrat year. The infections crept coming back and the treatment increase ,to every 6 hr.Whhich my husband could not do,because of the timing. The IVs went for 3 hr.He would not be getting enough sleep. So I had to cnsented to rehab. It was not a pleasant experience. Belying retired nurse I was competing the services. The day shift was not a problem and the RNs on bough shifts were great but the tech [ we’d called them aids in my time . Some of them were triple. One told me o night shift., that my butt is to big for the bad;an, that I should stop beying lazy and get up and go on a toilet and that was after it took her owner 1 hr to answer my call,where Iva’s about to pee my pans for houlding it so long. MYnd you I ] dig everighhing my self when my meds kicked in.

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Sorry for the long wondtet story. We were tacking about with or with out anesthesia; they tell you there is no pain because no nerve endings in the brain. Well thy ly , not about the brain but about the tissue around,that hurts. You feel it. While is not sharp lt”s burning and very uncomfortable

Maja

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