Parkinson's Movement
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DBS Surgery “Awake or Asleep” that is the question?

Ive had it with dealing with the symptoms of this disease and I’m looking for some relief and maybe some normalcy at least for awhile, so I’ve decided to explore DBS. I have a consultation on 1/26 at Brigham and Women’s Hospital in Boston to evaluate if I’m a candidate or not.

I’ve heard from many on this site about success stories of DBS my question to the group is weather I should do the awake or Asleep method during surgery. I’ve read all the pros and cons of both just curious with what the group thinks.

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Both of my surgeries I was awake for much of the surgery. The first was all positive. The second, 2 1/2 years later was very difficult. The reason is I was totally "turned off" DBS on the first side, and off all meds. During the surgery, I experienced a lot of discomfort, dystonia. I had a hard time holding still and was actually afraid I was going to mess up the surgery. Ended up coming out of surgery in excellent shape. When I had my first surgery there were no symptoms on the second side...but from the experience I had I'm thinking it may have better to go ahead and have both sides done at the same time.

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I had both sides done, 1 week apart. I was awake for both. No issues for me in regards of being awake. I thought that it was an interesting experience.

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How long ago have you done it?

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Thanks for the response horsplay. How is your speech after DBS

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My speach is great.

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That’s good to hear. I understand some that have had DBS have had problems with there speach afterwards

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I had both sides done On the same day. It was done asleep and I had not problems after surgery.

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What year have you done it?

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It was done in Augustof 2016. It has made a huge difference in everyday living.

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That’s exactly what I needed to hear! I’m ready to do it now

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May 2014

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Thanks for the input gridless

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Thank you for your responses. I’m leaning toward the asleep option mainly because I’m a baby lol. If I can get both sides done at the same time I it think would reduce potential complications of going in twice.

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Asleep is best. Awake can cause speech issues like I developed (research based).

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Speech can be affected.... ive read the same research. Thank for shading

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If is wake it is not painful? Also I read articles stating anesthesia have some bad effects for the brain.

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The actual surgery is painless...we have no pain endings in our brain. My problem was dystonia/discomfort in my body as a whole due to PD (second surgery, early 2014).

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Just curios, do not have they to drill the skull? Also battery is stored in the chest underneath the skin and probably needs an incision. I taught that would be painful.

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Yes, they drill holes through the skull, but I was asleep during that. Was also asleep during the followup surgery to implant stimulators in the chest (one week following the installation of the electrodes in my head.) Of course, there was pain following both surgeries, which requires some pain medication for a period of time. Actually, I'd say I had more pain from the chest implant for a week or so that from the electrode implant due to them having to cut into some muscle.

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Naturally you are asleep for the placement of the battery. Yes they drill 2 holes in your skull. better to be asleep for all of it!

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Sounds like asleep is the way to go

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I only wish that I had had this choice

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I was glad to be asleep.

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I've had both sides done and they did not give me a choice... I was awake during both surgeries. It was strange experience but not painful. The only painful part was getting the halo screwed into my head, but the pain doesn't last. They did put me asleep for the battery placement. It hurts for a little while because they just cut you open and stuffed a battery into your body! But I am so glad I got it done, both surgeries made such a difference!

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