Parkinson's Movement
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Eating a good hamburger and paying the price for it.

Eating a good hamburger and paying the price for it.

Near my home is a place called Heff's that make the best burger i have ever had. But it comes with a price. I ate half of one with french fries and a few onion rings and a coke. Took my meds a hour later and took my next meds 4 hours later. Meds did not kick in completely until 1 hour after the second dose of meds. I was stiff and jumpy and felt like like sh*t. I know it is going to happen but i pay the price because i still want to enjoy the small things that this life has to offer.

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You're so right Bailey !

But maybe you should have wait for two hours after the last bite. That's what is mentioned on my box of pills : "half an hour before meals, two hours after meals".

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i so miss sandwiches at lunch. now i just have vegies and fruit. but i make up for it at dinner. alot of protein at 6:00 and to bed at 8:00 i think this is one of the worst things with pd - not being able to enjoy eating what you want and when you want it. and cooking too - on new years, i was checking to see if the black eyed peas were done, and i had to spit them out. because if i ate them before dinner, my next dose of sinemet would be useless.

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Happens to me every meal. I'll take a dose 1/2 hour before eating, eat after I feel the effects of the dose then look at the clock, add 1 hour then I can feel my medications wearing off. I'm supposed to take a pill every three hours that takes 1 hour to kick in and then lasts 1-1 1/2 hours and try to fit meals in. The math doesn't work. I suffer for 2-3 hours after( I have dystonia over my whole body). I've lost almost 40 lbs because i'm afraid to eat much. Basically cried after eating a full plate at Thanksgiving when I felt my meds wearing out. Had to go to my place in the basement while still hearing everyone else having a good time.

I do notice that sinemet EQ works a little faster then Stalevo after meals or snacks. I made the mistake of eating eggs for breakfast one morning, paid for that.

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I agree, it's near impossible to eat healthy and have meds work when you need to take them 3 hours apart. I think I survive by eating a few crackers here and there. Other times I get so hungry or crave something and I indulge, but usually suffer with meds not working.

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If i just snack all day with no actual meals i do good.

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I believe I have Dystonia. I have storms that come over me, gritting grinding teeth, muscle contractions, through my traps, arms, legs chest, back, like flexing really hard after lifting weights like when I was young. But these are uncontollable, hurt, sweat, wears me out. Last 5 minutes or - sometimes hour or two. Diagnosed with Parkinsons in May 2017. Getting no help from Drs, they are confused, Neurologist is a joke. Would not say anything to help, just said you have PD. I am getting worn out with my storms. So glad I found this forum, in reading your comment I saw the word Dystonia, saw it before in researching my problem, so I looked it up. Described to a T what I have been going through for MONTHS. No help from MD, thats why I read alot about my PD. Then reading about you, Dystonia again, looked it up....WOW thats me. Excited now I can tell Drs what I need. I would like to get back to you, see how you are doing. My name is Chad, I am 64 in June. Feel good other then my storms, which depress me terribly.

I have many ? I would like to ask you. Talk to you later if that would be OK. Good by

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Sorry for not responding sooner. Dystonia is the uncomfortable muscle tension or tightness. This causes me to freeze where I can't move. It's a symptom of PD. The only thing that stops it is when my meds start working. I take stalevo 50/200 seven to eight times a day. If you want to talk that, would be fine.

Dan

57yrs old

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You can enjoy a good burger. Just take your meds an hour before you eat a protein meal or take your meds 2-3 hours after. Sinemet competes with protein receptors in the gut. To get max effect out of your meds take on an empty stomach

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I have had a similar problem. We have a couple places near where I live that have fantastic Angus beef burgers. I take Sinemet on empty stomach and then wait an hour to eat the hamburger. A couple hours later, though, I need another dose of Sinemet. Recently, my neurologist upped my dose, because my off time was coming within just 2 and a half hours of taking Sinemet.

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In what way or ways does the simemet make you feel better?

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It relieves the tremors, stiffness, swallowing, and walking problems I have. My neurologist told me to wait half hour, to an hour, after taking Sinemet, to eat any protein, like a hamburger, because it can interfere with the effectiveness of Sinemet, in relieving my Parkinson’s symptoms.

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Seems workable. Same recommendation for intake of lots of meds--one hour before or 2-3 hours after. Best wishes

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I enjoy beef and eggs, but they drop drug efficiency for me. Going Vegan helps me, though I'm not crazy bout it. Is it all about proteins competing for absorption even 2-3 hours after your dose?

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I resemble that scenario after jalapeño cheeseburger at mom’s diner . Mmmmmmm good! But seriously Bailey if you can handle jalapeños whatever’s in them helps to relax the post Burger Jitter a little bit

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I had a Parkinson's free day yesterday. I got up at 3 am took my meds. Layed around till 5:30 am and ate two pieces of white bread toast with butter.Then i went to my son's house at 8 am and cut firewood and stacked it till 12 noon. Then i drove home (about 30 miles). For lunch i had a 16 oz soda and a few potato chips. Then back to my son's house at 4:30 pm for the party. For dinner (at 9 pm)i had 2 hot dogs and i had a 16 oz soda also.I snacked on some cheese caso. At 10:00 pm back home i went. I don't get any points for my choice of food but my meds worked perfect. No down time no pain. I slept for about 3 hours and i am writing this now. Keeping busy and eating very little for a 19 hour day seems to have been a good thing. I am a little sore and a little tired but over all i feel good.

Here's some links to our bonfire. We put 2.5 gallons of gas on it and that is my son trowing a road flare at it.

facebook.com/photo.php?fbid...

facebook.com/steven.e.kurtz...

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Low protein perhaps?

Or maybe being active and busy was the thing.

Either way glad you had a great day!

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Thanks

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My husband with PD eats pretty much what he wants when he wants as long as he can swallow it, and seems to have no particular effect from it with regard to his PD symptoms. He was diagnosed in 2012 and is almost 68 years old. I guess it is another very individual thing.

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