Parkinson's Movement
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Evening Disaster!

I don't often stay out late, but I'm part of a church choir that sings at midnight Mass on Dec. 24. As expected, I couldn't get myself relaxed enough to nap so I arrived at church feeling out-of-sorts. and my evening dose of meds was quickly wearing off. About 30 minutes into our repertoire, my left side stopped working, and my music folder started dipping into the violinist's hair in front of me - not just once, but MANY times. I couldn't manage the folder and turning pages, so I was rarely on the correct song. WHEW, was i glad when that all ended - and my apologies to the violinist were accepted. Note to self - avoid late nights! Merry Christmas!

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Paper is so hard to handle. Lovely that you can sing tho!!

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I had a hymn sheet problem this week too, when I was given a candle to hold in the other hand! After swapping between shaking paper and shaking candle a couple of times, the candle had to go. My seven year old grand-daughter managed hers much better.

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I'm laughing my head off over here, knowing exactly how you feel as the minutes click down and you know you're soon to start rattling something fierce. Paper is so noisy! Say, did anyone make a video of the service? I'd love to hear it!

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So would I

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No video to my knowledge. I’ d be very obvious in the first row of altos with my folder on the violinist’s head!

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How well I understand that! In the early years of my PD I was in a choir, too, and did some solo work too. I wasn’t nervous, but I still had moments of papers shaking, neck & hands shaking, where people noticed, so I gave up public appearances. This was before I was officially diagnosed and put on Sinemet. My GP suspected that I might have PD, but it wasn’t until a couple years later, after we moved and I saw a neurologist ( movement disorder specialist ), that I was officially diagnosed. After checking my medical records and hospitalizations for the previous 10 years, the neurologist determined that I had PD for at least 5-7 years before diagnosis. One time my eyes got blurry, and I misread some of the notes. It wasn’t funny at the time, but, looking back now, I see where PD was working it’s subtle, insidious way into my life. I had to get special glasses with different corrections in each eye, before I could really get rid of the blurriness. With the meds now, everything is much better, and I am able to do more things with music.

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