Why same time every day. : Why do i fall... - Cure Parkinson's

Cure Parkinson's

25,345 members26,644 posts

Why same time every day.

Bailey_Texas profile image
26 Replies

Why do i fall apart at the same time every day. Almost every day i get depressed and my meds don't work or work poorly. It was at night about 5 or 7 pm but it has moved to mid afternoon. I still take my meds at the same time as always. It will last for a hour or 2

Does this happen to you.

Written by
Bailey_Texas profile image
Bailey_Texas
To view profiles and participate in discussions please or .
26 Replies
laglag profile image
laglag

Yes, it used to be around noon'ish, now it's 4'ish. I don't get depressed, but my symptoms are worse. Haven't figured it out...

Bailey_Texas profile image
Bailey_Texas in reply to laglag

Thanks for your reply good to know i am not alone

Enidah profile image
Enidah

I used to call 5:30 p.m. my time of existential angst, when the feelings of being alone and hopeless would sweep in. I tried to do something positive at that time of day: dishes, yoga, whatever. But because it's the time of day where I'm pretty tired I'd usually end up in front of the TV, which isn't very helpful. Still, it's the time of day when my apathy and exhaustion set in and it's hard to motivate myself to do much else. So I try to keep things in perspective and remember it's just thoughts and it's just feelings and they too shall pass. I've been so busy the last few days with my 95 year old mother and my seven-year-old grandson and a late-afternoon boxing class, that I haven't had those feelings, but they'll be back.

adrienneb profile image
adrienneb in reply to Enidah

5 pm is my worst time also! I figure it must have something to do with just running out of dopamine, or steam, or something like that. Doesn't seem to matter when I take my meds. So I try to do what needs to be done well before then, and I try to avoid having social obligations in the evening. This disease is a bummer!

Bailey_Texas profile image
Bailey_Texas in reply to Enidah

Thanks for your reply good to know i am not alone

M1tz1 profile image
M1tz1 in reply to Enidah

How are you now, Enidah?

Enidah profile image
Enidah in reply to M1tz1

I am doing all right. Thank you for asking. Taking things as they come as much as possible. Looking at your profile I saw that you lost your husband a year ago. How are you doing? That can’t be easy.

M1tz1 profile image
M1tz1 in reply to Enidah

He was my best friend and we were married for 54 years so, you're right, it's not easy. Bless you for asking.

Don_oregon_duck profile image
Don_oregon_duck

I get the 4:00 pm blues quite regularly. Not every day but 4 out of 7. I can go into a down period that sometimes my 6 pm Rytary does not work,sometimes it does.

This next part is what I do sometimes when the 4 o'clock hits. I don't know if I should, and I can't ask my Neuro because he would say no. When I have a very important event to attend and the 4 o'clock hits, I will take one regular release cd/LD and I kick into high gear. I then take my scheduled Rytary at 6pm. I will be on for the rest of the evening.

Bailey, I didn't answer your question because there may not be an answer. It seems like many of us have a seceptable time of day for an off period. I have no idea why.

Bailey_Texas profile image
Bailey_Texas in reply to Don_oregon_duck

Thanks for your reply good to know i am not alone

Milo profile image
Milo

I too am a member of the 4 o’clock club. At about 4 daily is when I reach the end of my work day and lose it. It is like I haven’t taken any meds. The 6 o’clock dose can’t come quick enough.

Since this is when we are usually preparing the evening meal. It really makes it tough to help out. Then when my wife sees me she wonders if the whole day is like this. However, it does the same thing on the weekend so she sees that this is just how things are and we try to plan around it,

Bailey_Texas profile image
Bailey_Texas in reply to Milo

Thanks for your reply good to know i am not alone

DianeJ profile image
DianeJ

Last Thursday, when I saw my neurologist, he said lack of motivation and apathy are part of the disease. They are something that we need to be aware of and actively fight against. If we know these symptoms are common, we can, perhaps, combat them .

Bailey_Texas profile image
Bailey_Texas in reply to DianeJ

Thanks for your reply good to know i am not alone

alaynedellow profile image
alaynedellow

I used to work with the eldery in the Care business and late afternoon/ early evening was always a stressful time for alot of clients. It tied in with evening meal prep, kids home from school, husband due back from work. Just an anxious time of day. Maybe this help you. I always contented myself with just being forgetful- most of the alzheimers people I have met, including my late Grandmother were not aware they had forgot names they just gave you a new one. Those that worried about forgetting names never had alzheimers.

Bailey_Texas profile image
Bailey_Texas in reply to alaynedellow

I am retired and that time of day is not any more or less stressful. It that time i have been up for 12 hours and i think i am just running out of juice.

thanks

M1tz1 profile image
M1tz1 in reply to Bailey_Texas

Bailey, this was written a year ago. Has the wonderful success of your building project made any difference?

pjackson profile image
pjackson

Not every day, but when it does happen, it's mornings; I think it is because of the frustration I have when trying to do my grooming and dressing. I am overcome with frustration and it is a downward spiral from there on. It usually goes away after I can feel my meds kick in. After having a daily routine of getting up, getting ready for work and not being able to just "do what needs to be done", is depressing but one of those things you have to overcome the best you can. I wish I had a solution for us both. Hang in there!

Bailey_Texas profile image
Bailey_Texas in reply to pjackson

Thanks for your reply good to know i am not alone

park_bear profile image
park_bear

Are you taking a multivitamin or any supplements at lunch?

Lionore profile image
Lionore

Four o clock is a bad time for me as well. I take reasonable short cuts for preparing the evening meal, and take my last C/L around 4:30. My friends are well aware that I don't do nights. Fortunately my SO likes being in bed early and not going out. We usually watch tv in bed and turn in around 9:30. The problem also is in the morning. I take my first C/L along with the rasagiline and supplements upon arising. Getting showered and dressed is tough, but by the time the half hour is up and I can eat breakfast, the C/L has kicked in and I am ready for food and the gym. I keep telling myself that occasional feelings of extreme fatigue, apathy and depression are temporary, and they do pass.

Bailey_Texas profile image
Bailey_Texas in reply to Lionore

I tell myself the same thing but in the moment i just feel like my world has come to a end.

Thanks for your reply good to know i am not alone

Bailey_Texas profile image
Bailey_Texas

Thanks for your reply good to know i am not alone

pjackson profile image
pjackson

Oh, yes it does. And even knowing that the frustration and depression is because of the absence of dopamine does not enable me to "think" my way out. It's only when I feel the dopamine "kick" in again do I get relief from my feeling of hopelessness. I suppose in part I am in a sheer panic believing that one day, the meds will not bring a reprieve. I apologize for what maybe perceived as negative; it's just what I've come to believe "degenerative" means. But in the meantime, I have many, many things to be thankful for and to delight in . . . if nothing else, this disease has taught me that life, every minute, is to be celebrated. And if we must walk this path, that we walk it with many others.

Cbgs profile image
Cbgs

Best advice I can give is

take a cat nap if u can

Or lay down and rest your body

Our bodies need a break

Hope that helps

Regards

C!

Yes , nothing gives greater kick than success . So do you find any improvement in your health -- physical as well as mental with the joy of making your nest with your own contribution .

You may also like...

Parkinson's and RLS at the same time.

just have to suffer? I have read many times that RLS does not automatically lead to Parkinson's

Appreciate every blessed day.

is going to be reminded of that every day, every second of every day. Stopped is retracing your...

Question I ask myself at the end of every day

At the end of every day , I ask myself what have I done to fight back PD? Then I check apps on my...

why does an antibiotic improve my PD symptoms BIG TIME

Resveratrol - a lower dose every other day is better

collection and started a lower dose (<500mg) every other day to monitor long-term progress. 50...