Webinar on updates in PD Research & Meds

[Michele11]

Here is a recent webinar my neurologist did on updates on PD research and new medications.

youtube.com/watch?v=z9pTRDI...(Not working as expected?)

[parkie13]

I thoroughly enjoyed it thank you for posting. I'm curious would you mind telling me what medication you are on. He sounds like he's very much on the ball so I just wanted to know thank you Mary

[Michele11 in reply to parkie13]

I am on the usual Sinemet. I got diagnosed 3 years ago in my 40's, but now I know what it is I can recall symptoms in my 20's, but no one thought to send me to a Neurologist back then and they said the symptoms were due to stress. I believe that he kept me on the Sinemet after diagnosis because by that time I was already stage 1-2. It still took the average 1 year under his care before he changed my diagnosis from weakness to PD.

As it goes with Sinemet (Lev/Cab) I started with 3 pills a day and now I am up to 9. My doctor works with an excellent Nurse Practitioner who specializes in PD. Most of my visit is spent with her. I don't mind because she has more time to spend with me and is more "personal". I definitely will be asking him about a few of the possible preventative medications that he talked about in January.

I hate taking medication, but I try to balance it with other holistic practices like Acupuncture and Yoga.

[Xenos in reply to Michele11]

Hello Michelle,

And what if it was really due to stress? For sometime I wonder of PD is not a biological consequence of chronic stress.

There are medical publications about that. For example this publication.

jnnp.bmj.com/content/85/8/8...

There are many others

[Michele11 in reply to Xenos]

I agree that stress does play a big part. Thanks for the link it was an interesting article.

[Cbgs in reply to Michele11]

I too was up to 9 pills/day

I switched to the ext rls c/l in August .... wish I had done it sooner

Much more of a smooth day

Less extreme ups & downs

C!

[Michele11 in reply to Cbgs]

How many of the extended release do you use now?

[Cbgs in reply to Michele11]

I take 3 to 4... depending on how the day goes: depending on how early I get up, and if I'm going out at night or staying home.... so in the end I'm still taking the same amount of c/l .. just every 4 hours instead of every two.. and less highs & lows.

I also break them in half if I feel I'm too on, which can/does happen rarely.. but then it's not really extended release cause I've broken the "seal", but it's still better than the immediate release.

To offset the c/l induced dyskinesia, I also take Amantadine 3x/day

Does that help?

Hope you're having an ON day!!

C!

[Cbgs in reply to Cbgs]

ps: I occasionally supplement with the Immed Rls... like today.. I took the ext rls pill at 9:30 am... It's still hasn't come "on".. so I just took an immed rls c/l

C!

[Michele11 in reply to Cbgs]

Thanks for the information.

[Farooqji]

Chronic stress is one of the main thing which medical community is ignoring constantly as a contributing factor towards developing PD