Parkinson's Movement
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Mannitol and reflux

Since I most likely have lpr I am wondering if anyone else has this after taking Mannitol. Given the amount of gas the stuff produces I wouldn't be surprised if it put extra strain on the tract.

I should say though that my older brother has this so it is much more likely just to be your body just naturally falling apart. Also one of my office co-workers has just had this and she is 48. We are all fond of a glass of wine or two (this is Britain where quaffing alcohol is virtually mandatory for the middle aged middle classes).

Interestingly I read that some people have been cured from reflux by a regime including melatonin.

But then I read someone saying that they thought that Melatonin may have triggered their lupus. Also it is not good for rheumatoid arthritis either.

My take on this - I will take 1mg of Melatonin at about 7 at night. This should be a small enough dose to be beneficial, but not enough to trigger any other nasties. Melatonin has never really helped my sleep that much.

I will continue to take Mannitol as I still think it massively helps stop and even reverse my Parkinson's progression.

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Alexask,

Your profile says you haven’t yet been diagnosed with Parknsons. but here you write “I will continue to take Mannitol as I still think it massively helps stop and even reverse my Parkinson's progression.“.? ?

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You are right.

Also from my profile:

Symptoms:

"Lack of sleep (waking up an hour after getting to bed, then trouble getting to sleep again), lurid dreams (which you remember because you wake up during them), deteriorating handwriting (signature all over the place), slowness of typing, orthostatic hypertension (dizziness when standing), starting to lose my sense of smell, constipation , declining voice ( terrible at singing and quieter) grumpy face and the beginnings of a tremor. "

These symptoms are consistent with Parkinson's. And I can't find anything else they would be consistent with.

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Well PD is notoriously difficult to diagnose so your self diagnosis needs to be checked out. Your symptoms are not what I would see as classic pd. after my 10 years of living with it.

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PD can be different for different people. But if you have a look at all the symptoms on the web many correlate. But my symptoms are no way severe enough to warrant a diagnosis at the moment and I would rather they never were.

But had I not switched to Mannitol I would be journeying much further along that path IMO

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Yes I agree of couse that symptoms vary but there are also some symptoms that we all share and which are the basis of diagnosis.

It is interesting that you are treating a condition you havent been diagnosed with. In that case it will be difficult to prove you have reversed or halted pd when there is no proof you ever had it.

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In case anyone is wondering "What is lpr?", here is intro from Wikipedia entry:

Laryngopharyngeal reflux (LPR), also known as extraesophageal reflux disease (EERD),silent reflux, and supra-esophageal reflux, is the retrograde flow of gastric contents into the larynx, oropharynx and/or the nasopharynx. LPR causes respiratory symptoms such as cough and wheezing and is often associated with head and neck complaints such as dysphonia, globus pharyngeus, and dysphagia. LPR may play a role in other diseases such as sinusitis, otitis media, and rhinitis, and can be a comorbidity of asthma. While LPR is commonly used interchangeably with gastroesophageal reflux disease (GERD), it presents with a different pathophysiology.

LPR reportedly affects approximately 30% of the U.S. population. However, LPR occurs in as many as 50% of individuals with voice disorders.

Source: en.wikipedia.org/wiki/Laryn...

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Raising the head of the bed 4-6 inches (above the foot) helps with reflux at night. No drugs. Less snoring. You get used to it really quickly.

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Many of us, who have been diagnosed with PD, by a movement disorders specialist, a neurologist, and have been put through numerous testing procedures, such as the Cardo/Levodopa trial run test, had spent years living with undiagnosed disease, having symptoms that were early signs of Parkinson’s. It is very difficult to diagnose. I, for one, did not self diagnose myself, but I knew my body was telling me something was terribly wrong for a number of years. We lived in a small town, where there were no specialists, and some of the subtle signs of neurological degeneration that I had, over a period of about 6 years or so, were not picked up on by my General Practice Physician. For example, I had essential tremor, which he said was benign; however, it worsened and, when we moved to a large city, and my Family Practice Doctor saw stiffness, rigidity, and resting tremor in one hand, in addition to the essential tremor, I was referred to a movement disorders specialist, a neurologist, who promptly tested me and went over all my medical history and records. The Neurologist figured that I had had PD for a number of years, and was already past the beginning stages, so I was put on Sinemet etc. Now, I can discuss this in a forum, such as this. Before, with no professional medical diagnosis, I didn’t feel comfortable publicly stating anything to do with self diagnosis, because I have no medical qualifications. My experience shows that my body was telling me something was really wrong, and that I needed to find out what that was. My motto is “Knowledge is Power”! Pursuing an answer, when you have a gut feeling that something is really wrong, with your health, should be welcomed by professional medically trained personnel, in my opinion. I would recommend, however, to always seek out a diagnosis from a professionally trained medical specialist, because disease, such as neuro-degeneration, is very complicated, and for each person it takes an individual course and variance of progression. My problems with slow swallowing, reflux etc. are directly related to neurological signs of disease, according to the specialist, for example.

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I believe PWP are not supposed to use Melatonin

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Why not? Please explain...thank you!

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I can't remember exactly where I read it, but I've read it a couple of times. I'll check my online history for an article

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Hi are you still using mannitol & is it helping --kindly give an update

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