Hello, I am new to the community here. I have had YOPD for 10 years and was diagnosed in June of 2017 at age 26. I am currently in the moderate stages of the disease.
After my diagnosis I encouraged my wife to come to doctors appointments and read about Parkinson's. After three weeks she decided she couldn't be happy being married to me. The personality changes I had already started to have was just too much for her to handle. I understand completely. During the previous few years before my diagnosis I had started to withdraw from family, friends, and my wife. I was so focused on keeping my job and just trying to survive that things around the house began to fall behind. After work I would come home and just sit on the couch exhausted and fatigued. My diagnosis changed everything.
I have been diagnosed with many different things that really didn't make sense. After talking with my neurologist everything started to make sense. Depression, Anxiety, the tightness and stiffness, the speech problems, and the movements all made sense. In some ways the Parkinson's Diagnosis felt like closure. Currently I take 100mg of Amantadine/x3 a day, .5 mg of Azilect x1/day, 2mg of Trihexyphenidyl/x1 night. I am dealing with symptoms with the goal of holding off Levodopa as long as possible. With these medications I have been able to continue with my job as a engineering manager for a SF tech company. Dealing with medications and how they affect my personality has been a huge management learning experience but one I seem to be adjusting well to.
Parkinson's changed my life. It has taught me to live everyday to the fullest. I look at the future not in a negative light but something that pushes me to accomplish as much as I can, while I still can.
The three things my dad taught me as a child push me forward.
1. Never Give Up
2. Find what you love and be the best at it
3. Every day is a new day, forget yesterday's negativity and make the best of what you have today.
I refuse to give up, I refuse to let Parkinson's beat me. I refuse to limit myself. I will never give up.
Parkinson's has already taken so much from me. Now that I know what the enemy is I fight back.
I am very open at work about my diagnosis because it is obvious I have PD. If anyone has any advice for Dating with Parkinson's and how to manage symptoms at work I would love to hear it.