Husband can't walk at all.

[M1tz1]

My husband had ankle degeneration from ultra-distance marathon running and had to walk with a stick. It recently became apparent he also has Parkinson's. Now he cannot walk or even stand with his walking frame. He's on Madopar. Will I be able to get him walking again? Even seated exercises for Parkinson's are outside his ability.

[silvestrov]

Is the problem osteoarthritis? Does he have tendon problems? Or are there other problems?

[M1tz1 in reply to silvestrov]

Nothing else since the Parkinson's was diagnosed. He has balance and rigidity problems (was a very tall man--6ft 3inches). Was in hospital recently for over a week and since then his few steps with a walker are now none at all. Thank you for your reply!

[silvestrov in reply to M1tz1]

I was asking about OE and tendon problems because they are possible to treat. I fought off osteoarthritis 3-4 years agoand there sre a number of treatments including DMSO:

youtu.be/4XEt0n6LPrk(Not working as expected?)

[M1tz1 in reply to silvestrov]

Bless you, Silvestrov.

[NRyan in reply to silvestrov]

I am going to try it for my on-off tennis elbow. What other treatments have you tried for OA?

[silvestrov in reply to NRyan]

When using DMSO it is important to have no skin lotion or any chemicals on your elbow because DMSO will draw the chemicals through the skin into your blood stream. The following video/punk song mentions mixing lemon juice/lsd with DMSO (and arthritis):

youtu.be/K2M_fQnVqew(Not working as expected?)

After the treatment is finished after 20-30 minutes (when the skin is dry) wash it with cold water then treat the area with either 100% aloe vera or extra virgin coconut oil because the skin will be irritated from the DMSO. (DMSO stings and itches the skin).

Unsaponifiables, oil from soy and avacodo, is used to treat OA in Europe:

ncbi.nlm.nih.gov/pmc/articl...

The herb Scutilaria baicalensis has a component called baicalin and there is a OE product called Limbrel which contains baicalin.

limbrel.com/

There are 3 cases of associated liver problems of OE sufferers when using Limbrel.

ncbi.nlm.nih.gov/pmc/articl...

So if you have liver issues either do not use Limbrel or supplement it with milk thistle.

ncbi.nlm.nih.gov/m/pubmed/2...

Baicalin can be purchased online:

liftmode.com/baicalin-powde...

[M_rosew]

A Neuro-Physiotherapist might be a good way to start. S/he should be able to help with the PD and recognise any orthopaedic problems.

[M1tz1]

We don't have Neuro-physiotherapists as such in South Africa but he was attended to by a physiotherapist in the Neuro ward at the hospital where he was a week ago. His blood pressure had plunged so low that she could do very little with him.

[Mike1942]

Try sports massage. It keeps me alive and well. It is possibly a little more strenuous but I can assure you of its efficacy.

[M1tz1 in reply to Mike1942]

Sorry to sound so dim. I'm 82 and have kept active but I don't think I ever had sports massage. If I'm not a nuisance, could you give a few pointers?

[Mike1942 in reply to M1tz1]

Re Sports massage. It is far more strenuous and invasive. But conducted by an expert is definitely effective. Best of luck. Mike

[M1tz1 in reply to Mike1942]

Thank you, Mike. I hope all goes well for you!

[ddmagee1]

I have severe arthritis in my knees and shoulders, partially from heavy exercise. I have PD, also, and, between the arthritis and bowlegedness and pain, and PD, and disc degeneration in my back, walking has become quite a chore. It’s important that your husband be thoroughly evaluated by a neurologist ( preferably a movement disorders specialist), and an Orthopedic specialist, like I have. Perhaps, you have already done this. My neurologist has me on Sinemet, and my Orthopedic Doctor has given me steroid injections and would like to do joint replacement surgery. The Orthopedic Dr. prescribed a walking stick and a walker at times, when needed. I also have balance problems, from Ataxia and PD. Rehabilitation therapy is sometimes a big help, if recommended by a physician. The PD makes me very stiff sometimes, so I have to balance my Sinemet doses out carefully. Perhaps a brace, recommended by an Orthopedic Doctor, could help too. Good luck! Wishing you the best!

[M1tz1 in reply to ddmagee1]

Thank you so much for your kind advice, ddmagee. His neurologist had him on Sinemet but it sent him to sleep as if anaesthetised. Now he is on Madopar. It also makes him sleepy but not as much. His muscles are rigid. I think that's why he can't walk. He also has a balance problem. I am so touched by the friendship I have encountered here.

[mistydog1 in reply to M1tz1]

Sinemet made me really sleepy! I have since been switched to Rytary and I no longer get that sleepiness feeling and when I am on none of the side effects like painful dyskinesia I had with Sinemet. Rytary has been out now for about 2 years.

[M1tz1 in reply to mistydog1]

Thank you, mistydog 1. I'll speak to the doctor about it. Bless you.

[ddmagee1]

I have great difficulty walking when my muscles are rigid too. That’s where the Sinemet really helps, for me. When my balance is really off, one would think I was a drunk. HaHa! I have to hang on to anything around me for support. Using a three prong cane helps me with balance stability. It’s great to have new friends with this forum. Thanks for your reply! Wishing you and your husband the best!

[M1tz1 in reply to ddmagee1]

And all the best to you, too. Thank you again.

[Kwinholt]

I’m sorry to have just read this post. I too am an ultra runner and after a hysterectomy for cancer I couldn’t walk let alone run. I thought it was from the surgery , it was not. My foot was twisting sideways and locking in place and felt like I couldn’t move it. I was given carbadopa/ levodopa and within 2 weeks was back running again . I was diagnosed with PD five years ago and also confirmed with a DAT scan because I didn’t believe it. I also take azilect in the morning and add Comtan during the day . I receive Botox in my leg that had the severe dystonia every 3 months too. I am still out there running my ultras and adjusting my meds as you need more when you are very active. I hope you have found what helps for your husband to get his mobility and strength back . Keep positive .

[M1tz1 in reply to Kwinholt]

Sadly, Kwinholt, my husband died in January. Thank you for taking the trouble to write. Bless you. This is a wonderful group of people and I have remained in touch daily because of their kindness. I hope things go increasingly better for you.

[Wayakka]

M1tz1 I’m sorry to hear about your husband😢

I actually came across your post searching for other people with PD what stage there’re try to gauge where my father is at because in the last year I have seen him go from a man who could go catch buses do everything to now in a wheel chair unable to do much for himself and it’s heartbreaking and I feel hopeless!

Any advice would be greatly appreciated and wishing u all the strength and condolences once again I can’t even imagine 🙏🏾

[Wayakka]

My dad was only diagnosed in January after a fall and since then he hasn’t been the same even in the last four months whilst in hospital and rehab he was unable to walk today only 3 steps without and that he struggled with ! I can’t bekieve how fast and how I have seen him detioriate and he’s also imaging things has been for most of the year sorry it’s very hard to see I didn’t know what was wrong but could see these changes miss and undiagnosed mini strokes last year Has caused his vascular Parkinson’s but the last 6mths he’s changed so much a different man he’s 75 next month sorry to go on 😐 it’s been really hard

[M1tz1 in reply to Wayakka]

Thank you for your condolences, Wayakka. I can imagine how you are feeling. My husband was 80 when he left us but he was always such an athletic man, which makes it hard to accept. Praying for you both.

[Wayakka]

thank you it did help me a lot to talk to you thanks again for your reply and prayers xo