I have been a regular contributor on other communities but want to know if this is the place for me?
I have a number of Co-mobilities but the main ones is my HIV ( on treatment and now Undetectable) my Hepatitis C ( no cured after treatment with one of the new medications costing the NHS £39’000 ) and my chronic pain, not to mention the mental health issues.
25 years ago my grandmother was diagnosed with Parkinson’s, I moved into her small flat for two years to give her support when needed. But once dementia became too much for her. She moved into a nursing home where she could have the 24 hour care that she required.
My mother who is now 73 years of age ( I am 53 ) has had mobility issues for the last year or so. And finally at the end of October was diagnosed with Parkinson’s. She is now on medication and things have started to become easier for her.
My worry is with both my Grandmother and now my Mother having Parkinson’s, what are the likelihood that I will get it? Hence the title of this post “is this the place for me”. I ask if anyone in this community knows more than I as a mere onlooker.
Written by
SimonHM
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Hi Simon you really have a lot on your plate this is the confidential helpline for people with Hep C if you don't already have it? 020 7089 6221. Support group information Hepatitis United Group (HUG) Patient Support Group King's College Hospital, On the 3rd Tuesday of every month, call 020 3299 5802 for more information. Location Greater London, Email kch-tr.hepatitisservice@nhs.netPaincommunity.org is another good site for help to manage your chronic pain which in turn can help with mental health issues. I always believe long term health issues have a partner with mental health as both belong as one.
Parkinson's disease is an awful condition to have however can be well managed, its unusual for it to be passed down from parent to child, most of the time cases of Parkinson's are not hereditary. Sometimes people who are diagnosed with Parkinson's disease earlier than the average of diagnosis are more likely to have inherited it. Having a family history of Parkinson's disease may increase the risk that you will get it.
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