Hey all. I've read some research over my time with PD on gamma and alpha light therapy. The papers didn't seem too positive as regards its efficacy but I have some close friends who have had some very good results with this. One had PD and the other early Alzheimers. Note that the former is correctly described as HAD and not HAS. He's one of those lucky people that - via application of alternative medicine and neuroplasticity - have actually managed to achieve a way out. Been given his driving license back by the government and everything. Takes no meds. But, his recovery was due to other things as well as light therapy. Nevertheless the latter person definitely had Alzheimers (early stages) and used the light therapy alone to stave off the disease. These people had nothing to gain via their respective stories and imparting the knowledge to me. I have total faith in their experiences.
So, what am I waiting for? Nothing other than the $1749 it takes to buy the Vielight Gamma headset that achieved the above! But there is some good news for those of us who would struggle with such a price. Somebody has created a blog (offers visuals) on how to create such a contraption at little real cost to one's purse. I offer the link below and wish those of you who have an adventurous and open minded outlook well! I'll probably need to get a more technically/practically minded friend or two to give me support in construction but I have little doubt that it's an avenue worth exploring considering the main components seem reasonably cheap. Wish me luck.
On the Vielight, they do offer a pretty good deal actually: if you're unhappy with the product after 6 months (as regards it's effects on your symptoms), you return and they refund 80% of the cost. Who can argue with that? Expensive but and honourable offer from the firm I reckon.
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Hi Jeeves 19, Coincidentally I just found the redlightsonthebrain.blog site and I have started to look for the equipment - a slow task for me...I am cautiously excited and if anything changes in the next 6 months I will be shouting it from the rooftops. cheers
The interview is very long and technical, but there is a brief mentioning of PD at 1:00:05. Dr. Mercola seems to be advocating use of a cheap $27 infrared 10watt lamp from amazon which he moves around his head, however Dr. Lim suggested to have the lamp at the back of the head where striatum nigra is.
Hi Jeeves. Thank you so much for putting this on the blog. I am currently reading The Brain's Way of Healing by Norman Doidge. There is a chapter on rewiring the brain with light. One woman in the military had many brain injuries from rugby and skydiving. MRI showed her brain had actually shrunk. After 4 months of light treatment she went off disability and could function as long as she received the light treatment. There are various stories of people receiving light treatment, but this contraption you have mentioned can be used in your own home. Great!
I am lucky enough to have just received some funds from an inheritance. If it doesn't work after months I receive 80% of my money back as long as I purchase it direct. I will give it a go, though listening to Drs talk on the website, for PD it should be placed close to the substantia nigra. I will contact them and see if I can wear it slightly differently.
You mentioned your friend who had PD used alternative medicine and neuroplasticity. What were these methods? I am still in early stage and with the help of my Neurologist have gone from 1000mg of Stalevo per day down to 200mg. By Xmas I will be off medication just to see how I go. So far I feel great. I have my energy back. Before I would do something small and have to rest. I have my life back but am worried about what the future holds. We must keep looking for ways to help ourselves and control our lives. Best of luck.
Well he chose a hobby he'd never done before that required total concentration then applied himself to it 3/4/5 hours 5 days a week. But what about you? How did you manage such a reduction in drugs? That quite an achievement in itself eh?
When I was initially diagnosed I had a tremor in my right hand/arm. I was put on medication which I wasn't happy about. I tried acupuncture, medication, homeopathy etc and eventually gave in to meds. I didn't feel great so I was changed to Stalevo. I crumbled before each tablet was due so the dose was increased. I ended up on 1000mg per day. The more I had the more I seemed to need, but I was constantly tired and nauseous. Didn't like coffee or white wine any more! Stalevo had started causing dyskinesia, unwanted movements. My fist would close and my arm twist back a couple of times first thing in the morning. That was the final straw. I read John Pepper's book and am half way through Norman Doidge's The Brain's Way of Healing which talks of light therapy.
I told my Neurologist I wanted off the meds. When he realised I was adamant, he said he would be interested to see how I was without medication. I reduced by 1 tablet and then 2 weeks later another tablet. Sometimes I would wait 3-4 weeks until I felt comfortable to drop back again. Once I got to a certain level I visited my Neurologist and he dropped the strength of the meds. I was on 200mg 5 times a day. Now I am on 100mg twice a day. In 2 weeks I will drop to 1 tablet if I am comfortable with that, otherwise I will give it a few more days or weeks.
I now have my energy level back, no more napping through the day. Enjoy 1 cup of coffee in the mid morning and a glass or 2 of a dry white of the evening. I can stay awake until 10pm at night. I can now socialise again at night. This certainly wouldn't suit everyone, but for me it suits. I wouldn't attempt this without my Neurologist's guidance.
I believe my PD was caused by 3 years of anxiety created by an unpleasant aggressive alcohol fuelled neighbour. He has calmed down a bit, we have erected a massive fence and I feel better. Anyway, contacted the makers of the Vielight Gamma and received an email back recommending which machine is best for me and the time to use it. If after 6 months it has no effect I get 80% of my money back as long as I have bought it direct from them and not through Amazon or Ebay.
Eliza. You don't really say how you achieved this. I dislike the meds too but find that without them I'm slow, twitch, spasm and quiver. Have you alleviated your symptoms or tolerating them ?
My symptoms aren't severe. The funny thing is the tremor was my only problem initially. Now that I'm nearly off medication my movements are slow, my right leg drags a bit so I have to concentrate on it but my tremor is hardly there. I find the fast walking and exercise helps me generally, but I have been busy doing other things for the last week and am paying the price. I need to get back to the walking and exercise. I guess I am tolerating my symptoms. They are preferable to how I felt on medication.
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