What i have done in the last 12 months. - Cure Parkinson's

Cure Parkinson's

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What i have done in the last 12 months.

Bailey_Texas profile image
25 Replies

Parkinson's has made me a driven man. At the end of each day if i have not repaired some thing or helped some one i feel like i have wasted a day of the few i have left. I may have 20 years to live or 20 days who knows. I just can not set still for more than a hour so i just get up and do some thing.

In the last 12 months i have bought and repaired and sold 62 riding mowers. All at the lowest price of any one around. I installed 1300 sq ft of tile in my home. Painted the out side. Maintained 2 acres that my house sets on. Built a mower to tow behind my riding tractor and now i can mow 8 ft wide . It takes half the time to mow now.

Helped my son install cameras on his house. Installed stone on my girls fire place it was 12 ft high and 6 feet wide. Tiled counter tops and back splash in my daughters home. Jacked up my brothers house. Had to drag 50 pound jacks 30 ft in a 12 inch crawl space. I also took four 150 pound angle irons with me to reinforce the beams.

Took me 3 days.

Went to my neighbors farm and replaced a water pump on a old ford tractor. Took me 12 hours.

I also work out 3 or 4 times a week.

Yes i have had Pd for 12 years.

Today was a bad day. I was and am stiff and slow just could not get going. Made a trip to the store but not much more.

Tomorrow will be better.

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Bailey_Texas profile image
Bailey_Texas
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25 Replies
KemptonD profile image
KemptonD

Is there something In the water you can bottle and distribute this way?

Prayingforacure profile image
Prayingforacure

Great determination, my husband for many years said mind over matter, I think it helped him to push on. God bless, prayers you are able to keep doing anything and everything your wants are.

Bailey_Texas profile image
Bailey_Texas in reply to Prayingforacure

Thanks

mishod profile image
mishod

Well done! I similarly felt very motivated both at work and at home. I hope feel the same way in 11 years!

Bazillion profile image
Bazillion

Hi Bailey a man after my win heart!I still do every thing I used to it just takes a lot longer. This summer renewed the kitchen and bathroom in our rental property,laid a new patio, replaced the fence, plus a host of other chores.

Had 6 km walk yesterday,Off out now for a powerwalk only 40 mins but it does help. Tennis tonight, bike ride tomorrow.

Whilst PD is living with me it's not controlling my life,I am!

Bridielena profile image
Bridielena in reply to Bazillion

I fear it will so have plan B. Sorry but I have had to resort to B after feeling just like you many years ago now....12.

Isthistheone profile image
Isthistheone

Bailey you are truly an inspiration to more people than you realize. I enjoy reading your action posts. Not many can go at your pace. The greatest, Mohammad Ali, said it best - "Don't count the days, rather make the days count." You are one of the best. Thank you.

AmyLindy profile image
AmyLindy in reply to Isthistheone

Ditto

felixned profile image
felixned

Bailey, Thanks for the inspirational message. I swear it made me feel better. I am only on my year #3 into my PD journey but sadly I lack your enthusiasm.

Bridielena profile image
Bridielena

My life just opposite, No life really. Nights are scary, No mobility Uncomfortable sitting, laying, walking standing. It’s a living nightmare.

So much pain, especially in shoulder from all day Dyskenesia.......Cortisone shot no relief.

Nothing I read here genuinely helps. I continue to read though because have to occupy my mind as sleep is a thing of the past.

Not badly depressed as I work hard to prevent that. I figure if depressed then no hope at all.

My reality and no sugar coated words fix it. Definitely not a Pollyanna.

Meds .....MADOPAR Sifrol ER. all day as I have a kitten to look after. She’s adorable. Rely’s on me so I have to take the wretched stuff.

Hard to type now but I do think clearly. Wish I could be upbeat but you all know where I’m coming from .

I wish wish wish wish but have to accept wishing will not change things.

Wish some one would make me a coffee ....."goodee”. It’s 4 am. Only a couple of hours to go to daybreak. Watch TV....maybe......read..maybe Play music .....yes

GIVE UP NEVER

grower profile image
grower in reply to Bridielena

Sorry you've got it so tough Bridielena

ddmagee1 profile image
ddmagee1 in reply to Bridielena

There’s no doubt that PD is tough, especially after the initial stages! Every day my shoulder bothers me, and peripheral neuropathy is with me always. Pins and needles, pain never goes away. In the early stages, I was able to deal with this better. I do understand a little about what you are going through, Bridielina. I’m sorry that you feel the way you do. I do, too, at times. However; I use music to distract me and get my mind on other things. I try very hard to not dwell on what I’ve lost, and it is scary, thinking about what the future holds, so I try not to dwell on that either. I concentrate on things I still can do, and challenge myself to move around more, even though it’s so painful. Sleep is very difficult for me, and sleeping pills are not the answer for me. You are right, wishing does not change things. It seems like the only people that really understand are others that have this very complicated disorder. Let music carry you into another realm and just enjoy! We must find ways to get through this and never give up hope!!!

Bailey_Texas profile image
Bailey_Texas in reply to ddmagee1

i am better able to deal with the mental aspects now. At first it was hell not knowing what was happening and what was Pd and what was side effects.

janers profile image
janers in reply to Bridielena

May I suggest breathing techniques and meditation for you to help. Art of living is a wonderful program which offers a happiness course where you can learn breathing techniques that really help! God bless you

ddmagee1 profile image
ddmagee1

Bailey, Yes, Parkinson’s will do that, if a person has the ability, depending upon where one is at in the staging process.

I find myself doing and finishing jobs that I could not just 2 years ago. Strike while the iron is hot.

NRyan profile image
NRyan

Thank you for sharing! I have done more in the last three months than all last year. I am procrastinating a bit and you have pushed me forward!

Bailey_Texas profile image
Bailey_Texas in reply to NRyan

Your Welcome

DEAT profile image
DEAT

Thank you for the post Bailey. You are an inspiration and encouragement.

You have instilled in me the "move move move" mantra.

Thank you.

Bridielena profile image
Bridielena

Bailey

When I’m on I move move move....housework mainly but I don’t stop so I call that exercise....drive sometimes but have to be careful and not go far from home. To local supermarket and pharmacy about 3 minute drive.b

Bailey_Texas profile image
Bailey_Texas in reply to Bridielena

Great it all helps

janers profile image
janers

Thanks for the inspiration! I really pray that everyone feels better today. At least in their soul if not their bodies. Amen

racerCP profile image
racerCP

Sounds like Superman; pardon my skepticism. Too much for even someone who is in the prime of life to accomplish, or even attempt.

Bailey_Texas profile image
Bailey_Texas in reply to racerCP

Sorry but i did every thing i wrote and more.

I just don't say i can't i just do what i have to do.

racerCP profile image
racerCP

More credit to you. On paper sounds too grand to be true.

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