I was diagnosed 18 months ago and have stayed off the Pharmaceuticals up till now.
I am 65 and I live in Australia, home of a myriad of opinions froms very conventional neurologists to CBD oil proponents. I am traveling to the UK for a month next week.
I am interested in being the guinea pig for any trials not only for my sake but in the interests of helping others (that would be great). So if you hear of anything please let me know.
My symptoms are progressing so resting tremor, night terrors etc. I am now ready to take conventional medicines to give it a try. I will continue to take the exercise route.
I went and had baseline testing for a new trial, the neurologist is well respected but gave me no hope of a cure anytime soon.
I left depressed. No doubt he wanted to spare me any false hopes but frankly hope, whether false or real is what keeps me going. I love to hear progress and new discoveries.
So if anyone has any good news stories please let me know I really get a lot out of your posts thank you, it keeps
dancing rather than drinking.