Transdermal Patches

[charlton]

Been asked by consultant to try Neupro 4mg/24hr transdermal patches (Rotigotine) anyone tried them?

[valk]

I have been using 2 x 6 mg patches per day for almost a year and have had no problem apart from when I get too warm they can itch like mad. I also find it difficult to find a place to put them. Good luck with them.

[annmariebaird in reply to valk]

With my neuro's permission, I cut the 2 mg patch into 4 sections - hardly any side effects and much easier on the body to start low.

[Skymom2008]

Yes, have used it for years 8 mg it is good.

[Palace69]

Used them for three years.difficult to find a place on my body that wasn't sore.aiso very itchy in the heat.The Parkinson's nurse changed them, now take Oprymea in it's place.much happier.

[Jlloy5]

I've been on 4mg of Neupro for 4 months, and it has helped me immensely. I didn't really see a difference for about 2 months. It hasn't done much for tremors, but it helps me move so much easier. I had difficulty washing my hair, driving, getting dressed, etc., and it has been a life changer for me. I have no trouble with these tasks now that I'm on the Neupro. I change the patch diligently every 24 hours and use tegaderm tape to keep it from coming off during these hot months with sweating and swimming. The tegaderm seals it very well. Here is a link to what I purchase: 3M Tegaderm Transparent Film Dressing, Picture Frame Style, with Label, 2-3/8" x 2-3/4" amazon.com/dp/B001QFC1FA/re...

It may feel itchy on occasion, but nothing that has become bothersome.

[Taranto98 in reply to Jlloy5]

Thanks for the tape information. I have been using them for 8 months and occasionally would like to add tape. The tape I have been using is not flexible enough.

[Jlloy5 in reply to Taranto98]

The tape works great. I don't know what your dose is, but that particular size tape will fit the Neupro patch up to 6mg. It isn't big enough to thoroughly cover the 8mg patch.

[Taranto98 in reply to Jlloy5]

8 so I think I will just get a roll of tape. Glad to hear they work for you.

[charlton in reply to Jlloy5]

Thanks for reply I feel very positive about the patches and will buy some tape just in case

[park_bear]

Be aware it can cause impulse control disorders - compulsive gambling, sex, shopping or eating. It can also cause orthostatic hypotension, resulting in fainting upon standing.

[k100 in reply to park_bear]

Do you have experience with these side effects?

[park_bear in reply to k100]

I suffered complete failure of postural blood pressure regulation after 15 minimum dosages of a dopamine agonist. I took a month to recover during which time I was disabled - unable to stand without fainting.

[Taranto98]

I was diagnosed 6 months ago. Started at 2 mg and saw an immediate improvement in hand and arm movement. Gait and "arm swing" did not improve. Under the guidance of my PD specialized doctor every 5 weeks increased dosage to 8 mg. No problems except for one time when I put patch in an area that normally would never be exposed. Then I had 24 hour soreness.

They are working very well for me.

[k100 in reply to Taranto98]

How old are you?

[Taranto98 in reply to k100]

64

Why?

[k100 in reply to Taranto98]

Because the younger you are the more side effects you can experience

[Taranto98 in reply to k100]

Point noted. Will keep an eye out for adverse compulsions.

[k100 in reply to Taranto98]

Actually it's impulsivity that affects everyone

[k100]

Dx'd at 27

Started 4 mg nuepro patch 3 years ago when I was 36

Side effects were extreme

Impulse control disorder issues big time

Major behavioral changes

Experienced extreme hypomania (bipolar disorder)symptoms

Quit using nuepro patch year and half after starting it

Went through over a year of extreme withdrawals

I've met hundreds of pwp online who also had impulse control disorder symptoms and hypomania symptoms as side effects from patch

Only one other pwp that had extreme side effects like me

This pwp is exact same age as me and dx'd same length of time as me

I'd say 95% of hundreds of pwp I've met on dopamine agonists like the patch also experience behavioral side effects although to much lesser degree

Vast majority of these pwp don't know the are having behavioral issues

Discovered this past year that I still experience mild to strong behavioral side effects (that are symptoms of bipolar disorders)just from normal prescribed sinemet

I see same side effects in anyone taking any dopaminergic medication

Chances are if you are taking any dopaminergic medications prescribed from your doctor than you are experiencing these side effects and have no clue that you are having behavioral issues because they are so subtle that that you can't detect them even though your behaviors are affected

contact me if you want to know more

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