Looking for suggestions for diet that help manage PARKINSON'S

[dannydarling]

Cookbooks

Articles

Personal suggestions

and things to avoid

I take Sinement 25/100 x 7 daily and 1 Sinement ER 50/200 at bedtime.

I have been using Sinement for 10 years in increasing amounts.

[wifeofparky]

It is best to take sinemet on an empty stomach for best absorption. Protein interferes with absorption in the gut. Rule of thumb is 1 hour before or two hours after a meal.

Heather Zwickey is a nutritionist. Her new book is Eating Better for Parkinson's. It is available on Amazon in print or e-book. Hope this helps.

[dannydarling in reply to wifeofparky]

I will check the book out and see what I can include.

Thanks for responding.

[ramondo4 in reply to dannydarling]

As I have only taken 3 X 25/100 sinemet daily for the past three years did you find increasing your daily intake to the amount you are on helped your problems with PD ?

If so, I would like to hear, sorry I cant help with your original question about diet.

[dannydarling in reply to wifeofparky]

I thank you for suggesting Heather's book. $0.99 bargain on Amazon. I found it useful trying to figure out my dietary pathway with Parkinson's.

[JohnPepper]

I have not heard of any diet that has been shown to reverse the symptoms of Pd. I know for certain that there is no medication that reverses the symptoms of Pd. So why not try doing fast walking, which can and does reverse the symptoms of Pd. There is cycling as well, which has been shown to reverse the symptoms of Pd.

If you think you are unable to walk fast then contact me trough my website and I will show you how you can walk properly.

[Nippermcc in reply to JohnPepper]

Does the fastwalking work when you are still on medication, or do you have to quit the meds to benefit from fastwalking???

[JohnPepper in reply to Nippermcc]

Yes! It did with me. The fast walking should improve your symptoms, after a while, and should continue to do so. As your symptoms improve, you should be able to slowly reduce to your medication. I only came off my medication after eight years of walking.

[satwar]

I have good luck with a ketogenic diet, but gets very complicated and difficult for many people. The metabolism is very difficult to regulate and there are times when it doesn't cooperate. My calorie intake is 85% from fat and I moderate protein carefully.

[satwar in reply to satwar]

An easy way to determine if you can benefit from Ketone therapy is to try taking some exogenous dosages of ketone salts. It takes about an hour to get into your blood stream, sort of a lazy man's ketosis. The effect lasts for several hours.

[rebtar in reply to satwar]

What kind of reaction to the ketone salts would I be looking for?

[satwar in reply to rebtar]

Well everyone will be different, but for me' I woke up with a violent hand tremor. I took a serving of salts and within an hour it had stopped completely 100%. My walking gait changed from a Parkinson's shuffle to a smooth heel-toe gait.

[rebtar in reply to satwar]

What kind of dose did you take? Was this before you started the keto diet?

[satwar in reply to rebtar]

There's a measuring cup in the container, it's about 2tbsp.

Remember I said that your metabolism doesn't always cooperate. Well I was coughing all night and had a very bad sleep. It's only a quess, but I know sleep is very important.

Usually I wake with virtually no tremor at all, and once I eat my meal the tremor settles right down. I very rarely use the salts in every day life.

[faridaro in reply to satwar]

Could you share please what kind of improvement have you experienced on ketogenic diet and was it the Wahls protocol?

[satwar in reply to faridaro]

My Parkinson's has a very heavy shaking component. My neurologist says Levocarb does not improve tremor shaking, and my only option is surgery. Fortunately ketones stop the shaking.

The Wahl's protocol is good, especially her most recent book which incorporates the ketogenic diet. Basically you are eating a lot of low starch (carbohydrate) vegetables. The really tricky part is protein. The less protein you consume, the higher your ketones get, but there's a danger of cutting too low as your body needs protein to build cells. There's lots of argument about how far you can reduce protein.

[satwar in reply to satwar]

Since switching to a ketogenic diet , 4 or 5 years ago, I have not required an increase in my medication and my symptoms are better than when I was first diagnosed in 2003. Of course if I fall out of ketosis my symptoms come back.

[faridaro in reply to satwar]

Never mind my last question

[faridaro in reply to satwar]

So glad to hear that. I've been looking at ketogenic diet but was not sure if it was worth trying, although it made a lot of sense - ketones are much more efficient fuel for mitochondria then glucose and if our bodies are burdened with other issues this could be the basis to start repair.

[satwar in reply to faridaro]

Don't forget to try some ketone salts, to see if your symptoms improve with high ketone levels in your blood. I've tried KetoForce and just recently discovered Ketond.

I'd also recommend a glucose & ketone monitor.

[faridaro in reply to satwar]

Thank you so much! I am going to look into ketone salts and monitors you've mentioned - have never heard of ketone salts nor monitor before.

[satwar in reply to faridaro]

The brand of choice in blood monitors is Precision Xtra. You have to buy blood strips, glucose is not bad but ketone strips are expensive. You also have to buy Thin Lancets for pricking your finger.

I've found good prices for the monitors on eBay, and buy my strips from internet health & wellness stores. It takes a lot of searching to get a good deal.

[faridaro in reply to satwar]

Very much appreciate all information. I looked up monitors and strips on Amazon - yes, they are quite pricey. Will look up other websites for less expensive options, when I can - getting healthy seems to be a full time job

[faridaro]

Wow, ketones eliminated the tremors as you've been following the Wahl's protocol if I understood correctly. For how long have you been on it? Sorry about so many questions...

[satwar in reply to faridaro]

Well her ketogenic diet, I think she calls it Super Whals. I read her book but did not follow it to the letter. You've got to be careful with all those vegetables or you'll end up with too much carbs.

[hanifab23 in reply to satwar]

HI Satwar can I have your emai please

[NRyan]

The Plant Paradox. It is an interesting read. I am following his advice and had a remission in my symptoms so far.