Interest in Nilotinib (Tasigna by Novartis)

[FMundo]

I plan to start taking Tasigna next week. If there are others who are currently taking this drug or considering doing so (for Parkinson's), I would appreciate very much hearing from you. [e-mail].

[Andy19]

you must have used Nilotinib for a couple of months now, what do you think of it?

[FMundo in reply to Andy19]

I am starting a database for people who are taking Tasigna to combat Parkinson's Disease. Would you be willing to join and provide information for that database Andy?

[Andy19 in reply to FMundo]

yes if i can have that database

[FMundo in reply to Andy19]

It would be constantly updated and always available to read by those who contributed to it. It may also have information from initial Clinical Trials of the drug as we pry it loose from original research team (at Georgetown U.)

[Andy19 in reply to FMundo]

Fine by me

[Andy19 in reply to Andy19]

any news about Nilotinib?

[FMundo in reply to Andy19]

Andy,

I traveled from Phoenix to Wash DC to meet with MD associated with Nilotinib CT. 51 people signed up already. Expect prelim results in June. Following positive news there I plan to start taking drug.

Frank

[Andy19 in reply to FMundo]

do you mean the MD told you that NIlotinib is effective?

[Bretray]

My mother with dementia with Lewy bodies and Parkinsonism will begin tonight. Please update us on your progress. Four months is enough to begin seeing some result. Anything?

[Coldring in reply to Bretray]

What kind of results has your mother had? Anything positive? My father has lewy body dementia as well.

I’d really love to hear how she’s done on Tasigna as interested in that same route.