Positive attitude

[Rosabellazita]

Will someone tell me how to have a positive attitude with pd! Im having a hard time accepting it.

[Serenity_finaly-1]

Learning is the biggest help to having a positive attitude. Understanding what is going on in your brain is the first step in taking steps to boost your attitude.

[Rosabellazita in reply to Serenity_finaly-1]

Loss of dopamine is whats going on in the brain

[Serenity_finaly-1 in reply to Rosabellazita]

GOOD ONE

[sparkyparky]

Rozabellazita - I think it's a " glass half full" thing. I know I have PD, I know how it can progress, I know there is no cure but 5 years on, I still feel positive. Why?Were you a positive person before diagnosis? I have always been "sparky" so this was just another obstacle on my life's path. I know that doesn't help probably and this particular obstacle took about 2 years to "overcome " - i.e. to be able to talk about it without crying! Maybe all the exercise I do with a wonderful group of PD friends keeps my spirits up, as well as having a "Neuro protective " role in itself. It's probably a lack of imagination too. I just can't think myself forward 10 years and the state I might be in. Fight it physically with exercise and socially with friends and you may find you are winning the battle if not the war. One little step at a time. And I wish you all the very best.

[AngelaMcH]

I've got PD and have just completed my training as a yoga teacher! Start classes this Sunday and have a few 1:1's.Yoga has helped me enormously. Hoping to pass this on. Have a look at my page Upala-haven yoga and like and share.(if you do!)

Post dx I was in despair. Yoga helped me physically and emotionally!💕

[Rosabellazita in reply to AngelaMcH]

I tried a class but could relax enough to do it cause of tremor shaking

[Lionore in reply to Rosabellazita]

Are you taking medication?

[Rosabellazita in reply to Lionore]

1/2 three x day sinemet. Just started 26

[Rosabellazita in reply to Rosabellazita]

7-26

[Lionore in reply to Rosabellazita]

Most likely you will start feeling better soon.

[AngelaMcH in reply to AngelaMcH]

I had a lot of tremors initially but persevered through it till they're more or less unnoticeable.

[Rosabellazita in reply to AngelaMcH]

How?

[AngelaMcH in reply to Rosabellazita]

Everyone is different but take a look at my yoga page. Upala-haven yoga. I have been doing yoga for 4 years now Pte and post diagnosis. It's my view that exercise is mandatory for PWP. When I was first diagnosed my hubby an affair and left.This followed losing my beloved Dad. I had to give up a much loved job but look at me now!

[Rosabellazita in reply to AngelaMcH]

Yoga is slow movement and you have to relax ...this tremor made it difficult

[ryanJames1]

Guess as I am 62 I look at little children disabled or with cancer and realise that I have had many good years and still have all my arms and legs even though they often don't do what I want lol!

[Bazillion]

My mantra is PD is living with me not me living with PD.

I am in control not PD( the uninvited guest)

I cannot change the diagnosis but I can do my utmost to change the prognosis.

The past is gone ,we don't have a crystal ball to see the future but we are here now.Live in the moment ,enjoy every day as if it's your last, don't put off till tomorrow what you can do today.

Don't dwell on what you used to do, what you can't do ,

Enjoy what you can do and don't give up trying. It's amazing how much more we are capable of with a little effort.

[AmyLindy in reply to Bazillion]

Beautiful !

[FMundo]

I always compare and contrast having PD with being run over by a bus. In the latter case everything is left incomplete. With PD in essence you are usually given a very long time to complete the tasks of your life to be with friends, to enjoy their support and to experience the love back and forth with friends and family. Since my diagnosis three years ago my sister has taken me to Italy and Spain on a trip and we've chartered a catamaran for 10 days in the British West Indies, I've sailed from San Diego to the Sea of Cortez (around the entire Baja Penninsula -900 miles in 9 days with my son), traveled to India for three weeks with a friend. I've had an opportunity to start two men's groups and continue belonging to a third that has lasted 12 years. So I am involved in many lives, not just my own.

I know the path forward is going to be no party, and my wife who has had four hip replacements will not be able to care for me so if I were a betting man I'd have to say when things really go south its unlikely I'll be able to be at home. But its been a good run.

[Rosabellazita in reply to FMundo]

Bravo! Very good

[laglag]

If you want to feel better, you have no choice but to be positive. I wrote a 15 page document that I give to newly diagnosed PwP's (Person's with Parkinson's) and the first thing you need to do is Accept your diagnosis and then take Action. Your profile states you've been to 5 neuros and never been diagnosed. I don't understand that? Have you been to a Movement Disorder Specialist? It is difficult to accept it if you've never been diagnosed. Taking Action involves learning by researching which you are beginning to do by joining this website. Exercise is also very important. I go to Rock Steady and it helps me a lot. It's strictly for PwP's so you can learn things from others. Here is the website: rocksteadyboxing.org

Good luck and keep fighting!

[Rosabellazita in reply to laglag]

Well i an going to a mds and i have it.

[movinngroovin1]

youtube.com/watch?v=P-WDu7-...(Not working as expected?)

Check out Emma

[Serenity_finaly-1 in reply to movinngroovin1]

Love it....Love it....Love it.....

Thank you movinngroovin1 '''''''''

[park_bear]

Upon diagnosis my reaction was, "well at least there is treatment for all these symptoms". In my case something I did for my PD cured something that was much worse. Yes there are conditions a lot worse than PD. And then PD prompted me to get involved with Qigong. So PD has been a blessing for me.

[Lionore in reply to park_bear]

Qigong is an important component of my exercise program and provides spiritual healing as well.

[park_bear in reply to Lionore]

Oh yes, Qigong has helped me quit a bit! My story here: healthunlocked.com/parkinso...

[S70AWD]

The best advice I was given was "Focus on the things you can do, and not on the things you can't."

[Dchovan in reply to S70AWD]

Absolutely!

[AmyLindy in reply to S70AWD]

The Serenity 🙏🏻 Prayer...God, give me the serenity to change the things I can, courage for the things I cannot and wisdom to know the difference -Amen

[Lionore]

Stay in today which is all we ever have, and make it a masterpiece . I got that advice almost thirty years ago at age 38 when I was treated for cancer and it's even more true now. No one knows how PD will progress and you may be functioning pretty well for many years. Why ruin those years with worry and dread? Exercise, exercise, exercise and stay connected with supportive family and friends. Seek some sort of spiritual life.

[Rosabellazita in reply to Lionore]

Thank u

[Itchyjan]

To have a positive attitude having PD. First do not dwell on it, he'll live your life, laugh at yourself, Don't constantly look for a cure , it might not be today , but someday they actually will figure it out. Never, never let PD define who you are. So live my friend, do your best, and keep it moving❤️

[Astra7]

When I could tell I wasn't right I looked up what it could be, and Parkinson's was a treat compared to some of the other options!

Are you taking the meds? I tried not to, then I 'gave in', and now I don't have to think about it all the time and can also play tennis etc without feeling exhausted.

[Rosabellazita in reply to Astra7]

Im taking what dr. Started me on started 7-26. 1/2 sinemet three x day.

[Astra7 in reply to Rosabellazita]

It seems you may not have been taking them for very long. Maybe give it more time. Also consider taking NAC - it's seems to help the mind and doesn't seem to do any harm.

I think it takes a while to get used to the new reality.

[rebtar]

Was depression and/or anxiety a part of your life before PD? It was/is for me and made getting over the hump of acceptance really hard, I'm still in that process, but I know that having a life at all depends on coming to terms. So it's been a profound learning process. I'm blessed to have a caring and supportive husband, and have found support and love from friends that I wasn't able to receive before. I'm learning to take better care of myself which I've never been good at, always a caretaker of others, and at the same time becoming less self centered. I'm inspired by the people I've met through Rock Steady Boxing who don't give up, even with fairly advanced symptoms. The body will eventually fail no matter what, just sooner for some of us than for others, but there are always the opportunities to discover these spiritual riches. (AND, I get joy from an adorable, rambunctious 4 yr old granddaughter).

[davidpix]

Had Parkinson's two years, I am presently being cured and loosing symptoms

If you want to get cured watch the following two you tubes:

Most patients and a good many doctors think of PD as simply a case of dying brain cells creating a shortage of the chemical dopamine. The treatment is to replace the dopamine. If this view was true, then this video would not be possible.

ctvnews.ca/health/instantan...

Then watch this video and loose your symptoms:

youtube.com/watch?v=1_DBnv3...(Not working as expected?)

It really is working for me

[GymBag]

Now if you are almost finished feeling sorry for yourself and incapacitating yourself with fear , indecision and worry, its time to catch a train to a higher plain. Confidently moving slowly ahead into a world that you will need to function in. Time to plan, change, and plan some more. Now how are you going to deal with it, many, many things to consider, you can do it, dont panic, stress makes it worse. HAHAHAHAHAH.

your not laughing yet are you.

[marg9]

Don't accept it!!!

[LizNZ]

First get a good neurologist who will explain what pd is and how it affects not only your body but also your mental health. If you have been prescribed medication this should help.

How long have you been diagnosed with pd? What were your your favourite things to do? See if trying happy times helps. Think positively. Love life.

[budsey]

Hi Rosabellazita

I was in a terrible state when I was first diagnosed. I had terrible anxiety, still have. Oh, I wish I were you and could go back to having PD. I have just been told it's not PD any more but MSA a much more frightening condition.

This should make you feel so much better. You'll be fine -You can live with PD - not with MSA it has truly got you round the throat.

Budsey