Drove 2 hrs to see the new Dr today. It was well worth it. Finally a doctor that speaks our language, if you know what I mean. He has several patients on the amino acid protocol and they are having success with it. Very encouraging. All were worse than me when they started (my UPDRS is 33 on my worst day, but still...)
He talked about Thiamine, which we have been discussing here lately. Highly approved of it and was very familiar with the studies on it. Also said to look into Lithium, which is a great neuro healer, and recommended this book: amazon.com/dp/B01FT4OGDI/re...
Stressed the importance of bike riding, as we know here as well.
some other things he said to consider were:
bodybio phoshtidl choline ( spelling??)
L Taurine - 1 scoop per day and cod liver oil
Lithium 10-20 mg day
HCG injections
nasal light vielight therapy
oral and IV chelation
ultraviolet blood irradiation
oral and IV lipid exchange (PK Protocol)
far infra red saunas
pulsed electromagnetic field or frequency therapy
frequency specific micro current ( I have done this for my back, it works wonders!)
It looks like a lot of quackery mixed in there but he sure sounded like he knew his stuff and has had success with PD, so I shall begin my latest quest! He had the aminos in stock so Im gonna start on them tomorrow at noon. My friends, I will keep you posted and as usual, I welcome feedback. We put our heads together, we will beat this!
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First batch was three different bottles of capsules. about $150 or $180. I gotta check again. The thing is, some people itll be $150 / month, some people $500. Depends on how much it takes to balance you out.
Personally i dont know anyone whos done it. Just studied the research for the past 6 months. The dr i found said he has success with the majority of his pd patients that do it. The amount they need to use varies greatly from one person to the next.
Hey bass, i am doing and have tried many of the action items on this list. I just took break on the hinz protocol after failing to reach balance with 2 different practitioners for 7 months (each one!). Basically after 1 yr & 3 months I am on C/L 25/100 3x/day to take a break to see how the rest of the world does it. Still not giving up though! Can you share the name of your practitioner?
I am aware of all of the above. Just want to say that I have been applying his protocol since July 2017 and I have found that it makes me feel dramatically better. As a plus, any depression, anhedonia or anxiety I had before is completely gone. My monthly cost is about $100 or so for supplements. He has the data to back up his claims. His published research is easily available on the web and he has documented many, many cases of success, not only with Parkinsons, but a multitude of other neurological transmitter imbalance conditions ranging from tricholomania, weight loss, schizophrenia, depression and more. My GP doctor (absolutely brilliant guy) was trained by him personally, and he considers Dr Hinz to be a genius.
Thank you for sharing your information for those trying to make an informed decision.
Be careful. I know someone in Indiana that was on that protocol and he got worse and the cost kept rising. It may work for some but just be cautious. Keep us informed.
When symptoms get worse it is called a paradoxical reaction. Usually if you increase the amino acid dose within one to two days symptoms get better. Increasing the dose is required to get better. If you simply stop and run away you will be left with the problem you started with. Usually a paradoxical reaction means you are on the right track, but it has to be managed properly. This is why you need an experienced caregiver in charge. Much of what occurs and needs to be done is counter intuitive (opposite of common sense).
Hey there Janvan! No sinemet for me. Thats why i do the hinz protocol. Doing pretty well with that. I don't go to dr Robinson any more. He is great but too far. Contact dr Hinz's office and they can refer you to someone. I still work and i work very hard. I scrub with interventional radiology and cardiac catheterization procedures, assisting the doctors. Overtime every week. Exhausting!
Hi bass, have read you postings and wondered where you lived in fla. I'm in winter park/Orlando area and am interested in this amino therapy for my bro. Do you have a neuro dr n is your dr onboard w this type of treatments. I'm trying to find a dr here who would be. Thanks so much.
I am in the Daytona area. This Dr Robinson is in Lakeland. He is really good with pd patients. Better than my neuro who just wanted to prescribe sinemet and let me rot.
I hope you have success with the advice from the new doctor. It sounds complicated, and seems very time consuming, but if it works, it will be worth the effort. What kind of doctor is this doctor? Thanks for any reply.
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What serum levels indicate someone is deficient in Lithium? 
