Tremor intensity/manageability: daytime-evening, why the difference? Solar effect(?)

The first meeting I ever had with a priggish, fat, movement specialist (I have no more use for) :) they inquired whether my tremor was better in the morning or evening. I answered evening, as it is so. The prig was mum about why. Anyone care to offer an explanation for why our tremor is easier after sundown. Should we break out the tin foil? :) I consider would it be wise to just start keeping vampire hours. Odd the way tremor intensity weakens with sundown. And it is not the heat as I stay in a very cool home.

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Why don't you examine why the tremors worry you? Are they painful? Is it because it is unsightly? Is it because you don't want others to know you have Pd? I am asking you this because some people are prepared to spend a fortune on finding ways to hide the tremors, even though they do nothing really to us. We can still perform normal functions with our hands, if our tremor is a resting tremor If it is not a resting tremor that happens when we try to do fine motor actions then it is a different story.

If you said yest to the unsightly question or the privacy question then you need to discuss this with a professional and get over it. Get you priorities right.

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I have to say John that I dont recognize your description. Some may have a resting tremor that doesnt interfere but my resting tremors are severley debilitating and painful and I certainly cannot easily perform everyday tasks. I have to wait until the medication works to be able to function.

I dont think people would have a dbs, brain operation to control an inconvenient shake.

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I don't want to argue with you about what is and what isn't a resting tremor. My understanding of a resting tremor is that, as the nae suggests, your hand shakes when at rest. The moment you do something with your hand, the tremor stops. Are you saying that this is not the case with you?

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I agree ...my tremor interferes with alot of things

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Tremor is unsightly, yes. I care not that any adult may witness my tremor, unless it is a child and they are concerned for me, I do care that it may upset a child. My post is to learn if there is a known reason why tremor weakens after sundown. Please excuse yourself if you have nothing helpful to write and be kinder in the future.

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Mine does not weaken

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Why do you suppose it stays the same intensity?

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I wonder if this is because your melatonin level is higher and your parasympathetic nervous system ( rest recovery) activated? Naturally, serotonin in our body is converted by the action of the pineal gland into melatonin at dusk. The production of serotonin requires foods which contain B vits, & tryptophan), Vit D (from sunlight) and LIGHT (not necessarily sunlight) of the right spectrum - light that occurs a naturally from dawn to c 2 pm - so vampire hours won't do it I'm afraid. Better perhaps to get light, including sunlight, in the morning, and then make sure that you experience a "dusk" (need not coincide with the real dusk) - after which you avoid blue light (which decreases our melatonin). You might find the sleep tips on my website, zeez.org.uk useful. And I'd be really interested to hear of your experiences over time - what makes things better.

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Awesome!!

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Im not sure what to do about it i just know i dont want prescription drugs. I ve i wed ur website..i cant afford the gadget to help sleep

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Hi Rosa, Have a good look at the stuff Gary Sharpe has on his site - there are lots of exercises one can do to help relaxation / strengthen the vagus nerve / strengthen the parasympathetic nervous system which may have a good effect on tremor. And I'd work on increasing your melatonin naturally - lots one can do. If there isn't enough int he short sleep tips on my site, send me an email and I'll send you a longer version. Better to increase naturally than to supplement with melatonin - you risk reducing the body's ability to make melatonin itself.

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What site is it?

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Gary has a couple of sites and Facebook pages. Try this one facebook.com/outthinkingpar...

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John's reply reminds me that there can be different reason for tremor. In the case of the person closest to me who has bad tremor, it is associated with stress - the activation of the sympathetic nervous system, beta brain wave activity, high cortisol, low melatonin, and addressing those things helps.

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Wow, you are so into my head with that rreply.

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Do y ou know of anything natural that helps tremor

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Hi Rosa, I think that anything that strengthens the parasympathetic nervous system could help. There is a lot on this on Gary Sharpe's website and Facebook page- he has been exploring many ways of doing this. e.g.https://www.facebook.com/outthinkingparkinsons/ - exercises etc. And we have developed a device designed to prompt alpha brain frequencies (relaxing) . Our Zeez Sleep Pebble does this, but only for 10 minutes. With limited use, we have seen it help a few people with Parkinson's zeez.org.uk/product/zeez-al...

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My Stress is high

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So true for many. Stress they say is a killer. My primary stress I put on myself by worrying that someday soon I will not be able to help my wife (advanced MS) anymore with her physical management need.. I really worry about her being neglected if it comes to the day when I cannot perform her care and she is taken to a long-term care facility. That is my stress. What causes yours?

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I have ordered melatonin..10 g powder

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W hat do u do about high cortisol

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If you raise your melatonin (best way is naturally, thro eating right nutrients and light - see my sleep tips ) you'll keep cortisol in check - and as you sleep better, cortisol will fall naturally - you'll become more resilient. You are probably doing all you can to avoid stress/ relax - useful to add things which strengthen the vagal nerve to that. Good Luck

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The question could be a way of asking whether you have worse symptoms in am or pm. I presume this was before meds and often sleep restores some of our dopamine levels, could he have been checking if that happened. Essential tremor has to be ruled out at original diagnosis. Perhaps there is a different pattern there.

But We are all guessing,

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Yes, they migh have asked to learn whether sleep was stil restoring dopamine levels. Your insight is amazing

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I think it is a weakness in this forum that people do not know the qualifications, long experience and high level of expertise of some of the people here like Hikoi.

Seems a waste

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Oh one more thing Buz.

Your Movement Disorder Spec. may have already read your post and if you drop a name after that tirade you may get letters from Lawyers.

Careful

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Tirade...which tirade? I try to vent here in a safe place. If the fat poop that remains nameless pursues me for saying how rude his office are, I kept copies of the messages they sent in rude reply to my messages asking for instructions and trying to explain how Azilect made me feel ill. They were apparently more focused on keeping me (a peg) in a hole to fill their need for patients in a medication study , and cared nothing for me as an individual patient. ...See? that is a fair amount of complaining but not by any definition a "tirade". Not worried but thanks for the care.

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I knew from the start that Hikoi was a voice of reason. I like it when the discussion gets a little off track and she gently gets it back on course.

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How can you be gender certain? Here at this buletn board you never reallly know. Hikoi if you are reading this, reveal your gender if you wish to.

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Serenity is correct. 🤗

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Thank you for sharing :)

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Boy, do you have that right. Also age.

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In poker a tremor is a major tell. You would think ah " you have something to hide you must be bluffing". What it does mean is that you have a killer hand. I always FEEL that if I am talking to someone and I start to tremble it's because I have some thing to hide when it's just the opposite.

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Yep, its our vulnerability

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