Bladder Issues: I have worsening issues... - Cure Parkinson's

Cure Parkinson's

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Bladder Issues

toomuch profile image
13 Replies

I have worsening issues with my bladder (urgency) and have tried a couple of medications that aren't working. The specialist is now saying I need Botox injections in the bladder every 6-9 months. Has anyone heard of this, and the results?

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toomuch profile image
toomuch
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13 Replies

drugs.com/flomax.html

faridaro profile image
faridaro

According to Dr. Hageseth who has PD, kegel exercises are supposed to be very helpful for females and you can do them while listening to his podcast "Peeing, pooping and PD" :)

podcast link - blogtalkradio.com/upbeat_pa...

in reply to faridaro

WARNING~!

I attempted to view the video and was returned with a malware page.

toomuch profile image
toomuch in reply to

thank you, I will not watch

faridaro profile image
faridaro in reply to

Sorry to hear that. I have Avast internet security on my computer and had no problems with the podcast.

Ballerina335 profile image
Ballerina335

Yes.I had them before dx .They are very effective.

BUZZ1397 profile image
BUZZ1397

I don't deny having experienced bladder urgency myself. dribbled i my pants once in a grocery. I can say that personally that PD issue has become very much less since I started using levodopa from MP rather than from Sinemet. Don't know how that happened but the urgency to pee after every little drink went away after I weaned myself off Sinemet. Anyone else get the same relief benefit from alternate sourcing of Levodopa such as MP? I am curious to know if it is just me.

park_bear profile image
park_bear in reply to BUZZ1397

Is that a recent change for you ? I seem to recall you were taking Sinemet not long ago.

BUZZ1397 profile image
BUZZ1397 in reply to park_bear

You are correct. I have been off Sinemet then on Sinemet now off Sinemet again. This post aboout bladder urgency gave me memory of my own history of problem with bladder control. And I realized it has gotten much better and I wondered if the cause may have been Sinemet. It just popped into my head to ask the bulletin board.

etterus profile image
etterus

How do they perform the injections? Painful?

toomuch profile image
toomuch in reply to etterus

I really don't have any info on it yet, it certainly sounds unpleasant

Joanne_Joyce profile image
Joanne_Joyce

I'm just starting the exercises in David Zid's very practical book Functional Fitness for Everyone Living with Parkinson's that are specifically for strengthening the pelvic floor muscles. If they really work for me I'll certainly let everyone know.

dolltearsheet profile image
dolltearsheet

My Mother's neuro-urologist also suggested Botox, but has yet to do it. My Mother's urinary incontinence is out of control. Every time she stands up, she "floods." The doctors considered having her self-catheterize but then decided there was not quite enough urinary retention + at 87 with PD, it would be too difficult. Please let me know if you proceed with the Botox as we are very eager to learn more about it! Thank you, and good luck!

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