A number of years ago I was diagnosed with COPD , I was worried , as I was then only 42 , I scoured the internet for possible future breakthroughs or cures or simply just disease modifiers ... many clinical studies claimed to be on the cusp of a breakthrough... none , not one have succeeded
I now find myself diagnosed at age 49 with PD , and wonder if this is the same scenario , decades of 'almost ran' therapies that will never find a way to at least halt this devastating illness ... One needs hope in this situation , and I must be honest , I am confused by the multitude of approaches being employed by various pharma to address this disease .. in laymens terms it would appear they havnt really got a clue as to even how/why this disease starts ... on the other hand perhaps we should be encouraged by the different approaches ...
Unlike COPD though , this disease affects the brain , speech , movement ...so I feel ( and I know I wont be the 1st) that I am in a race against time .... I dont want to drivel on about personal stuff , but lets just say I will allow myself to go to a certain point , and no further .. right now I have slight tremor in one hand and occasionally my speech slurs ...its just all very depressing , and I am not like 'that' .... none of us are
I suppose my question is after reading these forums I can see there are some very VERY knowledgeable people on PD ... do you guys think there will ever be a 'halt' type drug ... imo stem cell therapy is a red herring as it just has too much cancer risk , ..synuclein clean up , is a 'partial' hit if they ever suss out how to do it , and would be welcome ....but until they establish the underlying cause of tis disease , how are they going to understand its pathology ... ? I dunno ... maybe I think too much , but everything from anti cancer drugs to diabetes drugs are being muted as possible 'cures' ... seems chaotic to me ... rant over