Log in
Parkinson's Movement
13,996 members12,549 posts

Parkinson's Disease Symptom Progression

Hi all

This is a link to my vlog about Parkinson's Disease Symptom Progression - from my very first symptom through to current day, post DBS.

Cheers,

Ian

15 Replies
oldestnewest

Thank you, Ian. This vlog left me feeling very sad, because it is such a tough row we hoe with this disease. I know there are much worse things, I just had a friend diagnosed with pancreatic cancer and lost another friend to this disease 5 years ago, but that doesn't change the fact that those of us with PD face extraordinary challenges on a daily basis. This disease certainly calls on the finer things in our natures. Thank you for your contribution!

5 likes
Reply

My apologies, it wasn't intended to be sad - just a "warts 'n' all" account. As you say, there are many things worse to have and I count myself lucky that it's "only" PD.

Cheers,

Ian

7 likes
Reply

I appreciate Warts and All, Ian. Keep it coming - please! We need you. You have so much experience and knowledge. Thank you for all you are doing for our community. Maybe ...

You should have a "DONATE HERE" button to keep your "Broadcast" Alive- I'd surely pay. You're information is VALUED.

1 like
Reply

Thank you, AmyLindy, your comments are much appreciated. If my videos are useful, then that is payment in itself, but sharing links to my videos on Facebook and other social media helps to get awareness of the work that I am doing, so if you could share them, then that would be amazing!

Cheers,

Ian

Reply

Another useful informative vlog Ian, thanks. Poignant in parts but ultimately the story of a man who refuses to give in. Keep up the good work - you're looking great!

6 likes
Reply

Thank you!

1 like
Reply

Your story of living with PD sounds just like the way everything unfolded for me, which resulted in PD diagnosis. I have not requested deep brain stimulation, at this point. Perhaps I will. Thanks for sharing your blog with us Ian. I appreciate your commentaries, and wish you the best, in this journey of living with PD, an ailment that we never asked for.

3 likes
Reply

They used to recommend DBS as a final solution after all of the drugs stopped working - these days they see it as giving back such quality of life that is being recommended for younger patients, the sooner the better in terms of payback.

3 likes
Reply

Ian I look forward to your blog. My GP told me it could not be Parkinson's because I don't have a pill rolling movement. The other thing that struck me was strange chemical smells that nobody else could smell. Often smell was flower like. Also I had few years where my hands broke out in little bumps. Very itchy. Had a lot of dental work with Mercury. However hair analysis does not show much mercury but it shows a whole bunch of aluminum. Mary

1 like
Reply

Hi Mary

Thanks for your comment. I think little is understood about the toxicity of metals, and it is entirely possible that illnesses are caused, or triggered, by them.

Cheers,

Ian

2 likes
Reply

spot on

2 likes
Reply

Thanks Ian. A clear chronical of your disease progression. I think a library of these from different people could be very useful for a whole lot of uses, but especially educating health professionals.

2 likes
Reply

Hi. My friend got Parkinson's disease from taking largactal /chlorpromazine anti/psychotic medication.

1 like
Reply

That's horrifying! I'm avoiding prescription meds until all other options are exhausted!

1 like
Reply

I don't believe chlorpromazine can give you PD but only the symptoms and they will stop when the drug is stopped. My knowledge from the pharmacist.

1 like
Reply

You may also like...