How common is it for parkinson's patients to have such severe fatigue/lack of energy that they can take 3 steps and have to sit down and pant? Also how common is it to sleep 20 to 22 hours a day?
The sleeping came on suddenly but seems to be ongoing, the lack of energy has been going on for a few months now. He was diagnoses in 2012 and has been pretty good on Stalevo for all these years, now recently he got out of sink with taking his meds on time and ended up very shaky all over and inability to speak plus serious hallucinations, he was hospitalized on Easter Sunday. Bit mistake as they did not give him his meds at all and seemed completely unaware of proper PD treatment, they did start him on a anti-psycotic and he went home after two days still hallucinating. That finally stopped after a couple more days on the meds they started.
I am trying to figure out if this is a permanent change downhill, as I say it came on very suddenly for the most part.
It makes toileting much harder to deal with and he is now sleeping on the couch downstairs permanently, or until we get a bed down there. I wanted to get him a hospital bed but after his stay in the hospital he wants nothing to do with a hospital bed. Hope I can change his mind and I wonder if Medicare would cover it. [we live in west virginia, USA]