Simulated Parkinson's: Simulated PD... - Cure Parkinson's

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Simulated Parkinson's

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Simulated PD!? subject of my latest blog...

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imshakydad
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10 Replies
Hikoi profile image
Hikoi

Thanks, good blog.

imshakydad profile image
imshakydad in reply to Hikoi

Thx for stopping by to read it!

Thank you. You are spot on!

imshakydad profile image
imshakydad in reply to

Thx for ur comment or for checking it out!

ddmagee1 profile image
ddmagee1

I'm shaky Dad - Excellent blog! I like your list. My problems are quite a bit like that. We are here to support each other. Thanks for sharing. I really feel that only people with PD really understand what it's like to live with a difficult neuro-degenerative disease. In the early stages, I could accept and work around some of the symptomology, but now, as the disease has advanced, I find very little practical advice or real understanding from some people in the medical community, and others, who have no idea of what PD victims go through. I appreciate all the sharing and understanding and support from others who have to deal with PD as a way of life.

imshakydad profile image
imshakydad in reply to ddmagee1

i hear u loud an clear! thx for ur comments and for taking the time to check out my blog. More to come! :) cheers rk

Lisl profile image
Lisl

Ha, ha-.really, are they serious? Like all of you, I too have tremors, but amongst the suite of symptoms they are the least of my worries. My leg tremors are the most obvious and if I'm sitting on a shared bench or close to other people they can all feel them. In such circumstances the tremors bother others far more than they bother me. (To be honest they annoy them). Of course none of them have a clue what PD feels like but it is very annoying to be shaken. I regret to say that I would like the most unempathetic and least supportive people to experience a day or two of dizziness, leg dragging, overwhelming fatigue, freezing, no real control of arms legs and speech, nausea and pain, and the never ending pain .... What a wicked concept- simulated PD ...

imshakydad profile image
imshakydad in reply to Lisl

yeh, unfortunately, they r serious! :) thanks for your kindred comments and for taking the time to read and respond to my blog! take good care rk

Bazillion profile image
Bazillion

Thanks for your blog .For me after 6 yrs diagnosed my main symptoms are mostly the non motor ones ,thankfully my tremor is minimal ,my movement is a little slow so no one ' sees ' mr PD so with that contraption they would get to feel it either!these people are unbelievable.

imshakydad profile image
imshakydad in reply to Bazillion

thx for stopping by and for ur comments - if this group comes up with another device to simulate all those non-motor symptoms, u'lll be the first person i tell ;)

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