My husband, Louis, was diagnosed with frontotemperal dementia before he was diagnosed with PD. He's sleeping well. Finally! He's on Nuplazid and he has not had an hallucination since! He's eating well. We have five wonderful children who help me caregive. So what's the problem? Louis can't hear even with aids. He cannot see to read and sometimes, he has to look around and follow my voice to find me in a room. Yesterday, he knew I was his wife but couldn't remember my name! Today, he could remember my name. I don't want this post to sound negative. I have a strong faith in God and I know that Louis and I are exactly where He wants us to be. I, like many of you, am learning to live one moment at a time. I just feel like Louis is slowly slipping away from me! Is anyone out there experiencing this with your loved one? Does anyone have any advice for me as I accept the changes that seem to be happening?
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