Parkinson's Movement
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Misdiagnosis

Misdiagnosis

My dear friends;

My new neurologist again, for the second time, told me I do not have PD.

I had taken my last dose of Sinemet 4 h ago.

What is going on with me is that I have high anxiety, possibly PTSD.

I thought so before diagnosis with PD.

I wake up in the morning, feeling fine.

1/2 h out of bed, the anxiety sets in. My heart starts beating fast, and my vision gets blurry. Then I get dizzy and start stumbling around.

The combination of high anxiety, irregular heartbeat, very low blood pressure has given me symptoms close to PD.

But I don't shake, I don't have stiff muscles, nor any of the other symptoms peculiar to PD. Some of the symptoms I had, I think I had because I thought I had PD.

The neurologist wants to get me off Sinemet, in small doses.

Right now when I feel a panic attack coming, I take 1/2 beta blocker pill, and I am good.

I will be checking in to see how you are all doing.

You are all mighty warriors!! Keep up the good fight :) I have learned a lot about courage from you!!

Much love from Eva G. :)

33 Replies
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Please keep in touch & good luck with your new journey! You've been an inspiration to us for sure!

💕Debbie

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Thanks, Debbie :)

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You are nice, kind is easy, help is harder. Praying you find the latter right soon dear. Be well. I'm glad you don't have PD.

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Take care.nice to read all the Posts

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BUZZ1397

Thank you so much.

The new diagnosis, which I think is PTSD combined with an irregular heartbeat and low blood pressure, has its own challenges.

Much kindness from Eva :)

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but you can do it. Have you tried the tapping, dr. Mercola gives directions for it

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I'm so happy for you. Good luck. Mary

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Good Luck! You are very lucky. I keep telling myself "I will wakeup tomorrow and my PD will be gone. No luck so far.

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Yeah, Catlou. I know what that's like to think this is all a dream. I do the same thing each morning about having broken my neck in a fall five months ago. And then I try turning my head! Nope, not a dream yet!

-John

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Eva, thank you for that quote. It is wonderfully succinct and true. All the best wishes, and yes, keep checking in.

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That is wonderful news. Stay in touch, Eva! You are a priceless member of this group to me.

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So happy for you Eva, although you still have health issues, not having PD must feel wonderful.

You have blessed us all with your beautiful nature.

With the correct diagnosis comes the appropriate treatment. All the best xxxxx

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DEAT

It does feel wonderful to not have PD!! Like a big cloak fell off of me.Thank you.

I wish you all could have this experience!!

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Wow

That's great news

Wish you well on your journey

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Voller

Thank you 😊

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May I ask you how you get the new diagnose?

A kind of test?

Reason for asking is that i am not sure if I have PD myself.

All the best Eva

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snorre

My new neurologist simply gave me the standard test for PD, and did not see PD symptoms! I did not even ask him to check to see if I really had PD. He just ran the test because I was a new patient for him. I left my old neurologist because I did not like her.

So it was actually a second opinion.

Maybe you should have it checked out too.

Thank you :)

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Congratulations! I'm so happy for you, 12stargate!

Yea! Yea!

-John

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Jwolfman614

Thanks a million John.

I am considering suing the doc who

misdiagnosed me!

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What is the standard test for PD?

I was diagnosed with PD in May 2017.

Up to now I have not taken any medications for PD.

I just have a feeling my diagnosis was wrong?

I do suffer from anxiety,depression and stress!!

Good luck with your new life.

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Wow this sounds a lot like me. Best of luck to you. Please keep us posted

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I'm happy for you too. It's wonderful news for you.

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Has anyone given you a formal PTSD diagnosis? There are medications to help with the symptoms along with therapy. Best of luck to you. I had PTSD after my husband's death. I took Cymbalta for approximately one year. After weaning off under my doctor's supervision, I use Essential oils to deal with my occasional anxiety.

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You are not alone. Depending on the data source, initial diagnoses of PD are wrong over 30% of the time, and on autopsy over 40% of PD diagnoses are wrong. Essential Tremor, especially a mild case, is often the cause of tremor. I too was misdiagnosed, yet was on all the drugs for years so now have tardive tremors and gait issues. Keep track of that, too, if you were on the drugs more than a year.

I now have tremors (tentatively re-diagnosed as ET), dyskinesia/dystonia/all-the-"ias", Hypomania, and severe PTSD.

Permit me to *strongly* recommend "The Body Keeps the Score" by Bessel van der Kolk. Simply the best book available about PTSD, by the smartest guy working with PTSD. It changes lives.

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gcorrell

Thank you so much for the referral to the book "The body keeps score." I got it already and it has raving reviews. I think this should be 'a must read' for everyone with PD.

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gcorrell

Can I ask what meds were you on?

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Sinemet, Mirapex, Azilect, EmSam patch, others

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sounds promising - though as u say ur present condition is not without its own challenges! best of luck and good health to u! thx for ur contributions and comments to date! cheers rk

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Great news, wish you all the best!!!

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This is great news. Take care.

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This is wonderful but also a challenge Eva. Hope the new focus will give you much better relief. Go well Eva.

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Thank you so much to all of you for your wonderful, warm and kind words!!

I strongly recommend the book "The body keeps score".

Love and hugs from Eva :)

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Huge news! All the best for the future! So happy for you. :-)

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