My new neurologist again, for the second time, told me I do not have PD.
I had taken my last dose of Sinemet 4 h ago.
What is going on with me is that I have high anxiety, possibly PTSD.
I thought so before diagnosis with PD.
I wake up in the morning, feeling fine.
1/2 h out of bed, the anxiety sets in. My heart starts beating fast, and my vision gets blurry. Then I get dizzy and start stumbling around.
The combination of high anxiety, irregular heartbeat, very low blood pressure has given me symptoms close to PD.
But I don't shake, I don't have stiff muscles, nor any of the other symptoms peculiar to PD. Some of the symptoms I had, I think I had because I thought I had PD.
The neurologist wants to get me off Sinemet, in small doses.
Right now when I feel a panic attack coming, I take 1/2 beta blocker pill, and I am good.
I will be checking in to see how you are all doing.
You are all mighty warriors!! Keep up the good fight I have learned a lot about courage from you!!
Much love from Eva G.
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Yeah, Catlou. I know what that's like to think this is all a dream. I do the same thing each morning about having broken my neck in a fall five months ago. And then I try turning my head! Nope, not a dream yet!
My new neurologist simply gave me the standard test for PD, and did not see PD symptoms! I did not even ask him to check to see if I really had PD. He just ran the test because I was a new patient for him. I left my old neurologist because I did not like her.
Has anyone given you a formal PTSD diagnosis? There are medications to help with the symptoms along with therapy. Best of luck to you. I had PTSD after my husband's death. I took Cymbalta for approximately one year. After weaning off under my doctor's supervision, I use Essential oils to deal with my occasional anxiety.
You are not alone. Depending on the data source, initial diagnoses of PD are wrong over 30% of the time, and on autopsy over 40% of PD diagnoses are wrong. Essential Tremor, especially a mild case, is often the cause of tremor. I too was misdiagnosed, yet was on all the drugs for years so now have tardive tremors and gait issues. Keep track of that, too, if you were on the drugs more than a year.
I now have tremors (tentatively re-diagnosed as ET), dyskinesia/dystonia/all-the-"ias", Hypomania, and severe PTSD.
Permit me to *strongly* recommend "The Body Keeps the Score" by Bessel van der Kolk. Simply the best book available about PTSD, by the smartest guy working with PTSD. It changes lives.
Thank you so much for the referral to the book "The body keeps score." I got it already and it has raving reviews. I think this should be 'a must read' for everyone with PD.
sounds promising - though as u say ur present condition is not without its own challenges! best of luck and good health to u! thx for ur contributions and comments to date! cheers rk
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I have learned a lot about courage from you!!
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