I believe PD is curabled

There's too many people claiming that they reversed their symptoms, I refuse to think it can't be reversed, maybe not 100%.

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  • Sorry Curable

  • Are you or someone you know/heard of, doing something that shows signs of reversed symptoms?

    I am hopeful it is.

  • John Pepper

  • Reverse symptoms or cured ? Can you cure but not 100%? I think we all have different ideas of what a cure means, that is an interesting discussion topic too.

  • I believe both can be done.

  • Thinking positive helps.

  • I've had it 14 years and last year it has started to get so much worse mobility ,memory , I am trying to keep mypositive attitude,So if anyone out there can help to cure this debilitating disease, please please tell me.

  • Exercise, have you read John Pepper's. I feel 100% normal after fast walking or running.

  • John Peppers book

  • Fast running and walking ( forced exercise) does nothing for those who cannot do it because they have progressed. Keeping moving on the other hand, no matter how difficult, is essential. I have yet to hear of a case where PD is permanently reversed. Health gains, yes, delayed progression, yes, but not reversal.

  • no two pd'ers are alike......I think it's several illnesses affecting muscles.

  • The worst things for me are my stomach, my memory and fine motor skills.

  • Even if we suppose , for the sake of discussion, that reversal is possible, it will probably look a mite less rosy once we begin to quantify it. Analogously to the phenomenon of "winning the lottery," we have to look at what are the odds. For example, it may turn out on average over all the world's 7 million Parkees, one in 50,000 will actually reverse their condition and die PD free. That amounts to 140 people worldwide who really do cure their disease. If those 140 cases are made public, it will seem like a lot, and engender exuberant hope. But when you look at the actual odds for the average Joe, they are still astronomically small. Moral: Dream all you like of a KO, but pay attention to your footwork and don't forget to roll with the punches ;)

  • People who have reversed PD most likely didn't have PD in the first place, many people are wrongly diagnosed, given drugs for the incorrect diagnosis and made worse. If they are lucky and start investigating themselves they might find out they were suffering from something entirely different. A common missed diagnosis especially in people aged 60/70 is Pernicious Anaemia, often thought to be MS/ME when in fact they are deficient in B12. Bog standard blood test doesn't reveal this deficiency. All people whatever their age should ask for a B12 blood test.

  • I know someone who had tremors on one side and freezing who suffered from Lyme disease and not Parkinson's. As the Lyme improved with treatment those symptoms disappeared.

  • It takes a leap of faith and courage to stand up against the majority and declare that PD can be cured, so I applaud you aclarkson.

    I too believe that and every day take steps to support recovery with the hope that eventually they will yield results. Although my physical symptoms are not changing hugely, my emotional, mental and spiritual progress has been phenomenal. My belief is that the physical will gather pace too. I was diagnosed 6 years ago and still have minimal symptoms.

  • Thanks for this encouraging post! I do high cadence cycling, vigorous walking, gait and balance training with the PoNS, stretching and Yoga, meditation (sometimes Qigong) and Feldenkrais! I also do kind of psychotherapy to learn to deal with all the emotions that come along with PD. I'm SURE it helps. What are you doing everyday?

  • Jens667, I congratulate and admire all you are doing to deal in a positive way with PD. Do you have an online reference which describes or demonstrates 'gait and balance training with the PoNS?

  • Unfortunately I don't have that. What's your programm of exercise and interventions?

  • Currently I do a Dr Joe Dispenza guided meditation, walking ,qi gong and I'm sensible about my diet. I'm mindful of the thoughts and emotions that I entertain as I believe that PD is very much a condition of a life out of balance. Most importantly, I've learnt to develop compassion and courage which are prerequisites for recovery.

  • Hi, sounds like you know about Howard Shifke or Bianca Molle's methods?

  • Absolutely. I've been inspired by both. Howard's blog is a light in the dark. I would recommend it to anyone who wishes to take the road less travelled. Www.fightingparkinsonsdrugfree

  • me too. Have you tried any and any improvement yet?

  • My sense of smell came back. Symptoms are still present but stable.

  • how long have you been doing it?

  • 3/4 years on and off. How about you? Have you been doing it too?

  • I've been doing it most days for over 2 years. My physical looks like getting worse, but I hope it's like what Howard says it can happen during the process.

    I am slower, stiffer, weaker and less hand and leg function, sometimes seems freeze. Do you have these and do they get better or on/off?

    R u on meds?

  • Just started on ropinerole a few weeks ago. Lowest dose. It's allowed me to confidently hold my new grandchild after 3 months.

  • is it because this meds improve your condition?

  • They've helped a little with more fluid movement. I've taken them reluctantly as I don't want to become dependent upon them. I'm choosing to stay on the minimum dose.

  • After 3 to 4 years how much have you improved doing the Recipe and do you still have faith?

  • I have improved but am unable to quantify it. I can smell now and I look like a healthy person. I have good colour in my skin and my eyes are bright. These are indicators that my body is functioning better. At the same time there has also been deterioration in my movement where I've become slightly slower and stiffer. I carry on as I believe in recovery and who knows maybe my condition would have been much worse by now had I not been doing the recipe. In fact, I'm considered to be an exceptional patient by my Parkinson's nurses as I'm doing so well. I have every intention of continuing until victory is mine, regardless of how long it takes. I have nothing to lose and everything to gain.

  • I think i'm similar to you. I hope my increased stiffness, slowness and weakness are healing process.

    How often do you do the Recipe per week?

    How long per day?

    Have you had coaching with Howard?

  • Howard I know very well and he definitely had PD and he cured himself. I do agree that PD is curable. My symptoms were really bad before and now they have been reduced by at least 80% Now, when I get up in the morning and have not taken meds for 17 hours I am nearly symptom free. I am hoping I continue to improve until this is gone completely.

  • How long have you done Howard's Recipe?

    I have been doing it most days for nearly over 2 years. I think maybe smell better and some pain and sleeping better. However, physical symptoms have increased day by day over this time. Now I'm very stiff in one arm and hand. Body is stiffer. My walking gait has changed and stiff, but I still keep faith in the Recipe.

    Can you tell me if this happen with you too?

  • Do you know Howard as friend or through workshops?

  • He coached me for about a year, so I got to know him very well.

  • Please see and reply to the one before this. Thanks

  • No it has not happened that way for me. I have been getting steadily better. I hope I am cured from this in next few months.

  • How long have you been on meds?

  • I have been taking Sinemet for about 2 1/2 years in total. I also take Xadago 100 mg once a day and it really helps. It is by far the best drug I have taken for this.

  • Have you reduced your doses?

    How long have you been doing the Recipe?

    And everyday? All of Morning, afternoon and evening or some?

  • This woman reports being cured of PD as a result of practicing qigong 3 hours/day:

    Now 3 years later 2 hours/day, no meds, no symptoms.

    I am signed up for a 3 week qigong retreat starting the beginning of March. If she can do it, I can do it!

  • Here is another video of someone who improved

    Clear improvement:

  • That's awesomeness, I am going to look into this

  • Can you tell us how you got the PoNS device?

  • Jens667, where did you get the PoNS device?

  • I believe it and I think exercise is the key. You have to fight the disease and not give into it. You have to do the very opposite of what the disease wants you to do.

  • I agree. Stand up to it.

  • I just finish reading "Branstrom" which said that basically there will be no cure for PD

    the book ended by saying that PD is not a death sentence but is a life sentence I'm doing all my research to ensure that my life sentence is lived

    I have been Gluten Free for 12 months

    I have started an exercise program that I'm loving & also taken up Parkie Boxing

    The most important thing above all else is to eliminate negative thoughts & people from my life

    Good luck xx

  • PS

    I have been diagonosed for 8 yrs but have had PD for at least 12 yrs I was 58yrs old when diagonosed & I'm female

    Good luck

  • Can u elaborate on your diet? Other than gluten free, do u eat organic, do you eat sugat, do you eat meat, how much animal protein do you take in in the course of a week? Do you eat dairy? Etc...

  • Who knows if this will provide any answers, but I am participating in the Stanford Plasma Study and have had some remarkable results. I'm headed to Stanford right now or my final two transfusions and tests to see if there have been quantifiable changes. The tests will be repeated in another month. No promises. And I certainly do have Parkinson's.

  • CURABLE. Been Believing since being diagnosed. Belief changes Everything.

    FJohn1

  • Hi Aclarkson.

    This is something I have been saying, not in the same words, for many years. If I have been able to reverse most of my movement symptoms and find ways to overcome many of the other symptoms and remain medication-free for nearly fifteen years, I don't see why many others cannot do the same.

    Of course, they have to be prepared to do some meaningful exercise and stick by some reasonable rules, but that compares favorably to slowly getting worse and worse until I become bed-ridden does not seem an acceptable option to me.

    There are many Pd patients who are convinced that they are unable to do any meaningful walking, but I have not met anybody who can't be taught to walk normally and start doing proper walking.

    I must be speaking a foreign language.

  • An earlier thread on similar topic

    healthunlocked.com/parkinso...

  • 100% curable. Maybe there's more than one way of getting to "the cure". One way could be a specific medication or some other magic bullet. Or, another way could be a matter of our creating so much health, strength, balance, and joy inside ourselves that we open our eyes one day and realize that the dis-ease is no longer present.

  • Agreed

  • I can't say I've seen anyone reverse their symptoms in 30 years but I do think I've stalled the progression. Since I started playing music almost 2 years ago I look better and not feeling worse. I've started sets shaking and after playing a few songs, it goes away. I'm convinced something in my brain has to be released when I play. I also try to keep busy and stretch/exercise/walk about an hour a day.

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