The joy of Parkinson's Disease: When I was... - Cure Parkinson's

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The joy of Parkinson's Disease

Annbuchanan profile image
9 Replies

When I was diagnosed with PD 3 or 4 years ago I started laughingI couldn't have PD...Italians don' get PD! Well, they do! The laughing has been my ally. mostly I am doing well.

My most annoying symptom is extreme sensitivity to noise.

Anything new on this that might bring some relief!

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Annbuchanan profile image
Annbuchanan
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9 Replies

Hello Ann, I find massage of my tremor arm most relaxing. Puts me right to sleep.

I am into my fifth year.

JohnPepper profile image
JohnPepper

It's funny you should say that! I have been allergic to noise since my 20's. You can imagine what pop music does for me! I once got locked into a room with several other youngsters and they thought I was playing the fool when I asked them to turn the volume down. They turned it up and I went crazy.

I never have thought that this might be a symptom of Pd!

jrg54321 profile image
jrg54321

Me too. During exposure to loud noise my left ear well make a crackling sound. Afterwards, I can be left with a humming sound like when you put your ear up to a conch shell and it sounds like the ocean. Is that just me or is that a pd thing?

lempa_nik profile image
lempa_nik in reply to jrg54321

Not a PD thing. It's called "fleeting tinnItus," and is alleged to be very common:

tinnitustalk.com/threads/fl...

"I don't think anybody knows much about the mechanism of fleeting tinnitus.

The auditory system is one of the most active systems in the body. It makes total sense that occasionally some electrochemical signals break through. In fact, if you think about it, it would be rather surprising if they didn't!

I recall several years ago being a speaker at a clinical tinnitus meeting. There were perhaps 150 or so audiologists and ENTs in the audience. The speaker before me asked how many in attendance had tinnitus - and maybe a dozen hands shot into the air (including mine). He then described "fleeting tinnitus" and asked how many had that. 95% raised their hands.

When a person with intrusive tinnitus such as yourself experiences fleeting tinnitus, it is understandable that he or she would tend to tune in to it. But as far as anybody knows, fleeting tinnitus is a very common phenomenon of no clinical significance whatsoever.

Hope this helps.

Dr. Stephen Nagler"

tjpoppop profile image
tjpoppop

No problem with noise, you are right laughter and humor helps me cope.feel free to visit my humor blogparkinsonsticklingmyfunnybo...

Tribselyov profile image
Tribselyov

Since you are Italian....

And since this is American Super Bowl weekend..

And since American football had its origins in Florence..(calico storica)...

And since I was there last summer and it was LOUD....

And since I wrote a book about it Midnight in Florence (crvoyles.com)..

And since I am not above self promotion,..

And since the Medici had motor impairment...

STAY inside..and read my book

Beemacs profile image
Beemacs

I didn't laugh when I was told I have PD almost 13 years when I was 52~~I thought I was too young! From a fellow Italian!

lempa_nik profile image
lempa_nik

Tell us more about your noise sensitivity, please. Is it sudden and loud noises which bother you, i.e., a startle response? Certain kinds of noises which trouble you the most? Do they make you feel like you're being punched in the gut? Or make your ears hurt? I never heard that noise sensitivity was directly connected with PD. I have no medical credentials, but am just curious.

lempa_nik profile image
lempa_nik

Is your noise sensitivity a form of "misophonia," where certain bodily noises, e.g., chewing, breathing, yawning, knuckle cracking, etc., cause you pain, put you on edge, and/or make you angry? If so, we now know it is brain related, but not directly connected with Parkinsonian brain regions.

nytimes.com/2017/02/03/heal...

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