Help needed for stiff neck during night p... - Cure Parkinson's

Cure Parkinson's

25,509 members26,822 posts

Help needed for stiff neck during night preventing sleep

DreamRain profile image
16 Replies

Hi, my friend who suffers from PD, can get to sleep fine, but if he awakes in the middle of the night he becomes aware of a tension in his neck/shoulders (as if he were holding his head up when in fact it is resting on the pillow). No position seems comfortable and he often has to get up and spend the rest of the night asleep sitting upright in a sofa. Does anyone else have this problem? Or know how what might be done to remedy it? He has tried various different pillows and also raising the top part of the mattress but nothing has really worked so far.

Written by
DreamRain profile image
DreamRain
To view profiles and participate in discussions please or .
Read more about...
16 Replies
Enidah profile image
Enidah

I'm having a lot of neck and shoulder pain also. It's hard to describe and very uncomfortable. The only thing I've come up with is to do stretches before bed. I just started this and hope it will help. I live alone or I would have somebody give me a neck massage at night. The cat is completely uncooperative. In fact he might be why I have pain in the neck.

Astra7 profile image
Astra7

Not sure where you live but a few puffs of a joint before sleep really helps with this. If you live somewhere more enlightened you can probably get oil etc. which may be more suitable.

Bazillion profile image
Bazillion in reply to Astra7

Hi Before I started taking CBD I was waking several times with neck/ shoulder pain and having to get up and walk about ,and not sleeping well.

Now I am sleeping 8 hrs .My PD has improved yes improved and my meds working better too.

Its proved to me that Sleep is definitely as important as pills and exercise,giving the body time to care and repair.

DreamRain profile image
DreamRain in reply to Bazillion

Thank you so much for your reply. I am very grateful. What is CBD? I am new to this. Thanks.

: )

Bazillion profile image
Bazillion in reply to DreamRain

It's hemp oil a food supplement (at the moment) of the cannabis family but with all the 'bad' stuff taken out.cwhemp.com/blog/difference-...

healthabc profile image
healthabc

Yes neck/shoulder tension, but for me its all day long, some days worse than others. I did a kind of experiment- I used icy-hot one day, magnesium oil the next, and arnica cream the next. The arnica wins, but so would a neck massage! I do still use icy-hot sometimes ...it helps.

park_bear profile image
park_bear

I have recovered from neck problems. For starters you must be adequately medicated lest PD cause a stiff neck. However, that is not the only cause. Here are some remedies:

1. If sleeping in a bed is problematic then sleep in a recliner. I slept on my back in a recliner for years. One day I tried sleeping in a bed and it was OK again.

2. Stretches! The half spinal twist yoga position is very helpful. I do that daily as part of my Yoga routine upon awakening: youtube.com/watch?v=0TSarYI...

3. Neck massager. I have an earlier model of this:

terapeak.com/worth/the-mass... When stretching is not enough this does the job.

weekapaw profile image
weekapaw

Hi,

I'm fairly new here, diagnosed 2 1/2 years ago. Last spring, I noticed I had a stiff neck for many months. My Neurologist sent me for a full back MRI top to bottom. I had issues with many discs top to bottom. . Here's the thing, My L-1-L-5 (neck down were either herniated, or bulging. I was referred to a Pain Management doctor who is an Anesthesiologist. I had awful sciatica which she took care of first with a Steroidal epidural.

Your neck probably has similar injury as mine. I have learnt that it is common with Parkies. We have Bradykinesia which is a slowing down of signals from the brain to the body. This creates a backup, not unlike a car pile up, causing damage to the spine.

You should ask your doctor. You need a Back Specialist, Not a Movement Disorder Dr.

The solution to this could be as simple as a Cervical Epidural Steroid Injection. Good Luck.

Like Enidah, My pain also goes down my arms at various Times. It's like Sciatica of the arms.

DreamRain profile image
DreamRain

I am so grateful to everyone who has so kindly responded to my query. Your experiences and insights are extremely helpful and the time you have taken in answering so much appreciated. I will let you know how things develop.

jaberalhddad profile image
jaberalhddad

I use the travel pillow when I sleep the same one we use in airplanes its helping me to some extent

laglag profile image
laglag

I've used a lotion on my neck & lower back that works good called Topricin. I order from Amazon.

MaggieMae1223 profile image
MaggieMae1223 in reply to laglag

I use marajuna salve for my husbands back & shoulders... Marajuna is legal in our state which makes it easy for us to buy at the dispensary.. Praying u will find relief soon...

pedserv profile image
pedserv

I find simple neck rotation exercises and Arthritis strength acetometiphine help a lot.

Wheatgirl53 profile image
Wheatgirl53

Massage has helped my mom with this problem and dry brushing seems to help as well.

joe45 profile image
joe45

Hi dream rain I have tortecollis which like dystonia and my main. Symptom is a stiff neck which is very uncomfortable , I have pain as well .. I was first diagnosed with pd and the i had a second opinion so now got msa -p which is Parkinisom msa stands for multiple system atrophy. . I've tried muscle relaxants for stiff neck baclofen, dizapam,clonezapam and Botox , I'm still having the Botox but it's only getting rid of the pain not the actual stiffness ,which. Is my. Main problem. If there is anyone who's had relief from a stiff neck It will be really appreciated......"

Cindy27 profile image
Cindy27

I use the flattest pillow possible to avoid waking up during the night with a stiff neck. Try slicing a memory form pillow in half horizontally if you can't find a flat pillow. Or cut open and remove half the down in your feather pillow and sew it back up.

You may also like...

Help need sleep advice

still hit or miss on his sleep I’d love any other suggestions this really affects his quality of...

help please PArkinson RLS, need to sleep

what would you suggest to get the best possible night from 10 pm ? Thanks for your help Marc

Sweating during the night

During the last few months I'm sweating during the night. I'm waking about 3-4 am with my T-shirt...

More Sinemet, Comtan Needed At Night Than Day

persons sleep through the night? How many PWPs can make it through the night without having to...

Help Needed! Selegiline?

right before bedtime, so I can have few hours of comfortable sleep. Recently my neurologist added...