I was diagnosed with Parkinson's in 2009. In 2010, on the recommendation of my Neurologist, I started treating my symptoms with Carbo/Levo 25/100. One half tab three times a day. After three months there was little change to my symptoms and things actually appeared to be getting worse. We began titrating up on a somewhat regular basis. Nearly seven years later, I now take sixteen Carbo/Levo 25/100 each day. For the past four years my symptoms have been fairly well managed. I walk now with a nearly normal gate, my tremor is hard for the uninformed person to usually notice, and my speech is greatly improved.
Now, because for the past four years I have stabilized and had very little progression of the disease, my Neurologist suggested the other day that maybe he was wrong, and that I may not have Parkinson's. He based this on his observation that my symptom have been stable for the past four years, with only minor adjustment of medication.
It seems to me that the amount of Carbo/Levo he has me on would have some type of negative effect on me if I did not have Parkinson's. If you don't have Parkinson's, can a person just take Carbo/Levo without any Side effect?
Has anyone out there have a thought on this or heard of this before?